transplant questions

[beautifulsoul]

All transplant centers will tell you it's not a good idea. Some might say absolutely not and it could also Depend on the doctor and their experiences with patients. It's Mainly not a good idea because you're risking infection even if you are heathly. Your immune system will be weaker than an average adult making the risk higher and more easily prone to infection.

It's still a personal decision. I'm nearing 5 years post transplant. I got two tattoos in 2009 and I'm still healthy & doing well. I know a few others who have also gotten tattoos and piercings after transplant. Again, your life, your decisions.

 

[beautifulsoul]

All transplant centers will tell you it's not a good idea. Some might say absolutely not and it could also Depend on the doctor and their experiences with patients. It's Mainly not a good idea because you're risking infection even if you are heathly. Your immune system will be weaker than an average adult making the risk higher and more easily prone to infection.

It's still a personal decision. I'm nearing 5 years post transplant. I got two tattoos in 2009 and I'm still healthy & doing well. I know a few others who have also gotten tattoos and piercings after transplant. Again, your life, your decisions.

 

[EducationSpecialist]

A nice way to manage and monitor your lung function once you leave the hospital is with a home or personal spirometer like Spiro PD. This is a small light weight device that allows you to monitor your lung function anytime and anywhere. It has an intuitive color touchscreen and is super easy to use and understand. The information you get from Spiro PD can be uploaded to the computer with a USB and emailed directly to your doctor. Personal spirometers can alert you of a declining lung function before you even feel symptoms and shows how you are responding to your new treatment. For more information you can visit<a href="http://www.spiropd.com/">http://www.spiropd.com</a>.

 

[EducationSpecialist]

A nice way to manage and monitor your lung function once you leave the hospital is with a home or personal spirometer like Spiro PD. This is a small light weight device that allows you to monitor your lung function anytime and anywhere. It has an intuitive color touchscreen and is super easy to use and understand. The information you get from Spiro PD can be uploaded to the computer with a USB and emailed directly to your doctor. Personal spirometers can alert you of a declining lung function before you even feel symptoms and shows how you are responding to your new treatment. For more information you can visit<a href="http://www.spiropd.com/">http://www.spiropd.com</a>.

 

[EducationSpecialist]

Wow! That's awesome Angel 2393! Thanks for sharing!

 

[EducationSpecialist]

Wow! That's awesome Angel 2393! Thanks for sharing!

 

[jamiebug]

My transplant evaluation was done at a hospital 2000 miles from where I lived. I was from Idaho and evaluated and transplanted in Pittsburgh, PA. No other hospital wanted to transplant me cuz I cultured Cepacia. . .So my evaluation process took about 5 days of appointments and testing. It wasn't too bad and I was even VERY, VERY sick (11% FEV1)
After the surgery can vary A LOT! I know some people who are out of the hospital a week-10 days later. . .that's a pretty optimistic recovery time. You can also have unforseen complications, that's a reality as well. I was hospitalized for a total of 58 days or something. Once I was released to go home however, I have had few complications. So it's hard to say, I think it's smart to plan for the worst and hope for the better <img src="i/expressions/face-icon-small-smile.gif" border="0">
The transplant evaluation wasn't the tough part. It comes with a level of stress and it takes patience but you'll be surprised at how routine most of it is. Recovery can be difficult but I promise you it's worth it!!
Best Wishes~

 

[jamiebug]

My transplant evaluation was done at a hospital 2000 miles from where I lived. I was from Idaho and evaluated and transplanted in Pittsburgh, PA. No other hospital wanted to transplant me cuz I cultured Cepacia. . .So my evaluation process took about 5 days of appointments and testing. It wasn't too bad and I was even VERY, VERY sick (11% FEV1)
After the surgery can vary A LOT! I know some people who are out of the hospital a week-10 days later. . .that's a pretty optimistic recovery time. You can also have unforseen complications, that's a reality as well. I was hospitalized for a total of 58 days or something. Once I was released to go home however, I have had few complications. So it's hard to say, I think it's smart to plan for the worst and hope for the better <img src="i/expressions/face-icon-small-smile.gif" border="0">
The transplant evaluation wasn't the tough part. It comes with a level of stress and it takes patience but you'll be surprised at how routine most of it is. Recovery can be difficult but I promise you it's worth it!!
Best Wishes~

 

[midnightblack1180]

is a Double Lung Transplant life threatening? i looked up some info and it says they usually won't do it for anyone under 18, however my friend is 15 and both of her lungs are quickly failing. she needs a double lung transplant and i am very scared for her so i needed to ask this question. any info at all would be very helpful. thank you

 

[midnightblack1180]

is a Double Lung Transplant life threatening? i looked up some info and it says they usually won't do it for anyone under 18, however my friend is 15 and both of her lungs are quickly failing. she needs a double lung transplant and i am very scared for her so i needed to ask this question. any info at all would be very helpful. thank you

 

[beautifulsoul]

A double lung transplant has risks. It's basically the last option/choice when all other treatments are no longer working. I don't know where you read the information about being at least 18 but that's not true from what I know. I received a double lung transplant when I was 15. Some transplant centers may have different regulations. As of now, most centers are the same with the evaluation process/listing. Some centers might handle things differently if problems occur.

 

[beautifulsoul]

A double lung transplant has risks. It's basically the last option/choice when all other treatments are no longer working. I don't know where you read the information about being at least 18 but that's not true from what I know. I received a double lung transplant when I was 15. Some transplant centers may have different regulations. As of now, most centers are the same with the evaluation process/listing. Some centers might handle things differently if problems occur.

 

[PinkPigg]

Hey Midnight. The procedure is somewhat risky but when the lungs are failing it is usually the only option left except for passing on. Most people make it through the surgery and the recovery. There is risk for acute and/or chronic rejection of the lungs as the years pass. But there are many people that get many many years of wonderful life with the new lungs and can finally enjoy breathing.

Jamie http://www.jamiebug.blogspot.com has a great blog that talks about her experience with transplant. She's also very cool and I'm sure would be happy to answer your questions. I'm still pre-transplant but will be excited for the chance to have one when my time comes.

Peace,
Steph

 

[PinkPigg]

Hey Midnight. The procedure is somewhat risky but when the lungs are failing it is usually the only option left except for passing on. Most people make it through the surgery and the recovery. There is risk for acute and/or chronic rejection of the lungs as the years pass. But there are many people that get many many years of wonderful life with the new lungs and can finally enjoy breathing.

Jamie http://www.jamiebug.blogspot.com has a great blog that talks about her experience with transplant. She's also very cool and I'm sure would be happy to answer your questions. I'm still pre-transplant but will be excited for the chance to have one when my time comes.

Peace,
Steph

 

[Anomie]

I think they will as long as the benefit out weighs the risks. I know for a fact that the University of Washington children's hospital here in Seattle does specialize in pediatric transplants on kids even younger than your friend. However I'm not sure if all centers perform them so she may have to travel some.

 

[Anomie]

I think they will as long as the benefit out weighs the risks. I know for a fact that the University of Washington children's hospital here in Seattle does specialize in pediatric transplants on kids even younger than your friend. However I'm not sure if all centers perform them so she may have to travel some.