Nightwriter
New member
Hi,
My doctor has a very different approach. She would never send me for a tune-up. Why send someone to the hospital when they are not really sick? She has told me the hospital is the most likely place to pick up these debilatating bacterias. For that reason she also avoids invasive procedures like bronchs, if possible.
Your kids are so lucky that they don't culture anything. It seems really weird to me to suggest that kids without things like P.A. be sent to the one place P.A. is lurking the most.
It is too bad that CF centers are going in the direction of throwing antibiotics at people who aren't even culturing anything. They might win the battle (so the clinic can get their numbers up in the short term) but they will lose the war, as everybody quickly becomes resistant to antibiotics, lose their hearing, harm their livers, and maybe unnecessarily.
If you notice that your kids are sick all the time or particularly at certain times of the year like October -- it is because the weather change is affecting the asthma component of C.F.
If you notice that your child has been really pretty healthy, then all of a sudden starts getting sick all the time and ling function starts declining-- what has changed in your lives? Again, an asthma component is probable.
Instead of CF centers coming up with the very easy protocol to send someone off with antibiotics, wouldn't it be better for them to start to treat the inflammation before it turns to infection?
The problem with treating the asthma component is that it takes time. A clinic would have to do time consuming testing testing, both for asthma and allergy. They'd have to spend time finding out about triggers in people's homes, work, school. They'd have to spend time educating people how to make their homes free of allergies, irritants, and chemicals.
Or they can just send them off for a tune-up.
I use to cough all the time. I used to be on antibiotics every 3 months until finally in addition to more frequent hospitilazations, I was on inhaled Tobi.
Today, the cough is gone (except when I laugh), and the cycle of infections have stopped. I get sick once in a while and it ususally doesn't not require any antibiotics. My P.A. and staph have not been picked up in cultures in a long time.
I would like to hear of more clinics, or doctors who believe in treating someone as a whole person who is affected by the world around them. And instead of finding reasons to give antibiotics, find a reason to get them off antibiotics.
My doctor has a very different approach. She would never send me for a tune-up. Why send someone to the hospital when they are not really sick? She has told me the hospital is the most likely place to pick up these debilatating bacterias. For that reason she also avoids invasive procedures like bronchs, if possible.
Your kids are so lucky that they don't culture anything. It seems really weird to me to suggest that kids without things like P.A. be sent to the one place P.A. is lurking the most.
It is too bad that CF centers are going in the direction of throwing antibiotics at people who aren't even culturing anything. They might win the battle (so the clinic can get their numbers up in the short term) but they will lose the war, as everybody quickly becomes resistant to antibiotics, lose their hearing, harm their livers, and maybe unnecessarily.
If you notice that your kids are sick all the time or particularly at certain times of the year like October -- it is because the weather change is affecting the asthma component of C.F.
If you notice that your child has been really pretty healthy, then all of a sudden starts getting sick all the time and ling function starts declining-- what has changed in your lives? Again, an asthma component is probable.
Instead of CF centers coming up with the very easy protocol to send someone off with antibiotics, wouldn't it be better for them to start to treat the inflammation before it turns to infection?
The problem with treating the asthma component is that it takes time. A clinic would have to do time consuming testing testing, both for asthma and allergy. They'd have to spend time finding out about triggers in people's homes, work, school. They'd have to spend time educating people how to make their homes free of allergies, irritants, and chemicals.
Or they can just send them off for a tune-up.
I use to cough all the time. I used to be on antibiotics every 3 months until finally in addition to more frequent hospitilazations, I was on inhaled Tobi.
Today, the cough is gone (except when I laugh), and the cycle of infections have stopped. I get sick once in a while and it ususally doesn't not require any antibiotics. My P.A. and staph have not been picked up in cultures in a long time.
I would like to hear of more clinics, or doctors who believe in treating someone as a whole person who is affected by the world around them. And instead of finding reasons to give antibiotics, find a reason to get them off antibiotics.