Traveling & Getting on with life

mrwood

New member
Hello everyone, my name is Matt and I'm from Australia. I'm new to this forum but not to CF, I've been dealing with having CF all my life (I'm 21, turing 22 in December) and so has my twin brother; we were diagnosed when we were infants.

Anyway my parents always kept on top of it when I was growing up and now I try my best sometimes too. I'm not majorly sick and for a while I use to be really healthy. I live near the beach so the salt in the air helps and I love going for long walks and bike rides. But I never thought of CF as a hurdle or anything, never really thought that much of it I was just use to it and accustom to having it and it never really got in the way of anything, except school some times but school was boring so I didn't care <img src="i/expressions/face-icon-small-tongue.gif" border="0"> - until now. I finished high-school about 4 years ago and since then been studying Visual Arts and just finished my Illustration course last year.

But this year I haven't done much with my self and my life, it's hard to get a job in this economy, with CF and with an Illustration Diploma. I've been thinking about having the next year off again and traveling. I want to go and volunteer teaching in Romania first, and was really keen on the idea until recently when I got really sick for the first time in a long long time. I'm getting better now it was just a bad cold which has now left a chest infection and the sudden change in weather is setting off my hay-fever and asthma pretty badly.

My twin brother goes back and forth to indonesia and he seems to cope (he's in worse condition than me after an accident he had there now he is a rake, they don't eat much over there) but I'm getting a bit scared about going to Romania with all my meds and worried if I get really sick over there and scared of being a long way from home but I don't want to miss out, I really want to see the world. Or worried if Projects Abroad knock back my application cause I have CF.

There is also a Ranch in Wyoming that take international volunteers and that looked like fun to do as well. Might do that when I got back from Romania - I also feel like doing this too so I can gain more confidence and find myself.

Before I go I'm gonna have to have a "treatment" some of you say - I've called them a tune up. Go into hospital for 10 days with a drip, haven't had one of those for the past 5 years, last one I had was in january 2006 just before my final year of high-school. It's been a while and I've done so well without one, but I feel like I should have one before i go so I can be my best over there and don't get sick.

After that I was looking at going back to school and studying Graphic Design, which has much better employment than illustration, but also a very demanding fast industry which isn't too welcoming of sick days it seems.

So how do others or have others copped with traveling for a long period of time and coping with CF and they're careers?

Sorry for the long post by the way. Look forward to hearing what others say <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mrwood

New member
Hello everyone, my name is Matt and I'm from Australia. I'm new to this forum but not to CF, I've been dealing with having CF all my life (I'm 21, turing 22 in December) and so has my twin brother; we were diagnosed when we were infants.

Anyway my parents always kept on top of it when I was growing up and now I try my best sometimes too. I'm not majorly sick and for a while I use to be really healthy. I live near the beach so the salt in the air helps and I love going for long walks and bike rides. But I never thought of CF as a hurdle or anything, never really thought that much of it I was just use to it and accustom to having it and it never really got in the way of anything, except school some times but school was boring so I didn't care <img src="i/expressions/face-icon-small-tongue.gif" border="0"> - until now. I finished high-school about 4 years ago and since then been studying Visual Arts and just finished my Illustration course last year.

But this year I haven't done much with my self and my life, it's hard to get a job in this economy, with CF and with an Illustration Diploma. I've been thinking about having the next year off again and traveling. I want to go and volunteer teaching in Romania first, and was really keen on the idea until recently when I got really sick for the first time in a long long time. I'm getting better now it was just a bad cold which has now left a chest infection and the sudden change in weather is setting off my hay-fever and asthma pretty badly.

My twin brother goes back and forth to indonesia and he seems to cope (he's in worse condition than me after an accident he had there now he is a rake, they don't eat much over there) but I'm getting a bit scared about going to Romania with all my meds and worried if I get really sick over there and scared of being a long way from home but I don't want to miss out, I really want to see the world. Or worried if Projects Abroad knock back my application cause I have CF.

There is also a Ranch in Wyoming that take international volunteers and that looked like fun to do as well. Might do that when I got back from Romania - I also feel like doing this too so I can gain more confidence and find myself.

