lungsformary
New member
Has anyone had to do tx fundraising? I'm about to get on the tx list and need some information. Thanks!
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Transplant Fundraising
- Thread starter lungsformary
- Start date
Have you by chance tried COTA-Children's Organ Transplant Assosiation? I believe their website is cota.org.
I may not be completely clear on how they work, but this is how I understand it:
They will give you ideas on how to raise money for transplant & if they set up an account for you, then any donations would be tax deductable donations. Then they disburse money to you at your request for hotel rooms, medications, rent if you had to get an apt in the city where you were transplanted at, groceries, basically anything related to having to get a transplant. They charge nothing for this service the last I knew.
If you just go set up an account at the bank, the donations would not be tax deductable unless you had set up a non profit type orgainization w/ the IRS (from what I understand).
COTA does children's with the exception of any aged CF transplant patient.
I have not actually used COTA, but plan to when it's time for me to start fundraising.
Has anyone on this board used COTA, and if so, did you feel that it was a favorable experience?
I may not be completely clear on how they work, but this is how I understand it:
They will give you ideas on how to raise money for transplant & if they set up an account for you, then any donations would be tax deductable donations. Then they disburse money to you at your request for hotel rooms, medications, rent if you had to get an apt in the city where you were transplanted at, groceries, basically anything related to having to get a transplant. They charge nothing for this service the last I knew.
If you just go set up an account at the bank, the donations would not be tax deductable unless you had set up a non profit type orgainization w/ the IRS (from what I understand).
COTA does children's with the exception of any aged CF transplant patient.
I have not actually used COTA, but plan to when it's time for me to start fundraising.
Has anyone on this board used COTA, and if so, did you feel that it was a favorable experience?
I'm not new to the board because I've been posting anonymously for a long time. I figured it was high time I got an identity here...
Anyways...I knew someone who used COTA to raise money for her double lung tx and I helped in the fundraising for just a few weeks. The impression I got from her family and friends who were on her COTA team was that they have something similar to a schedule of events you can plan along the way. COTA manages the whole account themselves, and donations can be made to COTA under the person's name to be into their account. The people I worked with seemed very happy with the way COTA dealt with them.
That's all I got.
-Steve
19 w/cf away at college
Anyways...I knew someone who used COTA to raise money for her double lung tx and I helped in the fundraising for just a few weeks. The impression I got from her family and friends who were on her COTA team was that they have something similar to a schedule of events you can plan along the way. COTA manages the whole account themselves, and donations can be made to COTA under the person's name to be into their account. The people I worked with seemed very happy with the way COTA dealt with them.
That's all I got.
-Steve
19 w/cf away at college
TCNJcystic
New member
That was me who posted before...whoops.
I've only been dealing with COTA officially for a few days, and I'm quite impressed. They got everything set up as soon as I faxed some forms. Considering they do all that (provide a front end for credit card contributions, tax-deductible donations) without even touching your fundraising--they operate on the skimmed interest your funds return, not a "we keep 5% off every dollar" thing--I'd highly recommend them. But then, take that with a pound of salt until you try yourself. <img src="i/expressions/face-icon-small-smile.gif" border="0">
tytyty i came across this post a few months ago, but was not serious about fund raising for a transplant, now i am borderline on needing to get on list ( about 35% pft after tune-up)
Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">
tytyty i came across this post a few months ago, but was not serious about fund raising for a transplant, now i am borderline on needing to get on list ( about 35% pft after tune-up)
Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">
tytyty i came across this post a few months ago, but was not serious about fund raising for a transplant, now i am borderline on needing to get on list ( about 35% pft after tune-up)
<br />Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Thanks again for this information, this really is a strong tight nit community here to help each other <img src="i/expressions/face-icon-small-smile.gif" border="0">