OK, My son and I have been referred from our CF specialist to a transplant specialist and they are recommeding a transplant for his lungs. I have so many questions that they answered but I am having trouble believing them. Meanwhile my 15 year old son does not want a transplant because he believes that his life will end in a few years anyway if he has the transplant or the chances of his dying goes up with the procedure. We are both scared. I am trying so hard to look for answers for him and focus on what is right in front of me. Here are my questions and I am going to post this in the transplant forum as well. 1) Is it possible to get another transplant after the first one? I thought that this could only happen once and after these lungs are out grown or worn out or whatever, you were done. I am being told that it is possible to have more than one. 2) Is there a way to get accurate data on success rate for juvenile transplants and not have all the older people in the data? 3) Cleveland Clinc vs. Texas Childrens (in Houston) for a second opinion, which one is better do you think? and 4) If there is anyone out there who has had this experience (ie someone who has had a lung transplant as a teenager), would you be willing to talk to my son about this experience and let him learn more and get his questions answered? I thank all of you for your prayers and support. This site has had some good people on it who have helped when we have had problems before.
Transplant questions and teenagers
- Thread starter jimiv
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