Before I go I'm gonna have to have a "treatment" some of you say - I've called them a tune up. Go into hospital for 10 days with a drip, haven't had one of those for the past 5 years, last one I had was in january 2006 just before my final year of high-school. It's been a while and I've done so well without one, but I feel like I should have one before i go so I can be my best over there and don't get sick.

After that I was looking at going back to school and studying Graphic Design, which has much better employment than illustration, but also a very demanding fast industry which isn't too welcoming of sick days it seems.

So how do others or have others copped with traveling for a long period of time and coping with CF and they're careers?

Sorry for the long post by the way. Look forward to hearing what others say <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mrwood

New member
Hello everyone, my name is Matt and I'm from Australia. I'm new to this forum but not to CF, I've been dealing with having CF all my life (I'm 21, turing 22 in December) and so has my twin brother; we were diagnosed when we were infants.
<br />
<br />Anyway my parents always kept on top of it when I was growing up and now I try my best sometimes too. I'm not majorly sick and for a while I use to be really healthy. I live near the beach so the salt in the air helps and I love going for long walks and bike rides. But I never thought of CF as a hurdle or anything, never really thought that much of it I was just use to it and accustom to having it and it never really got in the way of anything, except school some times but school was boring so I didn't care <img src="i/expressions/face-icon-small-tongue.gif" border="0"> - until now. I finished high-school about 4 years ago and since then been studying Visual Arts and just finished my Illustration course last year.
<br />
<br />But this year I haven't done much with my self and my life, it's hard to get a job in this economy, with CF and with an Illustration Diploma. I've been thinking about having the next year off again and traveling. I want to go and volunteer teaching in Romania first, and was really keen on the idea until recently when I got really sick for the first time in a long long time. I'm getting better now it was just a bad cold which has now left a chest infection and the sudden change in weather is setting off my hay-fever and asthma pretty badly.
<br />
<br />My twin brother goes back and forth to indonesia and he seems to cope (he's in worse condition than me after an accident he had there now he is a rake, they don't eat much over there) but I'm getting a bit scared about going to Romania with all my meds and worried if I get really sick over there and scared of being a long way from home but I don't want to miss out, I really want to see the world. Or worried if Projects Abroad knock back my application cause I have CF.
<br />
<br />There is also a Ranch in Wyoming that take international volunteers and that looked like fun to do as well. Might do that when I got back from Romania - I also feel like doing this too so I can gain more confidence and find myself.
<br />
<br />Before I go I'm gonna have to have a "treatment" some of you say - I've called them a tune up. Go into hospital for 10 days with a drip, haven't had one of those for the past 5 years, last one I had was in january 2006 just before my final year of high-school. It's been a while and I've done so well without one, but I feel like I should have one before i go so I can be my best over there and don't get sick.
<br />
<br />After that I was looking at going back to school and studying Graphic Design, which has much better employment than illustration, but also a very demanding fast industry which isn't too welcoming of sick days it seems.
<br />
<br />So how do others or have others copped with traveling for a long period of time and coping with CF and they're careers?
<br />
<br />Sorry for the long post by the way. Look forward to hearing what others say <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
I know there are several people here who've travelled extensively. You could check out Amy's blog -- <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/
">http://noexcusesnoexcuses.blogspot.com/
</a>
There's fred from the states who lives in Japan. I believe there was another individual from the states who was a nanny in Italy for a year or so. Hopefully you'll get some responses.

Welcome!
 

Ratatosk

Administrator
Staff member
I know there are several people here who've travelled extensively. You could check out Amy's blog -- <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/
">http://noexcusesnoexcuses.blogspot.com/
</a>
There's fred from the states who lives in Japan. I believe there was another individual from the states who was a nanny in Italy for a year or so. Hopefully you'll get some responses.

Welcome!
 

Ratatosk

Administrator
Staff member
I know there are several people here who've travelled extensively. You could check out Amy's blog -- <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/
">http://noexcusesnoexcuses.blogspot.com/
</a><br />
<br />There's fred from the states who lives in Japan. I believe there was another individual from the states who was a nanny in Italy for a year or so. Hopefully you'll get some responses.
<br />
<br />Welcome!
 

colinmaydahl

New member
I have never been able to get away for much more than a month, but I have had to be on IV's 3-7 times a year for the past 8 years. If You can find somewhere at the beach so it will be easy to stay active and will have clean air. Find out what meds You must have and what You can do with out. I have been to South Africa, Australia, Thailand, Canada, Mexico, England, Germany, Prague, South Korea, and I wound up getting sick in most of those places, mostly from partying 2 much. Being able to eat enough was always a hard thing for me to do wile traveling. Just find Your groove, if You make it to Romania do everything to keep Your health up, and if You need to fly home, or find a connection at a CF clinic in Europe, I don't think they will turn You away if You are sick.

