Today is the day.....

Scarlett81

New member
Hey all,

Well I have to say, after sleeping on yesterday I feel a little better. As you all know, I really had set in my mind my whole life that I would adopt someday, but never be able to have children naturally. And I was ok with that. And then recently I began to just wonder-maybe I could? So I'm all nervous all morning preparing to go. Then I finally calm down, and I think I went in thinking to myself-everything will be fine, she's gonna look at you and say, "christian, you can absolutely get pregnant, youre healthy enough."
I really thought that. B/c I think I am healthy for a CFer.

So when she told me -gently and kindly- that she didn't think I was, I was ok, but surprised. And she explained all the facts, all the ins and outs, and I thought she'd give me some magic solution. And then she moves on to starting talking about adoption. And the facts of that, and then I started to lose it. (I mean, she did exactly what I wanted, I didn't go there to have my ears tickled.) I thought we were there to have a totally different conversation. I guess I didn't realize that I wanted it.

Anyway, she wants me to start a more agressive program. Of diet, daily workouts, more therapies,ect. She wants me to come in every 2 months and be reevaluated. She has bi-monthly goals for me set out. And then once I reach the number that we want, if I can hold it for a year, then maybe pregnancy can be brought up again. But, my hubby and I did both get the impression that her first reccomendation would be adoption. A big concern I think is the cepacia. It kind of sneaks up on me, and does weird stuff to me. And I'm already resistant to a few meds. One thing my husband and I both agree on is that the risk-to a certian extent-is not worth it for us. I know there are people that are born to give birth. I admire that greatly and respect it. For us, first and foremost I want to raise children. And I want to be there as long as possible. And I think my hubby feels stronger about that than me.

Anyway, guys, it ended off well. I have defined goals that I can start. She ended it with-she's never had a patient that wanted to be a parent, and one way or another, wasn't able to become one. And that's all I care about.

I also remember, I have a special gift. I was adopted. I think the number one complaint of adopted children is that no matter how much their parents love them, they can never really understand what it's like to be adopted. Well, I'd always be able to say to my child-I do understand how you feel, because I lived it too. I would truly be able to understand them.

We'll see what God has in store for me. Each day I wake up, each therapy, each treadmill run, I say-Christian, you're one step closer to your children. And whatever that means, birth or adoption, I'll take His gift.

Thanks every one. I really need you all right now. Also-You mothers out there-how do you do it? How do you keep up with your therapies, and taking care of yourself, and your kids? Especially with babies? What do you do when you need to do your Vest and the baby is screaming?
 

Scarlett81

New member
Hey all,

Well I have to say, after sleeping on yesterday I feel a little better. As you all know, I really had set in my mind my whole life that I would adopt someday, but never be able to have children naturally. And I was ok with that. And then recently I began to just wonder-maybe I could? So I'm all nervous all morning preparing to go. Then I finally calm down, and I think I went in thinking to myself-everything will be fine, she's gonna look at you and say, "christian, you can absolutely get pregnant, youre healthy enough."
I really thought that. B/c I think I am healthy for a CFer.

So when she told me -gently and kindly- that she didn't think I was, I was ok, but surprised. And she explained all the facts, all the ins and outs, and I thought she'd give me some magic solution. And then she moves on to starting talking about adoption. And the facts of that, and then I started to lose it. (I mean, she did exactly what I wanted, I didn't go there to have my ears tickled.) I thought we were there to have a totally different conversation. I guess I didn't realize that I wanted it.

Anyway, she wants me to start a more agressive program. Of diet, daily workouts, more therapies,ect. She wants me to come in every 2 months and be reevaluated. She has bi-monthly goals for me set out. And then once I reach the number that we want, if I can hold it for a year, then maybe pregnancy can be brought up again. But, my hubby and I did both get the impression that her first reccomendation would be adoption. A big concern I think is the cepacia. It kind of sneaks up on me, and does weird stuff to me. And I'm already resistant to a few meds. One thing my husband and I both agree on is that the risk-to a certian extent-is not worth it for us. I know there are people that are born to give birth. I admire that greatly and respect it. For us, first and foremost I want to raise children. And I want to be there as long as possible. And I think my hubby feels stronger about that than me.

Anyway, guys, it ended off well. I have defined goals that I can start. She ended it with-she's never had a patient that wanted to be a parent, and one way or another, wasn't able to become one. And that's all I care about.

I also remember, I have a special gift. I was adopted. I think the number one complaint of adopted children is that no matter how much their parents love them, they can never really understand what it's like to be adopted. Well, I'd always be able to say to my child-I do understand how you feel, because I lived it too. I would truly be able to understand them.

We'll see what God has in store for me. Each day I wake up, each therapy, each treadmill run, I say-Christian, you're one step closer to your children. And whatever that means, birth or adoption, I'll take His gift.

Thanks every one. I really need you all right now. Also-You mothers out there-how do you do it? How do you keep up with your therapies, and taking care of yourself, and your kids? Especially with babies? What do you do when you need to do your Vest and the baby is screaming?
 

