Tobi and Colistin during pregnancy

[LouLou]

Yes I used Tobi while pregnant. I recall at one point during the first trimester I was very stable and healthy with minimal cough so we stretched it 6 weeks until starting back on Tobi. For the remainder of the pregnancy I inhaled Tobi every other month.

Also, I just wanted to say what is good for one mom-to-be varies from person to person due to risk/benefit ratio. One mother might have very little lung involvement from their PA and do fine without Tobi where you may need Tobi to keep other worse infections at bay. While pregnant you have to do what you have to do to stay healthy since you want to come out of it in the best possible condition. If taking Tobi means you won't have to do IV antibiotics then it's probably a risk worth taking. Just my two cents.

Oh and it's never too early to start talking to your baby

 

[LouLou]

Yes I used Tobi while pregnant. I recall at one point during the first trimester I was very stable and healthy with minimal cough so we stretched it 6 weeks until starting back on Tobi. For the remainder of the pregnancy I inhaled Tobi every other month.

Also, I just wanted to say what is good for one mom-to-be varies from person to person due to risk/benefit ratio. One mother might have very little lung involvement from their PA and do fine without Tobi where you may need Tobi to keep other worse infections at bay. While pregnant you have to do what you have to do to stay healthy since you want to come out of it in the best possible condition. If taking Tobi means you won't have to do IV antibiotics then it's probably a risk worth taking. Just my two cents.

Oh and it's never too early to start talking to your baby

 

[LouLou]

Yes I used Tobi while pregnant. I recall at one point during the first trimester I was very stable and healthy with minimal cough so we stretched it 6 weeks until starting back on Tobi. For the remainder of the pregnancy I inhaled Tobi every other month.

Also, I just wanted to say what is good for one mom-to-be varies from person to person due to risk/benefit ratio. One mother might have very little lung involvement from their PA and do fine without Tobi where you may need Tobi to keep other worse infections at bay. While pregnant you have to do what you have to do to stay healthy since you want to come out of it in the best possible condition. If taking Tobi means you won't have to do IV antibiotics then it's probably a risk worth taking. Just my two cents.

Oh and it's never too early to start talking to your baby

 

[LouLou]

Yes I used Tobi while pregnant. I recall at one point during the first trimester I was very stable and healthy with minimal cough so we stretched it 6 weeks until starting back on Tobi. For the remainder of the pregnancy I inhaled Tobi every other month.

Also, I just wanted to say what is good for one mom-to-be varies from person to person due to risk/benefit ratio. One mother might have very little lung involvement from their PA and do fine without Tobi where you may need Tobi to keep other worse infections at bay. While pregnant you have to do what you have to do to stay healthy since you want to come out of it in the best possible condition. If taking Tobi means you won't have to do IV antibiotics then it's probably a risk worth taking. Just my two cents.

Oh and it's never too early to start talking to your baby

 

[LouLou]

Yes I used Tobi while pregnant. I recall at one point during the first trimester I was very stable and healthy with minimal cough so we stretched it 6 weeks until starting back on Tobi. For the remainder of the pregnancy I inhaled Tobi every other month.
<br />
<br />Also, I just wanted to say what is good for one mom-to-be varies from person to person due to risk/benefit ratio. One mother might have very little lung involvement from their PA and do fine without Tobi where you may need Tobi to keep other worse infections at bay. While pregnant you have to do what you have to do to stay healthy since you want to come out of it in the best possible condition. If taking Tobi means you won't have to do IV antibiotics then it's probably a risk worth taking. Just my two cents.
<br />
<br />Oh and it's never too early to start talking to your baby

 

[serendipity730]

Thanks for the words of encouragement <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am concerned about having to go off both or either of the these meds. I like the idea of doing Tobi every 6 weeks, so at least I would still be getting it.

 

[serendipity730]

Thanks for the words of encouragement <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am concerned about having to go off both or either of the these meds. I like the idea of doing Tobi every 6 weeks, so at least I would still be getting it.

 

[serendipity730]

Thanks for the words of encouragement <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am concerned about having to go off both or either of the these meds. I like the idea of doing Tobi every 6 weeks, so at least I would still be getting it.

 

[serendipity730]

Thanks for the words of encouragement <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am concerned about having to go off both or either of the these meds. I like the idea of doing Tobi every 6 weeks, so at least I would still be getting it.

 

[serendipity730]

Thanks for the words of encouragement <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am concerned about having to go off both or either of the these meds. I like the idea of doing Tobi every 6 weeks, so at least I would still be getting it.

 

[mom2lillian]

I did peak level after inhaled TOBI and it was not showing up. My doctors had already recommended and perinatologist ok'd staying on it but I wanted additional data.

Will you wait to see how this new event affects your health prior to ttc again?

 

[mom2lillian]

I did peak level after inhaled TOBI and it was not showing up. My doctors had already recommended and perinatologist ok'd staying on it but I wanted additional data.

Will you wait to see how this new event affects your health prior to ttc again?

 

[mom2lillian]

I did peak level after inhaled TOBI and it was not showing up. My doctors had already recommended and perinatologist ok'd staying on it but I wanted additional data.

Will you wait to see how this new event affects your health prior to ttc again?

 

[mom2lillian]

I did peak level after inhaled TOBI and it was not showing up. My doctors had already recommended and perinatologist ok'd staying on it but I wanted additional data.

Will you wait to see how this new event affects your health prior to ttc again?

 

[mom2lillian]

I did peak level after inhaled TOBI and it was not showing up. My doctors had already recommended and perinatologist ok'd staying on it but I wanted additional data.
<br />
<br />Will you wait to see how this new event affects your health prior to ttc again?

