tummy problems

[jena]

From our personal experience I will provide a few other suggestions:
We took our son in to see a pediatric GI specialist (in the end, it really didn't help our situation, but it certainly didn't hurt. And at least I have a patient history with this doctor in case problems such as this resurface).
Taking Culturelle regularly (over the counter probiotic).
Getting a Miralax prescription.
Taking an occasional dose of Dulcolax.
Adjusting enzyme dosage. This is key. It sounds like maybe your daughter is taking too many enzymes. But it is also possible she is not taking enough. She may need to take prevacid along with her enzymes. Check the expiration date on the enzymes (and make sure they are NOT generic brand - YOUR doctor must specify the name brand and NO substitutions) - sometimes enzymes start being less effective BEFORE the exp. date so if you are close you might need to start a fresh batch.
Try these suggestions one at a time and see what helps. Enzymes are the key, but the other factors can play a role. My son was diagnosed at age 3 and it took almost a year to resolve (for the most part) these tummy issues. I know what a nightmare it can be. Don't give up. You will figure it out. You've come to the right place....
Best of luck,
Jena
6 yr old son with CF

 

[AidansMom]

Hi Rubie's mom,

My son Aidan has this very same issue.

It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right.

He's now 16 months old 19 lbs 8 oz. and based on my observations (his poop, tummy issues, adequate weight gain) and discussing this with his doc's, he's now getting 4 enzymes per meal and with snacks also (Creon 5). Since the extra enzymes were added i've noticed bloating is much MUCH less and he's growing faster it seems. Also sleeping better??? Go figure <img src="i/expressions/face-icon-small-smile.gif" border="0"> He was diagnosed at 9 months and it's taken just until the last few of months to get things somewhat where they should be.

 

[AidansMom]

Hi Rubie's mom,

My son Aidan has this very same issue.

It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right.

He's now 16 months old 19 lbs 8 oz. and based on my observations (his poop, tummy issues, adequate weight gain) and discussing this with his doc's, he's now getting 4 enzymes per meal and with snacks also (Creon 5). Since the extra enzymes were added i've noticed bloating is much MUCH less and he's growing faster it seems. Also sleeping better??? Go figure <img src="i/expressions/face-icon-small-smile.gif" border="0"> He was diagnosed at 9 months and it's taken just until the last few of months to get things somewhat where they should be.

 

[AidansMom]

Hi Rubie's mom,

My son Aidan has this very same issue.

It seemed for his weight, age, etc. the dosage of enzymes they prescribed was not enough. The docs said once we had his dosage 'right on' this should lessen and they were right.

He's now 16 months old 19 lbs 8 oz. and based on my observations (his poop, tummy issues, adequate weight gain) and discussing this with his doc's, he's now getting 4 enzymes per meal and with snacks also (Creon 5). Since the extra enzymes were added i've noticed bloating is much MUCH less and he's growing faster it seems. Also sleeping better??? Go figure <img src="i/expressions/face-icon-small-smile.gif" border="0"> He was diagnosed at 9 months and it's taken just until the last few of months to get things somewhat where they should be.