Tune Up at home?

nuttzzy

New member
this coming from a person that is getting the IV's Shes prob tired from the night routine to lol tho she prob doesnt seem to wake up or gose right back to sleep. still dosent get good rest probably i know i dont <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

nuttzzy

New member
this coming from a person that is getting the IV's Shes prob tired from the night routine to lol tho she prob doesnt seem to wake up or gose right back to sleep. still dosent get good rest probably i know i dont <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

nuttzzy

New member
this coming from a person that is getting the IV's Shes prob tired from the night routine to lol tho she prob doesnt seem to wake up or gose right back to sleep. still dosent get good rest probably i know i dont <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

nuttzzy

New member
this coming from a person that is getting the IV's Shes prob tired from the night routine to lol tho she prob doesnt seem to wake up or gose right back to sleep. still dosent get good rest probably i know i dont <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

nuttzzy

New member
this coming from a person that is getting the IV's Shes prob tired from the night routine to lol tho she prob doesnt seem to wake up or gose right back to sleep. still dosent get good rest probably i know i dont <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
S

sdelorenzo

Guest
Yes, you are right. I shouldn't have written from just the mom's perspective. Of course, it is so much harder on my daughter. She is thrilled to be going to school and out of the hospital. She does seem to get good sleep though, thankfully in or out of the hospital. The feeding tube is what wakes her up having to use the restroom at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf
 
S

sdelorenzo

Guest
Yes, you are right. I shouldn't have written from just the mom's perspective. Of course, it is so much harder on my daughter. She is thrilled to be going to school and out of the hospital. She does seem to get good sleep though, thankfully in or out of the hospital. The feeding tube is what wakes her up having to use the restroom at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf
 
S

sdelorenzo

Guest
Yes, you are right. I shouldn't have written from just the mom's perspective. Of course, it is so much harder on my daughter. She is thrilled to be going to school and out of the hospital. She does seem to get good sleep though, thankfully in or out of the hospital. The feeding tube is what wakes her up having to use the restroom at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf
 
S

sdelorenzo

Guest
Yes, you are right. I shouldn't have written from just the mom's perspective. Of course, it is so much harder on my daughter. She is thrilled to be going to school and out of the hospital. She does seem to get good sleep though, thankfully in or out of the hospital. The feeding tube is what wakes her up having to use the restroom at night.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf
 
S

sdelorenzo

Guest
Yes, you are right. I shouldn't have written from just the mom's perspective. Of course, it is so much harder on my daughter. She is thrilled to be going to school and out of the hospital. She does seem to get good sleep though, thankfully in or out of the hospital. The feeding tube is what wakes her up having to use the restroom at night.
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf
 

jaimers

Super Moderator
I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.
 

jaimers

Super Moderator
I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.
 

jaimers

Super Moderator
I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.
 

jaimers

Super Moderator
I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.
 

jaimers

Super Moderator
I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the eclipse balls (dosing system) are available. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
<br />if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.
 

nuttzzy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jaimers</b></i>

I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the <b>eclipse balls (dosing system) are available</b>. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!

if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.</end quote></div>


indeed these are a must we call them party balls... basicly its a water ballon looking deal with a IV hose SO MUCH EASIER plus portable
 

nuttzzy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jaimers</b></i>

I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the <b>eclipse balls (dosing system) are available</b>. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!

if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.</end quote></div>


indeed these are a must we call them party balls... basicly its a water ballon looking deal with a IV hose SO MUCH EASIER plus portable
 

nuttzzy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jaimers</b></i>

I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the <b>eclipse balls (dosing system) are available</b>. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!

if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.</end quote></div>


indeed these are a must we call them party balls... basicly its a water ballon looking deal with a IV hose SO MUCH EASIER plus portable
 

nuttzzy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jaimers</b></i>

I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the <b>eclipse balls (dosing system) are available</b>. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!

if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.</end quote>


indeed these are a must we call them party balls... basicly its a water ballon looking deal with a IV hose SO MUCH EASIER plus portable
 

nuttzzy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jaimers</b></i>
<br />
<br />I've done it like everyone else has said...start a couple days in patient then go home. depending on what medications they put your son on and what dosages see if the <b>eclipse balls (dosing system) are available</b>. These look like little balloon grenades that deflate and push the medicine in. they are SO much better and more convenient than a gravity drip IV bag, or pump or any of that stuff. and they allow you to be mobile around the house or out and about while doing meds, which might be good for an active kid!
<br />
<br />if he does end up needing a tune up and goes in patient for a few days ask/demand the nurses start working his medications into a schedule that you'll be able to maintain at home. For me, i would have 12 hour meds that were given at 3pm and 3 am. ok, well, that's great except no one wants to get up at 3 am to give me my dose when i go home, so i would work the meds back 1 hour each dose until i got it to a time i liked such as 10am 10pm. This way when you go home it will all be set and you don't have to worry about fooling around with the med schedule trying to get it to something workable.</end quote>
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<br />
<br />indeed these are a must we call them party balls... basicly its a water ballon looking deal with a IV hose SO MUCH EASIER plus portable
<br />
 
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