After talking with you all and reading a lot more than had been, I talked to my son's doctor and we are looking at ideas related to a feeding tube. I want chase down and pick everyone's brain. My son is 9 and does not have a good understanding about feeding tubes (for that matter his mom, step-mom, and I don't know much yet). What have been everyone's experiences and are there some limitations towards activities such as sports? Is a G tube or a NG tube a better option? I wish I would have moved on this more recently but since there has not been any trouble with his breathing or lung function, we have not worried much about this. I see as we advance that this will need to be addressed sooner rather than later. I appreciate any ideas.