Liza,
We scheduled our trip to disney so that neb and Vest sessions would be done at the hotel. We went from about 9am to 1pm or if we did the trip in the afternoon we went from 2p-6p. Even if my daughter did not have CF I don't think we could spend the whole day at disney, the kids get tired, overstimulated, and plain cranky. For meds all I needed to bring was my daughter's enzymes and one dose of antibiotic. I also packed a backpack when we wouild go into disney of bottled water, juice boxes, snacks(salty ones), sandwiches(in an insulated lunchbox with a icepack) sunscreen. They inspect your backpack when entering disney and saw all we brought and didn't say a word. We also brought my daughter's own umbrella stroller(didn't want to use a rental stroller for the germ factor). We scheduled our vacation when it was disney"slow" season so there would not be long lines and lots of waiting for rides.
For the poster who was concerned about the airplanes and air quality, I had asked my daughter's Cf doc if it would be ok for her to fly and he said she should be fine. Anytime you are on an enclosed space full of strange people, I would imagine there is a chance you could catch something. I brought my Purell on the plane, made sure my daughter drank lots of fluids. I even brought masks, if Someone was coughing, but we did not use them. There was an older lady on the plane with oxygen but we weren't seated near them. I guess i try to protect my daughter from germs the best I can while also having a fun and close to normal childhood as possible. Our CF doc says specifically do not put your child in a bubble and just live your life.
HTH
We scheduled our trip to disney so that neb and Vest sessions would be done at the hotel. We went from about 9am to 1pm or if we did the trip in the afternoon we went from 2p-6p. Even if my daughter did not have CF I don't think we could spend the whole day at disney, the kids get tired, overstimulated, and plain cranky. For meds all I needed to bring was my daughter's enzymes and one dose of antibiotic. I also packed a backpack when we wouild go into disney of bottled water, juice boxes, snacks(salty ones), sandwiches(in an insulated lunchbox with a icepack) sunscreen. They inspect your backpack when entering disney and saw all we brought and didn't say a word. We also brought my daughter's own umbrella stroller(didn't want to use a rental stroller for the germ factor). We scheduled our vacation when it was disney"slow" season so there would not be long lines and lots of waiting for rides.
For the poster who was concerned about the airplanes and air quality, I had asked my daughter's Cf doc if it would be ok for her to fly and he said she should be fine. Anytime you are on an enclosed space full of strange people, I would imagine there is a chance you could catch something. I brought my Purell on the plane, made sure my daughter drank lots of fluids. I even brought masks, if Someone was coughing, but we did not use them. There was an older lady on the plane with oxygen but we weren't seated near them. I guess i try to protect my daughter from germs the best I can while also having a fun and close to normal childhood as possible. Our CF doc says specifically do not put your child in a bubble and just live your life.
HTH