Hey you beautiful people!!!My name is Jessica. I am new to this site. But I have been reading a little of what you guys have been discussing. And it has been truly inspiring for me. Thank you!I am 27 yrs old, I have a husband Ed 29 yrs old, and a son Nathan who is 7yrs old.I was diagnosed at age 2. And now just found out I am getting CF related Diabetes. I knew that was soon going to happen. And my FV1 is 40% at well stage. Oh and of course have the arthritis thingy going on too.I have a mind like all of you wanting to go go go. When I feel good. But then the body can not keep up. And then when the body cannot keep up the mind goes down with it.Then it goes and goes like a roller coaster.Then I get myself in tough situations. I start something and can't finish it well.What I mean is... being a role model for Nathan, raising him, being a wife, keeping the house kept up and clean, manging the money and bills, cooking, planning, doing my own buisness ( I am a direct sales consultant with Party Lite. I do home shows and then train other consultants that I sponsor and make teams. Then I make commissions. This is my toughest reponsiblility, not that it is hard, I just have high expectations of myself) , then of course manage my health (excersising, eating properly, therapies, etc) and last but not least keeping with family and friends.Unfortunately I can not cut any of the wonderful reponsibilities out because they are all priorities.So my question is HOW DO WE DO IT ALL. At the same time trying to stay healthy and positive.I have gone into too many slumps and all it does is put me far behind. Physically and mentally.Is there anyone out there kind of in my shoes?Someone with multiple roles? Having children, career, significant other, and etc?Is this all possible to acheive with CF? Please feel free to ask me anything or advise me.Have a wonderful day everyone. You all make me proud to have CF!!!Jessica Durhamspiritwithin01@msn.com
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trying to do it all
- Thread starter anonymous
- Start date
Hello jessica, My name is jessica to but i go by jess i'm 24 w/cf lung fuction is currently at 42% so i know wat your going through. It is tough and i beat myself up when i cant do the things i used to do...it is a difficult and hard situation to deal with especially if your a head strong person like me. I've have just learned to accept the thing that i can not change and do the best that i can with wat i have....I also had to learn and am still working that i cant run or control everything that sometimes u have to let go and let people do for themselves....i think because we have cf and were told most of our lives u cant do this and that ....that we developed a compelex of well we're gonna show u ....and then we end up putting to much pressure on ourselves. well i'm running short on time but if u want to talk email me at jmazz8098@yahoo.com or AOL IM CrazyCrow2000 Hope to hear from u soon
Hello,I am Julie, i am 19 with CF and have a 3 year old son. He is not mine biologically, but his mother chose not to be part of his life so i am his mommy figure now, so i guess you could call him my step-son. I spend my days doing much of what you said you do and i burn myself out all the time. I have a wonderful and loving man who helps me out a lot. My son helps me lots too. Shae knows that when i am sick we can't do a whole lot, and so we sit and watch movies together. We bought movies that are educational for us to watch together, like learning ABCs and Numbers. It is exhausting doing "normal" people stuff without CF but with CF it is like 250% harder. I have lots of naps, it is crumby, i do the dishes and am tired from standing that long so i go lay down for an hour or so. I slept for 5 hours after going grocery shopping. You are not alone in feeling just plain pooped out!Love Julie
I spent the last year being exaugested! I was tired after the simplest things, and all the things I love to do, skiing, camping, going to concerts...became so hard I didn't enjoy them any more. I felt like a party pooper when I when to do things with friends and my boyfriend. It turns out that I had two forms of microbacteria colonising, and CFRD! Once I started antibiotics and insulin, it was like I was better over night! But when I think about all the stuff I was trying to take on at the time, I can't believe I didn't keel over!Debbie22 yr old w/ CF
Hey guys! This is Jessica!Thank you soooo much Julie, Debbie, and Jess for responding to my letter.You ladies made me feel so relieved! I started crying with joy. It feels so good to hear from someone knowing and feeling like me. We are truly in each other's shoes! Even though I know I wasn't the only one here dealing with life's wonderful challenges, it is just nice to be reminded.All three of you sound like awesome women!!! Jess you were right on with your response. Everything you said was so true. I think everyone would agree!Thank you again!LoveJessicaspiritwithin01@msn.com
Hi Jessica,I am 30 with CF. I have been married for almost 8 yrs and have a beatiful daughter who is 6 (CF free). I also work full time in an office. I am kind of in the same situation right now as you seem to be. My energy level is just shot. I feel like I am dverdoing it at times. By the time I get home from work I dont have the energy level to do the things I need to at home...yet I do them. I also have CFRD and CF related arthritis...and getting ready to have sinus surgery again. I also have thyroid probs which doesnt help with the energy level....anyway...just wanted to say we all know what you are going through. Hang in there! Do what you can! I am slowly learning that we are not superwomen....we are only human! Take Care!Dea
Hi allI have CF, lung function over 100% (yeah, yeah, sounds good I know) when i leave hosp after IV's. I have a partner and a dog, a job and too many great friends to keep up with! Even with good lung function, i get sooo tired and do things in bursts of between 1 and 4 hours, then snooze time. I just have to priortise and make sure I don't stuff around watching tv etc when i know i've got a 'big day' ahead. Also, i don't let housework worry me too much. after all, worry doesn't get anything done, just makes us more tired! I would love to be able to be a better partner to my man, and get into the garden more, but what can you do? I would also like to better explain it to my man without scaring him.How do you guys explain it?cindy