Jody,
We are going through the same thing with Sawyer. His last clinic visit was in April and he has hardly gained any weight since then. I am chalking it up to it being summer and the fact that he is super active. Still in the back of my mind it is concerning. It has been a long time since Sawyer has not gained two pounds between visits. His next appt. is August 31st so we will see then if he has grown in height. I feel like he has but don't know for sure. Hopefully by then he will have put on more weight. I know how exhausting it can be. I feel worn out most of the time. I feel like I wake up in the morning thinking about what he is going to eat and how I can add more calories. Is Ben taking the oral GSH or just the inhaled? We started Sawyer on the oral too so hopefully that is going to make a difference in his weight gain. How many enzymes and what kind is Ben on? I do think that all of my children around this age thinned out some and weight gain slowed. Of course I didn't even think about it with them. Well I just wanted you to know you are not alone!! Talk to you soon!
Carrie
We are going through the same thing with Sawyer. His last clinic visit was in April and he has hardly gained any weight since then. I am chalking it up to it being summer and the fact that he is super active. Still in the back of my mind it is concerning. It has been a long time since Sawyer has not gained two pounds between visits. His next appt. is August 31st so we will see then if he has grown in height. I feel like he has but don't know for sure. Hopefully by then he will have put on more weight. I know how exhausting it can be. I feel worn out most of the time. I feel like I wake up in the morning thinking about what he is going to eat and how I can add more calories. Is Ben taking the oral GSH or just the inhaled? We started Sawyer on the oral too so hopefully that is going to make a difference in his weight gain. How many enzymes and what kind is Ben on? I do think that all of my children around this age thinned out some and weight gain slowed. Of course I didn't even think about it with them. Well I just wanted you to know you are not alone!! Talk to you soon!
Carrie