Transplant/cepacia

[brad.johns]

I was wondering if there were transplant centers out there that are willing to do a transplant with someone who has cepacia? I have had it for 25 years. Doesn't really cause me a lot of trouble but I wanted to know if there are options for me when that time comes.

 

[cftransplant]

Duke was doing cepacia and I assume they still will look at cepacia's. Pit use to look at and take some cepacia's. Check both these centers.

CF 63 TX cepacia and 14 years out

 

[brad.johns]

Thank you. I will check both of these places out.

 

[JORDYSMOM]

I have a friend who just had a tx at Duke, and she had Cepacia.

Stacey