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Tobramycin for Inhalation
- Thread starter KrazyKat
- Start date
My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs).
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs).
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs).
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the same type as for ceft.
My younger son (10), doesnt like the taste, but he puts up with it.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>wuffles</b></i>
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>wuffles</b></i>
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>wuffles</b></i>
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
have no problems with it whatsoever.</end quote></div>
just because you're not feeling adverse events doesn't mean damage isn't being done, wouldn't you agree? subjective measurements are one thing... objective measurements may reveal something else....
i would take every precaution possible to ensure what is going into my lungs isn't harmful....
I've never had a decline in lung function using Tobramycin opposed to anything else, so that's how I make my decision. Sure, it may not be for everyone, but if I'm comfortable using it, that's all that matters to me <img src="i/expressions/face-icon-small-smile.gif" border="0">
I've never had a decline in lung function using Tobramycin opposed to anything else, so that's how I make my decision. Sure, it may not be for everyone, but if I'm comfortable using it, that's all that matters to me <img src="i/expressions/face-icon-small-smile.gif" border="0">
I've never had a decline in lung function using Tobramycin opposed to anything else, so that's how I make my decision. Sure, it may not be for everyone, but if I'm comfortable using it, that's all that matters to me <img src="i/expressions/face-icon-small-smile.gif" border="0">
The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
It is prescribed at the clinic, when he has had IVs it is exactly the same Tob. as what is nebulised...it is all done under medical supervision.
I've been on nebulized (IV) tobramycin as well, prescribed from my CF clinic in Canada (I live in the Cayman Islands). Whenever I go on it, they instruct that I do 80mg twice daily and it must be mixed with ventolin/albuterol/salbutamol (which are all the same drug from what I know) because on it's own it can be very irritating and cause bronco spasm (if you leave it to dry you'll realise it gets quite sticky) which the ventolin helps to ease the chance of spasm. They made me do a test to see if I would be alright taking it by doing a PFT before use of it and then after and, if my mind serves me right, if I didn't drop more than 5-10% FEV-1 (can't remember exactly what % they used as the limit) then it was considerred ok to use it instead of the tobi, and as Kiel said it's a hell of alot cheaper!!!! This alternative was never mensioned to me at any other CF clinic I went to in the US - kinda seems like the US loves to push the expensive drugs (no offense meant by that). They actually told me to save myself time I could combine the tobra with the ventolin and atrovent and that'd be fine too (which I do), I just make sure and give the nebulizer a good cleaning after using the tobramycin.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
I've been on nebulized (IV) tobramycin as well, prescribed from my CF clinic in Canada (I live in the Cayman Islands). Whenever I go on it, they instruct that I do 80mg twice daily and it must be mixed with ventolin/albuterol/salbutamol (which are all the same drug from what I know) because on it's own it can be very irritating and cause bronco spasm (if you leave it to dry you'll realise it gets quite sticky) which the ventolin helps to ease the chance of spasm. They made me do a test to see if I would be alright taking it by doing a PFT before use of it and then after and, if my mind serves me right, if I didn't drop more than 5-10% FEV-1 (can't remember exactly what % they used as the limit) then it was considerred ok to use it instead of the tobi, and as Kiel said it's a hell of alot cheaper!!!! This alternative was never mensioned to me at any other CF clinic I went to in the US - kinda seems like the US loves to push the expensive drugs (no offense meant by that). They actually told me to save myself time I could combine the tobra with the ventolin and atrovent and that'd be fine too (which I do), I just make sure and give the nebulizer a good cleaning after using the tobramycin.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
I've been on nebulized (IV) tobramycin as well, prescribed from my CF clinic in Canada (I live in the Cayman Islands). Whenever I go on it, they instruct that I do 80mg twice daily and it must be mixed with ventolin/albuterol/salbutamol (which are all the same drug from what I know) because on it's own it can be very irritating and cause bronco spasm (if you leave it to dry you'll realise it gets quite sticky) which the ventolin helps to ease the chance of spasm. They made me do a test to see if I would be alright taking it by doing a PFT before use of it and then after and, if my mind serves me right, if I didn't drop more than 5-10% FEV-1 (can't remember exactly what % they used as the limit) then it was considerred ok to use it instead of the tobi, and as Kiel said it's a hell of alot cheaper!!!! This alternative was never mensioned to me at any other CF clinic I went to in the US - kinda seems like the US loves to push the expensive drugs (no offense meant by that). They actually told me to save myself time I could combine the tobra with the ventolin and atrovent and that'd be fine too (which I do), I just make sure and give the nebulizer a good cleaning after using the tobramycin.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
What's the amount in your vials? If you have no other option I would say give it a try and see how you cope with it, but if you find it too irritating and constricts your breathing too much then stop it. The way I see it is that you'd have to try it anyway to know if it'll cause irritation anyway, would be better if you had a peak flow meter too, at least that could give you some indication of the extent of any bronco spasming caused (if any).
As far as the preservative thing, hopefully when I go home I'll remember to check the label on mine.
Thanks everybody for your thoughts, much appreciated. Although I agree I need to be very very careful, I also sort of need to be my own health champion over here, they really don't do much for us, that's why this forum and all of you are an absolute godsend for me. I would never even have tried Pulmozyme had I not read about it on here and pushed the issue with my doctor - i was 6% FEV1 away from a lung transplant and it had never even been mentioned...i'm now at 52% and my health is better now at 38 than it was when I was 25!!!!
The vials I have are 80mg each as Ender and a couple of others have said and I am 90% sure my nephew was inhaling this IV version of Tobra.
If TOBI is indeed 10 times more expensive than Tobra then that explains why in NZ we nebulise the Tobra, they are tight as all hell over here, hence also no Azithromycin, they give me Roxithromycin instead, because it's CHEAPER!!!
You Americans are lucky, no expense spared in the fight to keep you well, down here, they don't give a crap, they just want CHEAP.
I however only have Salbutomal inhaler, I don't use Albuterol or any other liquid type of broncho-dilator......could i mix the Tobra with Water for Injection or sterile saline 0.9% do you think??? If so, how much should I dilute the 80mg vial with?
I don't have very reactive airways, i wouldn't know a broncho-spasm if i fell over one...what does it feel like???
The vials I have are 80mg each as Ender and a couple of others have said and I am 90% sure my nephew was inhaling this IV version of Tobra.
If TOBI is indeed 10 times more expensive than Tobra then that explains why in NZ we nebulise the Tobra, they are tight as all hell over here, hence also no Azithromycin, they give me Roxithromycin instead, because it's CHEAPER!!!
You Americans are lucky, no expense spared in the fight to keep you well, down here, they don't give a crap, they just want CHEAP.
I however only have Salbutomal inhaler, I don't use Albuterol or any other liquid type of broncho-dilator......could i mix the Tobra with Water for Injection or sterile saline 0.9% do you think??? If so, how much should I dilute the 80mg vial with?
I don't have very reactive airways, i wouldn't know a broncho-spasm if i fell over one...what does it feel like???