Two CF mothers nominated for human rights award

G

GabiO

Guest
Two CF mothers from Bulgaria - Aneta Feodorova and Svetlana Atanasova - have been nominated for the Human of the Year Award, an annual award recognizing contribution to human rights in Bulgaria.

These two brave women, co-founders of the parent-patient Bulgarian CF Association, have been working hard to improve the standard of CF care in Bulgaria, where CF patients die on the average before the age of 13. Unrelenting and tenacious, the two mothers advocated passionately for CF patients and represented their rights before national and international organizations and institutions, such as the National Health Insurance Fund, the Ministry of Healthcare, the Child Protection Agency, the Commission on Discrimination, the European Parliament, and the World Health Organization. Through active presence in the national media, they raised awareness of the disease and the problems faced by Bulgarian CF patients. As a result of their incredible efforts, the inhaled TOBI 300 antibiotic was made available free of charge to Bulgarian CF patients; numerous donations of durable medical equipment, supplies, and medications were made; and the First Educational Seminar for Cystic Fibrosis was held in Bulgaria in 2010.

The winner of the Human of the Year Award will be determined by a public vote until December 6, 2010. Only one vote per e-mail address is permitted.

Please support the nomination of the CF mothers here: <a target=_blank class=ftalternatingbarlinklarge href="http://humanoftheyear.org/wp-content/plugins/wp-photocontest/viewimg.php?img_id=48&post_id=2491">http://humanoftheyear.org/wp-c...img_id=48&post_id=2491</a>

Although the page is in Bulgarian, voting is easy. Enter your e-mail address at the bottom of the screen and click the box below. You will receive an e-mail to confirm your vote. Your vote will not be counted until you click on the link provided in the confirmation e-mail.

Thank you! Your support can work wonders for CF children in Bulgaria.


Gabriela Oates
Mom of Teddy (age 5, CF) and Mina (age 8, no CF)
 
G

GabiO

Guest
Two CF mothers from Bulgaria - Aneta Feodorova and Svetlana Atanasova - have been nominated for the Human of the Year Award, an annual award recognizing contribution to human rights in Bulgaria.

These two brave women, co-founders of the parent-patient Bulgarian CF Association, have been working hard to improve the standard of CF care in Bulgaria, where CF patients die on the average before the age of 13. Unrelenting and tenacious, the two mothers advocated passionately for CF patients and represented their rights before national and international organizations and institutions, such as the National Health Insurance Fund, the Ministry of Healthcare, the Child Protection Agency, the Commission on Discrimination, the European Parliament, and the World Health Organization. Through active presence in the national media, they raised awareness of the disease and the problems faced by Bulgarian CF patients. As a result of their incredible efforts, the inhaled TOBI 300 antibiotic was made available free of charge to Bulgarian CF patients; numerous donations of durable medical equipment, supplies, and medications were made; and the First Educational Seminar for Cystic Fibrosis was held in Bulgaria in 2010.

The winner of the Human of the Year Award will be determined by a public vote until December 6, 2010. Only one vote per e-mail address is permitted.

Please support the nomination of the CF mothers here: <a target=_blank class=ftalternatingbarlinklarge href="http://humanoftheyear.org/wp-content/plugins/wp-photocontest/viewimg.php?img_id=48&post_id=2491">http://humanoftheyear.org/wp-c...img_id=48&post_id=2491</a>

Although the page is in Bulgarian, voting is easy. Enter your e-mail address at the bottom of the screen and click the box below. You will receive an e-mail to confirm your vote. Your vote will not be counted until you click on the link provided in the confirmation e-mail.

Thank you! Your support can work wonders for CF children in Bulgaria.


Gabriela Oates
Mom of Teddy (age 5, CF) and Mina (age 8, no CF)
 