School has always been hard for me, not the work part but the not getting sick and being able to stay in classes part. We CFers cant always take the normal route of school/work.
Take care of Your self, but live a full life. Don't hide from adventure.

Colin 28w/CF and in the lock up
 

colinmaydahl

New member
I have never been able to get away for much more than a month, but I have had to be on IV's 3-7 times a year for the past 8 years. If You can find somewhere at the beach so it will be easy to stay active and will have clean air. Find out what meds You must have and what You can do with out. I have been to South Africa, Australia, Thailand, Canada, Mexico, England, Germany, Prague, South Korea, and I wound up getting sick in most of those places, mostly from partying 2 much. Being able to eat enough was always a hard thing for me to do wile traveling. Just find Your groove, if You make it to Romania do everything to keep Your health up, and if You need to fly home, or find a connection at a CF clinic in Europe, I don't think they will turn You away if You are sick.

School has always been hard for me, not the work part but the not getting sick and being able to stay in classes part. We CFers cant always take the normal route of school/work.
Take care of Your self, but live a full life. Don't hide from adventure.

Colin 28w/CF and in the lock up
 

colinmaydahl

New member
I have never been able to get away for much more than a month, but I have had to be on IV's 3-7 times a year for the past 8 years. If You can find somewhere at the beach so it will be easy to stay active and will have clean air. Find out what meds You must have and what You can do with out. I have been to South Africa, Australia, Thailand, Canada, Mexico, England, Germany, Prague, South Korea, and I wound up getting sick in most of those places, mostly from partying 2 much. Being able to eat enough was always a hard thing for me to do wile traveling. Just find Your groove, if You make it to Romania do everything to keep Your health up, and if You need to fly home, or find a connection at a CF clinic in Europe, I don't think they will turn You away if You are sick.
<br />
<br />School has always been hard for me, not the work part but the not getting sick and being able to stay in classes part. We CFers cant always take the normal route of school/work.
<br />Take care of Your self, but live a full life. Don't hide from adventure.
<br />
<br />Colin 28w/CF and in the lock up
 

b12bc

New member
I have done quite a bit of traveling, mostly within North America and western Europe, but then again I was also pretty darn healthy up until about the past year. I am actually half romanian and I have a lot of family there. I spent 5 months there in two trips in 2002. My family is from a very well developed region near the capital, so I did have access to health care should I have needed it (thankfully I didn't). Now, I'm not so sure if I'd be up for that since I have been on IVs for most of the past 6 months. It is definitely possible to travel though if you're in good health and you take the right precautions and preparations. My recommendation is to do it now while you can.
 

b12bc

New member
I have done quite a bit of traveling, mostly within North America and western Europe, but then again I was also pretty darn healthy up until about the past year. I am actually half romanian and I have a lot of family there. I spent 5 months there in two trips in 2002. My family is from a very well developed region near the capital, so I did have access to health care should I have needed it (thankfully I didn't). Now, I'm not so sure if I'd be up for that since I have been on IVs for most of the past 6 months. It is definitely possible to travel though if you're in good health and you take the right precautions and preparations. My recommendation is to do it now while you can.
 

b12bc

New member
I have done quite a bit of traveling, mostly within North America and western Europe, but then again I was also pretty darn healthy up until about the past year. I am actually half romanian and I have a lot of family there. I spent 5 months there in two trips in 2002. My family is from a very well developed region near the capital, so I did have access to health care should I have needed it (thankfully I didn't). Now, I'm not so sure if I'd be up for that since I have been on IVs for most of the past 6 months. It is definitely possible to travel though if you're in good health and you take the right precautions and preparations. My recommendation is to do it now while you can.
 

JenWren

New member
My friends don't forget to wear masks if you can when your sick, and wash, we CFers have to have each othesr's back for cross infections sake.

that itselt is something worth talking about.just a note.


Respectively,
JenWren cf diabetes.
 

