Tobi

taylorsmommy

New member
My daughter is almost nine years old. She grew pseudomonas once or twice when she was four years old. Her doctor had her rotate bactrim and tobi. She finally came off the bactrim after <i>two years</i>, but they have had her continue the tobi cycle. She hasnt grown pseudo in almost four years. Is it neccesary for her to still do Tobi? She does still have MRSA which she has had since she was four and has had ever since.
 

taylorsmommy

New member
My daughter is almost nine years old. She grew pseudomonas once or twice when she was four years old. Her doctor had her rotate bactrim and tobi. She finally came off the bactrim after <i>two years</i>, but they have had her continue the tobi cycle. She hasnt grown pseudo in almost four years. Is it neccesary for her to still do Tobi? She does still have MRSA which she has had since she was four and has had ever since.
 

taylorsmommy

New member
My daughter is almost nine years old. She grew pseudomonas once or twice when she was four years old. Her doctor had her rotate bactrim and tobi. She finally came off the bactrim after <i>two years</i>, but they have had her continue the tobi cycle. She hasnt grown pseudo in almost four years. Is it neccesary for her to still do Tobi? She does still have MRSA which she has had since she was four and has had ever since.
 

taylorsmommy

New member
My daughter is almost nine years old. She grew pseudomonas once or twice when she was four years old. Her doctor had her rotate bactrim and tobi. She finally came off the bactrim after <i>two years</i>, but they have had her continue the tobi cycle. She hasnt grown pseudo in almost four years. Is it neccesary for her to still do Tobi? She does still have MRSA which she has had since she was four and has had ever since.
 

taylorsmommy

New member
My daughter is almost nine years old. She grew pseudomonas once or twice when she was four years old. Her doctor had her rotate bactrim and tobi. She finally came off the bactrim after <i>two years</i>, but they have had her continue the tobi cycle. She hasnt grown pseudo in almost four years. Is it neccesary for her to still do Tobi? She does still have MRSA which she has had since she was four and has had ever since.
 

pipersmom

New member
Hi! Piper cultured pseudo until she was about 3 yrs old, and has cultured MRSA since she was 6. She stayed on the TOBI for 4 yrs after she stopped culturing pseudo, we took her off it for maybe 6 months, and re-started it because we could see a difference in the number of exacerbations she was having increasing. There is some thought that pseudo can be masked by MRSA. There's also the school of thought that just because something isn't showing on a culture, doesn't mean that it isn't there. Particularly with "cough" cultures, there's no way of knowing what part of the lungs the mucus is coming from, and what may be growing in a different place. I look at it as a better safe than sorry thing, particularly when we saw her health slide down when we stopped the TOBI. Maybe if you really want her off it, you can talk to the Drs about doing a trial run off it to see what happens. Hope this helps...
 

pipersmom

New member
Hi! Piper cultured pseudo until she was about 3 yrs old, and has cultured MRSA since she was 6. She stayed on the TOBI for 4 yrs after she stopped culturing pseudo, we took her off it for maybe 6 months, and re-started it because we could see a difference in the number of exacerbations she was having increasing. There is some thought that pseudo can be masked by MRSA. There's also the school of thought that just because something isn't showing on a culture, doesn't mean that it isn't there. Particularly with "cough" cultures, there's no way of knowing what part of the lungs the mucus is coming from, and what may be growing in a different place. I look at it as a better safe than sorry thing, particularly when we saw her health slide down when we stopped the TOBI. Maybe if you really want her off it, you can talk to the Drs about doing a trial run off it to see what happens. Hope this helps...
 

pipersmom

New member
Hi! Piper cultured pseudo until she was about 3 yrs old, and has cultured MRSA since she was 6. She stayed on the TOBI for 4 yrs after she stopped culturing pseudo, we took her off it for maybe 6 months, and re-started it because we could see a difference in the number of exacerbations she was having increasing. There is some thought that pseudo can be masked by MRSA. There's also the school of thought that just because something isn't showing on a culture, doesn't mean that it isn't there. Particularly with "cough" cultures, there's no way of knowing what part of the lungs the mucus is coming from, and what may be growing in a different place. I look at it as a better safe than sorry thing, particularly when we saw her health slide down when we stopped the TOBI. Maybe if you really want her off it, you can talk to the Drs about doing a trial run off it to see what happens. Hope this helps...
 