G

GabiO

Guest
Two CF mothers from Bulgaria - Aneta Feodorova and Svetlana Atanasova - have been nominated for the Human of the Year Award, an annual award recognizing contribution to human rights in Bulgaria.
<br />
<br />These two brave women, co-founders of the parent-patient Bulgarian CF Association, have been working hard to improve the standard of CF care in Bulgaria, where CF patients die on the average before the age of 13. Unrelenting and tenacious, the two mothers advocated passionately for CF patients and represented their rights before national and international organizations and institutions, such as the National Health Insurance Fund, the Ministry of Healthcare, the Child Protection Agency, the Commission on Discrimination, the European Parliament, and the World Health Organization. Through active presence in the national media, they raised awareness of the disease and the problems faced by Bulgarian CF patients. As a result of their incredible efforts, the inhaled TOBI 300 antibiotic was made available free of charge to Bulgarian CF patients; numerous donations of durable medical equipment, supplies, and medications were made; and the First Educational Seminar for Cystic Fibrosis was held in Bulgaria in 2010.
<br />
<br />The winner of the Human of the Year Award will be determined by a public vote until December 6, 2010. Only one vote per e-mail address is permitted.
<br />
<br />Please support the nomination of the CF mothers here: <a target=_blank class=ftalternatingbarlinklarge href="http://humanoftheyear.org/wp-content/plugins/wp-photocontest/viewimg.php?img_id=48&post_id=2491">http://humanoftheyear.org/wp-c...img_id=48&post_id=2491</a>
<br />
<br />Although the page is in Bulgarian, voting is easy. Enter your e-mail address at the bottom of the screen and click the box below. You will receive an e-mail to confirm your vote. Your vote will not be counted until you click on the link provided in the confirmation e-mail.
<br />
<br />Thank you! Your support can work wonders for CF children in Bulgaria.
<br />
<br />
<br />Gabriela Oates
<br />Mom of Teddy (age 5, CF) and Mina (age 8, no CF)
<br />
<br />
 
M

Mommafirst

Guest
This is wonderful! I'd love to support them, but I don't feel comfortable adding my e-mail to a page where I can't read a thing on it. Can anyone translate the page?
 
M

Mommafirst

Guest
This is wonderful! I'd love to support them, but I don't feel comfortable adding my e-mail to a page where I can't read a thing on it. Can anyone translate the page?
 
M

Mommafirst

Guest
This is wonderful! I'd love to support them, but I don't feel comfortable adding my e-mail to a page where I can't read a thing on it. Can anyone translate the page?
 
G

GabiO

Guest
Heather,

On the main site, www.humanoftheyear.org, click on "English" in the upper right corner and you will be able to read about the award and the nomination process. Unfortunately, they haven't (yet?) translated the nominees' profiles or the voting instructions into English.

However, the text I provided earlier was a synopsis of the profile of the two CF moms. They have been nominated by Karleen De Rijke, President of CF Europe.

Below is a translation of everything else following their profile.

The text in the red field says: "Vote for this nomination"

The box under it says: "E-mail address (you will receive an e-mail confirmation of your vote at this address)"

The radio button at the bottom says: "Send"

The confirmation e-mail you will receive says: "Thank you for your support of Aneta and Svetlana. Follow this link to confirm your vote:" [link]

When you click on the link, it brings you back to the website with a message that says: "Thank you. Your vote has been counted."

I hope this helps. Thank you for considering supporting Aneta and Svetlana.

Gabriela
 
G

GabiO

Guest
Heather,

On the main site, www.humanoftheyear.org, click on "English" in the upper right corner and you will be able to read about the award and the nomination process. Unfortunately, they haven't (yet?) translated the nominees' profiles or the voting instructions into English.

However, the text I provided earlier was a synopsis of the profile of the two CF moms. They have been nominated by Karleen De Rijke, President of CF Europe.

Below is a translation of everything else following their profile.

The text in the red field says: "Vote for this nomination"

The box under it says: "E-mail address (you will receive an e-mail confirmation of your vote at this address)"

The radio button at the bottom says: "Send"

The confirmation e-mail you will receive says: "Thank you for your support of Aneta and Svetlana. Follow this link to confirm your vote:" [link]

When you click on the link, it brings you back to the website with a message that says: "Thank you. Your vote has been counted."

I hope this helps. Thank you for considering supporting Aneta and Svetlana.

Gabriela
 
G

GabiO

Guest
Heather,
<br />
<br />On the main site, www.humanoftheyear.org, click on "English" in the upper right corner and you will be able to read about the award and the nomination process. Unfortunately, they haven't (yet?) translated the nominees' profiles or the voting instructions into English.
<br />
<br />However, the text I provided earlier was a synopsis of the profile of the two CF moms. They have been nominated by Karleen De Rijke, President of CF Europe.
<br />
<br />Below is a translation of everything else following their profile.
<br />
<br />The text in the red field says: "Vote for this nomination"
<br />
<br />The box under it says: "E-mail address (you will receive an e-mail confirmation of your vote at this address)"
<br />
<br />The radio button at the bottom says: "Send"
<br />
<br />The confirmation e-mail you will receive says: "Thank you for your support of Aneta and Svetlana. Follow this link to confirm your vote:" [link]
<br />
<br />When you click on the link, it brings you back to the website with a message that says: "Thank you. Your vote has been counted."
<br />
<br />I hope this helps. Thank you for considering supporting Aneta and Svetlana.
<br />
<br />Gabriela
<br />
 
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