JenWren

New member
My friends don't forget to wear masks if you can when your sick, and wash, we CFers have to have each othesr's back for cross infections sake.

that itselt is something worth talking about.just a note.


Respectively,
JenWren cf diabetes.
 

JenWren

New member
My friends don't forget to wear masks if you can when your sick, and wash, we CFers have to have each othesr's back for cross infections sake.
<br />
<br />that itselt is something worth talking about.just a note.
<br />
<br />
<br />Respectively,
<br />JenWren cf diabetes.
 

jaimers

Super Moderator
I was the nanny in italy that liza mentioned....I was in Milan living with an American family. it was amazing! in terms of health care i took everything with me. I came home for christmas and brought more back with me (mostly just the tobi that i do every other month and my pulmozyme) and then some people came in february and they brought me enough of those meds i mentioned before to last me until may when i came back to the states.
By a stroke of luck my docs knew an italian cf doctor that was located a couple of hours from me and got me in touch with him via email and he was willing to see me and do a few basic things such as PFTs and prescribing meds if needed. I didn't technically have legal status to be there as long as I was and so i wasn't eligible for any type of doctors visits or anything (well i could have been seen but i would have to pay for everything out of pocket) and the CF meds that we use (enzymes, pulmozyme, tobi etc) are all issued by the government there (govt' health care) and so i didn't have access to those which is why i brought all of my own.
If you are going more legally that i did <img src="i/expressions/face-icon-small-wink.gif" border="0"> then you might have access to meds provided under a government system. That would definitely be something to look into. I would hate for you to get there and not have any way to get the medicine you need....

I would hesitate going without having some type of contact for a doctor or cf center or pulmonologist that is familiar with cf.....

let me know if you have more questions or if any of that was unclear
 

jaimers

Super Moderator
I was the nanny in italy that liza mentioned....I was in Milan living with an American family. it was amazing! in terms of health care i took everything with me. I came home for christmas and brought more back with me (mostly just the tobi that i do every other month and my pulmozyme) and then some people came in february and they brought me enough of those meds i mentioned before to last me until may when i came back to the states.
By a stroke of luck my docs knew an italian cf doctor that was located a couple of hours from me and got me in touch with him via email and he was willing to see me and do a few basic things such as PFTs and prescribing meds if needed. I didn't technically have legal status to be there as long as I was and so i wasn't eligible for any type of doctors visits or anything (well i could have been seen but i would have to pay for everything out of pocket) and the CF meds that we use (enzymes, pulmozyme, tobi etc) are all issued by the government there (govt' health care) and so i didn't have access to those which is why i brought all of my own.
If you are going more legally that i did <img src="i/expressions/face-icon-small-wink.gif" border="0"> then you might have access to meds provided under a government system. That would definitely be something to look into. I would hate for you to get there and not have any way to get the medicine you need....

I would hesitate going without having some type of contact for a doctor or cf center or pulmonologist that is familiar with cf.....

let me know if you have more questions or if any of that was unclear
 

jaimers

Super Moderator
I was the nanny in italy that liza mentioned....I was in Milan living with an American family. it was amazing! in terms of health care i took everything with me. I came home for christmas and brought more back with me (mostly just the tobi that i do every other month and my pulmozyme) and then some people came in february and they brought me enough of those meds i mentioned before to last me until may when i came back to the states.
<br />By a stroke of luck my docs knew an italian cf doctor that was located a couple of hours from me and got me in touch with him via email and he was willing to see me and do a few basic things such as PFTs and prescribing meds if needed. I didn't technically have legal status to be there as long as I was and so i wasn't eligible for any type of doctors visits or anything (well i could have been seen but i would have to pay for everything out of pocket) and the CF meds that we use (enzymes, pulmozyme, tobi etc) are all issued by the government there (govt' health care) and so i didn't have access to those which is why i brought all of my own.
<br />If you are going more legally that i did <img src="i/expressions/face-icon-small-wink.gif" border="0"> then you might have access to meds provided under a government system. That would definitely be something to look into. I would hate for you to get there and not have any way to get the medicine you need....
<br />
<br />I would hesitate going without having some type of contact for a doctor or cf center or pulmonologist that is familiar with cf.....
<br />
<br />let me know if you have more questions or if any of that was unclear
 
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