Treatments

lightNlife

New member
Glad you seem to have hit on something that works. Two comments:

1. The way you're doing it will work

2. The way you're doing it won't work

Before you get too confused, remember that CF is tricky that way. As my disease progression has changed over the years, I've constantly had to revamp my techniques. I've added new treatments, forgone others, and learned how to manage it as best I can and still have good quality of life.

Sometimes it's not the combination of meds, or the amount of CPT or even the level of compliance that determines how well you'll do. Keep listening to your body, and keep working on finding the best way to breathe deeply and get the mucus out.

Also, don't discount the vest completely. It's one of those things that may or may not have immediate effects. Depending on the time of day, your overall health, heck, even the relative humidity of your city that day, you're going to experience different levels of productivity with the cough. I hear where you're coming from though, in feeling like it's a waste of time. I experienced the same feelings until I got a Vest that actually fits properly and percusses at the right rate.

Keep up the good work, especially on the days you don't want to.

-Lauren
 

lightNlife

New member
Glad you seem to have hit on something that works. Two comments:

1. The way you're doing it will work

2. The way you're doing it won't work

Before you get too confused, remember that CF is tricky that way. As my disease progression has changed over the years, I've constantly had to revamp my techniques. I've added new treatments, forgone others, and learned how to manage it as best I can and still have good quality of life.

Sometimes it's not the combination of meds, or the amount of CPT or even the level of compliance that determines how well you'll do. Keep listening to your body, and keep working on finding the best way to breathe deeply and get the mucus out.

Also, don't discount the vest completely. It's one of those things that may or may not have immediate effects. Depending on the time of day, your overall health, heck, even the relative humidity of your city that day, you're going to experience different levels of productivity with the cough. I hear where you're coming from though, in feeling like it's a waste of time. I experienced the same feelings until I got a Vest that actually fits properly and percusses at the right rate.

Keep up the good work, especially on the days you don't want to.

-Lauren
 

lightNlife

New member
Glad you seem to have hit on something that works. Two comments:

1. The way you're doing it will work

2. The way you're doing it won't work

Before you get too confused, remember that CF is tricky that way. As my disease progression has changed over the years, I've constantly had to revamp my techniques. I've added new treatments, forgone others, and learned how to manage it as best I can and still have good quality of life.

Sometimes it's not the combination of meds, or the amount of CPT or even the level of compliance that determines how well you'll do. Keep listening to your body, and keep working on finding the best way to breathe deeply and get the mucus out.

Also, don't discount the vest completely. It's one of those things that may or may not have immediate effects. Depending on the time of day, your overall health, heck, even the relative humidity of your city that day, you're going to experience different levels of productivity with the cough. I hear where you're coming from though, in feeling like it's a waste of time. I experienced the same feelings until I got a Vest that actually fits properly and percusses at the right rate.

Keep up the good work, especially on the days you don't want to.

-Lauren
 

lightNlife

New member
Glad you seem to have hit on something that works. Two comments:

1. The way you're doing it will work

2. The way you're doing it won't work

Before you get too confused, remember that CF is tricky that way. As my disease progression has changed over the years, I've constantly had to revamp my techniques. I've added new treatments, forgone others, and learned how to manage it as best I can and still have good quality of life.

Sometimes it's not the combination of meds, or the amount of CPT or even the level of compliance that determines how well you'll do. Keep listening to your body, and keep working on finding the best way to breathe deeply and get the mucus out.

Also, don't discount the vest completely. It's one of those things that may or may not have immediate effects. Depending on the time of day, your overall health, heck, even the relative humidity of your city that day, you're going to experience different levels of productivity with the cough. I hear where you're coming from though, in feeling like it's a waste of time. I experienced the same feelings until I got a Vest that actually fits properly and percusses at the right rate.

Keep up the good work, especially on the days you don't want to.

-Lauren
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 

Jennifer1981

New member
Like I said, I never missed the Vest to really know or "feel a difference". But I wonder... Don't worry. I'm not saying I will on purpose.

I have missed doses once and awhile with the HS and Pulmozyme, thanks to insurance companies making me wait until the last minute to get them filled. Had nothing to do with me. And yes, I noticed a difference immediately. I was miserable. The one time I missed the Pulmozyme for 3 days and ended up on Cipro a week later for 2 weeks. My lungs got so nasty so quickly it was unbelievable!

My only breathing meds are the Albuterol, HS, and Pulmozyme. I don't use any antibiotics unless I have an infection.
 
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