Trachea Malacia

[ashmomo]

My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful.

She is wheezy often and has a terrible cough for the most part of her life so far. Past couple nights coughing throughout the night <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has also been diagnosed w/ a significant asthma component to her CF.

She will be starting Singulair tomorrow when I can get it from the pharmacy...hoping it helps!

Thanks for any information or experiences!

 

[ashmomo]

My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful.

She is wheezy often and has a terrible cough for the most part of her life so far. Past couple nights coughing throughout the night <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has also been diagnosed w/ a significant asthma component to her CF.

She will be starting Singulair tomorrow when I can get it from the pharmacy...hoping it helps!

Thanks for any information or experiences!

 

[ashmomo]

My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful.

She is wheezy often and has a terrible cough for the most part of her life so far. Past couple nights coughing throughout the night <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has also been diagnosed w/ a significant asthma component to her CF.

She will be starting Singulair tomorrow when I can get it from the pharmacy...hoping it helps!

Thanks for any information or experiences!

 

[ashmomo]

My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful.

She is wheezy often and has a terrible cough for the most part of her life so far. Past couple nights coughing throughout the night <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has also been diagnosed w/ a significant asthma component to her CF.

She will be starting Singulair tomorrow when I can get it from the pharmacy...hoping it helps!

Thanks for any information or experiences!

 

[ashmomo]

My 11 month old just tested positive for trachea malacia. She had an airway flouroscopy on Tuesday. I am just wondering if anyone else on here has had any experience with this at all? Any information would be helpful.
<br />
<br />She is wheezy often and has a terrible cough for the most part of her life so far. Past couple nights coughing throughout the night <img src="i/expressions/face-icon-small-blush.gif" border="0">( She has also been diagnosed w/ a significant asthma component to her CF.
<br />
<br />She will be starting Singulair tomorrow when I can get it from the pharmacy...hoping it helps!
<br />
<br />Thanks for any information or experiences!

 

[bugsyroscoe]

Our almost 2 1/2 yr old had trachea malacia when she was younger (probably until 18-20months). Her CF doc never ordered official testing but whenever she would get the slightest bit congested, she would sound and rattly/wheezy in the throat/upper airway. Her lungs would be clear. She has already outgrown it so I hope that will be the case with your little one.

 

[bugsyroscoe]

Our almost 2 1/2 yr old had trachea malacia when she was younger (probably until 18-20months). Her CF doc never ordered official testing but whenever she would get the slightest bit congested, she would sound and rattly/wheezy in the throat/upper airway. Her lungs would be clear. She has already outgrown it so I hope that will be the case with your little one.

 

[bugsyroscoe]

Our almost 2 1/2 yr old had trachea malacia when she was younger (probably until 18-20months). Her CF doc never ordered official testing but whenever she would get the slightest bit congested, she would sound and rattly/wheezy in the throat/upper airway. Her lungs would be clear. She has already outgrown it so I hope that will be the case with your little one.

 

[bugsyroscoe]

Our almost 2 1/2 yr old had trachea malacia when she was younger (probably until 18-20months). Her CF doc never ordered official testing but whenever she would get the slightest bit congested, she would sound and rattly/wheezy in the throat/upper airway. Her lungs would be clear. She has already outgrown it so I hope that will be the case with your little one.

 

[bugsyroscoe]

Our almost 2 1/2 yr old had trachea malacia when she was younger (probably until 18-20months). Her CF doc never ordered official testing but whenever she would get the slightest bit congested, she would sound and rattly/wheezy in the throat/upper airway. Her lungs would be clear. She has already outgrown it so I hope that will be the case with your little one.

 

[amber682]

My dd was diagnosed with it at about 3 months through a bronch. It wasn't severe, and she has since outgrown it (she just turned 1). Our clinic had us, and another little boy who had it, use a PEP when doing nebs to try to open things up.

 

[amber682]

My dd was diagnosed with it at about 3 months through a bronch. It wasn't severe, and she has since outgrown it (she just turned 1). Our clinic had us, and another little boy who had it, use a PEP when doing nebs to try to open things up.

 

[amber682]

My dd was diagnosed with it at about 3 months through a bronch. It wasn't severe, and she has since outgrown it (she just turned 1). Our clinic had us, and another little boy who had it, use a PEP when doing nebs to try to open things up.

 

[amber682]

My dd was diagnosed with it at about 3 months through a bronch. It wasn't severe, and she has since outgrown it (she just turned 1). Our clinic had us, and another little boy who had it, use a PEP when doing nebs to try to open things up.

 

[amber682]

My dd was diagnosed with it at about 3 months through a bronch. It wasn't severe, and she has since outgrown it (she just turned 1). Our clinic had us, and another little boy who had it, use a PEP when doing nebs to try to open things up.

 

[HuntersmomTBM]

Yes I have heard of Tracheomalacia. My son, Hunter 13 has Tracheobronchomalacia with Innominate Artery Compression. We find that nebulizer treatments of Atrovent help alot. His pulmonary specialist recently changed his meds when he is sick to first Atrovent then follow with Xopenex. The Atrovent helps to open his lower airway and the Xopenex opens his upper airway. Hunter is waiting results of his 4th CF test.

 

[HuntersmomTBM]

Yes I have heard of Tracheomalacia. My son, Hunter 13 has Tracheobronchomalacia with Innominate Artery Compression. We find that nebulizer treatments of Atrovent help alot. His pulmonary specialist recently changed his meds when he is sick to first Atrovent then follow with Xopenex. The Atrovent helps to open his lower airway and the Xopenex opens his upper airway. Hunter is waiting results of his 4th CF test.

 

[muchlove]

I was just diagnosed last week through chest ct and am following up in a few weeks with a bronchial scope to determine severity. I am 19 so dont relate with childhood tracheal malacia and am pretty lost with how this is currently affecting my health status. So I dont have much advice but I relate!

 

[muchlove]

I was just diagnosed last week through chest ct and am following up in a few weeks with a bronchial scope to determine severity. I am 19 so dont relate with childhood tracheal malacia and am pretty lost with how this is currently affecting my health status. So I dont have much advice but I relate!

 

[HuntersmomTBM]

If a dr tells you you have Tracheomalacia you need to be sure to rule out Bronchomalacia. My son was originally clinically dx with Tracheomalacia. It wasn't until he was 10, after he continued to get very sick that they did a sedated rigid AND flexible bronchoscope. His dx changed to Tracheobronchomalacia with Innominate Artery Compression. (IAC is very rare condition that one of his heart artery compresses his trachea ) In order to rule out Tracheomalacia you must have a Sedated Flexible Bronchoscope. In order to rule out Bronchomalacia you must have a Sedate Rigid Bronchoscope. The scope down your nose or throat in the drs office is not enough. I was told, Albuterol and Xopenex although they are great for Asthma they can make malacia worse because they have muscle relaxers in them. We have found that Atrovent via nebulizer works wonders. Now the drs are suggesting a neb treatment of Atrovent followed by a neb treatment of Xopenex. Xopenex opens his upper airway while Atrovent opens the lower. Dr also suggest you rule out GERD/Reflux, Sleep Apnea, keep an eye out for Failure to Thrive.