 

[rubyroselee]

Hi Mary,

I am quite dependent on Tobi, and use it on a 3 weeks on/1 week off cycle. The risk was too great for me to stop it during pregnancy, so I stayed on it the entire time on my normal regimen. I also had an exacerbation around 5 months pregnant and went on Colistin for a month to clear that up.

Regarding Tobi, most literature says that tobramycin is a category D drug, although most of the time it does not specify the method of delivery. When it's inhaled, the risk is significantly less for it to enter the bloodstream and to be in high enough concentrations to affect the baby.

For me it was a no-brainer, I was not going to stop the Tobi. I was not going to risk getting sick and end up going on IV tobramycin and having the risk to the baby be even higher. I preferred to be on inhaled meds versus using oral or IV meds to keep my lungs healthy.

You will get a lot of mixed things from you CF doctor and your OB/Gyn. My OB/Gyn seemed to just know the basics of CF and was not up on his research at all (comforting, huh?). So he was always saying that I should be off it. Whereas my CF doctor was not as concerned because the drugs were inhaled.

So it all depends on what's right for you!

 

[rubyroselee]

Hi Mary,

I am quite dependent on Tobi, and use it on a 3 weeks on/1 week off cycle. The risk was too great for me to stop it during pregnancy, so I stayed on it the entire time on my normal regimen. I also had an exacerbation around 5 months pregnant and went on Colistin for a month to clear that up.

Regarding Tobi, most literature says that tobramycin is a category D drug, although most of the time it does not specify the method of delivery. When it's inhaled, the risk is significantly less for it to enter the bloodstream and to be in high enough concentrations to affect the baby.

For me it was a no-brainer, I was not going to stop the Tobi. I was not going to risk getting sick and end up going on IV tobramycin and having the risk to the baby be even higher. I preferred to be on inhaled meds versus using oral or IV meds to keep my lungs healthy.

You will get a lot of mixed things from you CF doctor and your OB/Gyn. My OB/Gyn seemed to just know the basics of CF and was not up on his research at all (comforting, huh?). So he was always saying that I should be off it. Whereas my CF doctor was not as concerned because the drugs were inhaled.

So it all depends on what's right for you!

 

[rubyroselee]

Hi Mary,

I am quite dependent on Tobi, and use it on a 3 weeks on/1 week off cycle. The risk was too great for me to stop it during pregnancy, so I stayed on it the entire time on my normal regimen. I also had an exacerbation around 5 months pregnant and went on Colistin for a month to clear that up.

Regarding Tobi, most literature says that tobramycin is a category D drug, although most of the time it does not specify the method of delivery. When it's inhaled, the risk is significantly less for it to enter the bloodstream and to be in high enough concentrations to affect the baby.

For me it was a no-brainer, I was not going to stop the Tobi. I was not going to risk getting sick and end up going on IV tobramycin and having the risk to the baby be even higher. I preferred to be on inhaled meds versus using oral or IV meds to keep my lungs healthy.

You will get a lot of mixed things from you CF doctor and your OB/Gyn. My OB/Gyn seemed to just know the basics of CF and was not up on his research at all (comforting, huh?). So he was always saying that I should be off it. Whereas my CF doctor was not as concerned because the drugs were inhaled.

So it all depends on what's right for you!

 

[rubyroselee]

Hi Mary,

I am quite dependent on Tobi, and use it on a 3 weeks on/1 week off cycle. The risk was too great for me to stop it during pregnancy, so I stayed on it the entire time on my normal regimen. I also had an exacerbation around 5 months pregnant and went on Colistin for a month to clear that up.

Regarding Tobi, most literature says that tobramycin is a category D drug, although most of the time it does not specify the method of delivery. When it's inhaled, the risk is significantly less for it to enter the bloodstream and to be in high enough concentrations to affect the baby.

For me it was a no-brainer, I was not going to stop the Tobi. I was not going to risk getting sick and end up going on IV tobramycin and having the risk to the baby be even higher. I preferred to be on inhaled meds versus using oral or IV meds to keep my lungs healthy.

You will get a lot of mixed things from you CF doctor and your OB/Gyn. My OB/Gyn seemed to just know the basics of CF and was not up on his research at all (comforting, huh?). So he was always saying that I should be off it. Whereas my CF doctor was not as concerned because the drugs were inhaled.

So it all depends on what's right for you!

 

[rubyroselee]

Hi Mary,
<br />
<br />I am quite dependent on Tobi, and use it on a 3 weeks on/1 week off cycle. The risk was too great for me to stop it during pregnancy, so I stayed on it the entire time on my normal regimen. I also had an exacerbation around 5 months pregnant and went on Colistin for a month to clear that up.
<br />
<br />Regarding Tobi, most literature says that tobramycin is a category D drug, although most of the time it does not specify the method of delivery. When it's inhaled, the risk is significantly less for it to enter the bloodstream and to be in high enough concentrations to affect the baby.
<br />
<br />For me it was a no-brainer, I was not going to stop the Tobi. I was not going to risk getting sick and end up going on IV tobramycin and having the risk to the baby be even higher. I preferred to be on inhaled meds versus using oral or IV meds to keep my lungs healthy.
<br />
<br />You will get a lot of mixed things from you CF doctor and your OB/Gyn. My OB/Gyn seemed to just know the basics of CF and was not up on his research at all (comforting, huh?). So he was always saying that I should be off it. Whereas my CF doctor was not as concerned because the drugs were inhaled.
<br />
<br />So it all depends on what's right for you!