JazzysMom

New member
I am so glad that you are in a better frame of mind today, Christian. I have said this time & time again. I trust Dr. Walkers opinion about everything & she really cares about striving for your goal. She isnt just blowing hot air. What she wont tell you is something that isnt true.....if she didnt think it was at all possible with the hard work etc then she would tell you that. If you still have a part of you that wants to get pregnant in addition to or instead of adoption, be prepared for her to be tough on you! I had no real problems when Jazmine was a baby. I worked fulltime etc. It wasnt until my husband took a job quite a distance from home that it got hard. Then I was handling everything on my own & it got to be too much. I dont have cepacia so that will make a difference I am sure. Its a tough balance. Juggling the treatments, child care, house work etc....but its definitely possible. For me routine is a big thing. It makes it so much easier. When Jazz was an infant it was hard when she got sick etc, but totally worth it. My husband use to think I was crazy because I said that I loved getting up with her at 2am or having her sleep on my chest while I sat in the rocking chair when she had bronchitis. Even tho it was hard, I appreciated all of that because once it was gone...it could never be recaptured only cherished!!!! Be well my friend!
 

JazzysMom

New member
I am so glad that you are in a better frame of mind today, Christian. I have said this time & time again. I trust Dr. Walkers opinion about everything & she really cares about striving for your goal. She isnt just blowing hot air. What she wont tell you is something that isnt true.....if she didnt think it was at all possible with the hard work etc then she would tell you that. If you still have a part of you that wants to get pregnant in addition to or instead of adoption, be prepared for her to be tough on you! I had no real problems when Jazmine was a baby. I worked fulltime etc. It wasnt until my husband took a job quite a distance from home that it got hard. Then I was handling everything on my own & it got to be too much. I dont have cepacia so that will make a difference I am sure. Its a tough balance. Juggling the treatments, child care, house work etc....but its definitely possible. For me routine is a big thing. It makes it so much easier. When Jazz was an infant it was hard when she got sick etc, but totally worth it. My husband use to think I was crazy because I said that I loved getting up with her at 2am or having her sleep on my chest while I sat in the rocking chair when she had bronchitis. Even tho it was hard, I appreciated all of that because once it was gone...it could never be recaptured only cherished!!!! Be well my friend!
 

Jane

Digital opinion leader
Christian,
Life is so hard, so unfair but we all do the best we can. It will all work out for you. You seem to have a great attitude and a great husband, so you're ahead of the game already. It sounds like your doctor is willing to work together with you and keep your health needs and your maternal needs in mind.
 

Jane

Digital opinion leader
Christian,
Life is so hard, so unfair but we all do the best we can. It will all work out for you. You seem to have a great attitude and a great husband, so you're ahead of the game already. It sounds like your doctor is willing to work together with you and keep your health needs and your maternal needs in mind.
 
S

skh

Guest
Christian, I am so glad that you feel better about things today. Keep that positive attitude and who knows what tomorrow will bring!

Hugs,

Sue
 
S

skh

Guest
Christian, I am so glad that you feel better about things today. Keep that positive attitude and who knows what tomorrow will bring!

Hugs,

Sue
 

anonymous

New member
Hello, If you don't mind me asking what is your FEV1?
I am kind of in the same boat and have been working really hard to improve my PFT's. I was at a solid FEV1 of 75ish for a good year- my doctor wanted me to be in the 80's before I started trying. I ended up in the hospital with pnemonia this past December and my FEV1 went all the way down to 27%. I am trying really hard to get it back up now but feel like if I would have listened to my body and tried when my FEV1 was high things may have worked out a bit differently. I am not trying to sound negative at all- just wanted to know what your doc said about your FEV1-
 

thelizardqueen

New member
Christian - I'm glad that you feel better today. Sometimes it just takes time to sleep on it, to come to the realization that this is ok. Who knows, maybe in a year you will be able to get pregnant. Things work in mysterious ways. But you are an inspiration to me, I too am taking the attitude of 'keep my sugars down, do my treatments and physio, take my vitamins, get some exercise, and I will be healthier for when I do want to become pregnant'. Adoption is a great idea as well. My brother was adopted, and I'm so glad that my paretns were open minded to the idea, and knew that even though my brother isn't BLOOD related, he is still part of our family - he is my brother regardless of where he came from.
 

Scarlett81

New member
Hello Anon-

I get these PFT #'s so mixed up sometimes! But my FEV 1 was 90 last month, I caught a cold and it went down to I think like 82-84 yesterday. I think the main number she looks at though is the FEV 2 which was 69 last month and down to 60 yesterday. She was concerned about such a low drop in a matter of one month just b/c of a little cold.

To be pregnant, she wants my FEV 2 to be at LEAST 70, and higher if possible (75+), for an extended time period, like a year. With no exacerbations and no flip flopping, which is me. This is quite a daunting task b/c I average at least one IV course a year, and usually 2. During which I flucuate alot!

You know, some of you may think that sounds tough, but I am so thankful to have a tough doctor. I prefer overprotection than under.
 
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