pipersmom

New member
Hi! Piper cultured pseudo until she was about 3 yrs old, and has cultured MRSA since she was 6. She stayed on the TOBI for 4 yrs after she stopped culturing pseudo, we took her off it for maybe 6 months, and re-started it because we could see a difference in the number of exacerbations she was having increasing. There is some thought that pseudo can be masked by MRSA. There's also the school of thought that just because something isn't showing on a culture, doesn't mean that it isn't there. Particularly with "cough" cultures, there's no way of knowing what part of the lungs the mucus is coming from, and what may be growing in a different place. I look at it as a better safe than sorry thing, particularly when we saw her health slide down when we stopped the TOBI. Maybe if you really want her off it, you can talk to the Drs about doing a trial run off it to see what happens. Hope this helps...
 

pipersmom

New member
Hi! Piper cultured pseudo until she was about 3 yrs old, and has cultured MRSA since she was 6. She stayed on the TOBI for 4 yrs after she stopped culturing pseudo, we took her off it for maybe 6 months, and re-started it because we could see a difference in the number of exacerbations she was having increasing. There is some thought that pseudo can be masked by MRSA. There's also the school of thought that just because something isn't showing on a culture, doesn't mean that it isn't there. Particularly with "cough" cultures, there's no way of knowing what part of the lungs the mucus is coming from, and what may be growing in a different place. I look at it as a better safe than sorry thing, particularly when we saw her health slide down when we stopped the TOBI. Maybe if you really want her off it, you can talk to the Drs about doing a trial run off it to see what happens. Hope this helps...
 

MaksNana

New member
Hey Amanda, I'm glad to get all the advise I can get from you. I agree with your reply 100%.
Good to have you here,,Karla <img src="i/expressions/heart.gif" border="0">
 

MaksNana

New member
Hey Amanda, I'm glad to get all the advise I can get from you. I agree with your reply 100%.
Good to have you here,,Karla <img src="i/expressions/heart.gif" border="0">
 

MaksNana

New member
Hey Amanda, I'm glad to get all the advise I can get from you. I agree with your reply 100%.
Good to have you here,,Karla <img src="i/expressions/heart.gif" border="0">
 

MaksNana

New member
Hey Amanda, I'm glad to get all the advise I can get from you. I agree with your reply 100%.
Good to have you here,,Karla <img src="i/expressions/heart.gif" border="0">
 

MaksNana

New member
Hey Amanda, I'm glad to get all the advise I can get from you. I agree with your reply 100%.
<br />Good to have you here,,Karla <img src="i/expressions/heart.gif" border="0">
 

taylorsmommy

New member
Thanks for the reply. I didn't look at it that way, pipersmom. I worry about possible hearing loss someday, but I suppose having the pseudo rear its ugly head again would be the worse alternative.
 

taylorsmommy

New member
Thanks for the reply. I didn't look at it that way, pipersmom. I worry about possible hearing loss someday, but I suppose having the pseudo rear its ugly head again would be the worse alternative.
 

taylorsmommy

New member
Thanks for the reply. I didn't look at it that way, pipersmom. I worry about possible hearing loss someday, but I suppose having the pseudo rear its ugly head again would be the worse alternative.
 

taylorsmommy

New member
Thanks for the reply. I didn't look at it that way, pipersmom. I worry about possible hearing loss someday, but I suppose having the pseudo rear its ugly head again would be the worse alternative.
 

taylorsmommy

New member
Thanks for the reply. I didn't look at it that way, pipersmom. I worry about possible hearing loss someday, but I suppose having the pseudo rear its ugly head again would be the worse alternative.
 
Top