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Two Diagnosed
- Thread starter rpcvchina
- Start date
S
sdelorenzo
Guest
Welcome. Sorry to hear about your children's diagnosis. I also have two with cf. Sophia is 7 and Jack is 5. It is challenging, isn't it? I just try and look at the bright side. I am so thankful we have the medicines they need to stay healthy and have a "normal" life. Where do you live? Are you close to a cf center? How are your kids doing? We found out my nephew at age 4 also had cf after my daughter was diagnosed as an infant. So I know the unexpected shock you are referring to. Hopefully you will find a lot of support here. I know it has helped me a lot.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
S
sdelorenzo
Guest
Welcome. Sorry to hear about your children's diagnosis. I also have two with cf. Sophia is 7 and Jack is 5. It is challenging, isn't it? I just try and look at the bright side. I am so thankful we have the medicines they need to stay healthy and have a "normal" life. Where do you live? Are you close to a cf center? How are your kids doing? We found out my nephew at age 4 also had cf after my daughter was diagnosed as an infant. So I know the unexpected shock you are referring to. Hopefully you will find a lot of support here. I know it has helped me a lot.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
S
sdelorenzo
Guest
Welcome. Sorry to hear about your children's diagnosis. I also have two with cf. Sophia is 7 and Jack is 5. It is challenging, isn't it? I just try and look at the bright side. I am so thankful we have the medicines they need to stay healthy and have a "normal" life. Where do you live? Are you close to a cf center? How are your kids doing? We found out my nephew at age 4 also had cf after my daughter was diagnosed as an infant. So I know the unexpected shock you are referring to. Hopefully you will find a lot of support here. I know it has helped me a lot.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
S
sdelorenzo
Guest
Welcome. Sorry to hear about your children's diagnosis. I also have two with cf. Sophia is 7 and Jack is 5. It is challenging, isn't it? I just try and look at the bright side. I am so thankful we have the medicines they need to stay healthy and have a "normal" life. Where do you live? Are you close to a cf center? How are your kids doing? We found out my nephew at age 4 also had cf after my daughter was diagnosed as an infant. So I know the unexpected shock you are referring to. Hopefully you will find a lot of support here. I know it has helped me a lot.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
S
sdelorenzo
Guest
Welcome. Sorry to hear about your children's diagnosis. I also have two with cf. Sophia is 7 and Jack is 5. It is challenging, isn't it? I just try and look at the bright side. I am so thankful we have the medicines they need to stay healthy and have a "normal" life. Where do you live? Are you close to a cf center? How are your kids doing? We found out my nephew at age 4 also had cf after my daughter was diagnosed as an infant. So I know the unexpected shock you are referring to. Hopefully you will find a lot of support here. I know it has helped me a lot.
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, 5 months no cf, aunt to Joseph, 11 cf
J
juls
Guest
We have two also. Taylor wasn't diagnosed until 3 years old and we had the other two tested after she was diagnosed, that was when we found out the Isabella also had CF. Finding out about her was more difficult than Taylor. I think this is because we had been to many specialists with Taylor trying to figure out what was going on(even a genetics specialist that completely missed the subtle yet obvious symptoms of CF!) so finally having an answer was a relief. Isabella was only 3 months old when she was diagnosed so it was much more of a shock.
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
J
juls
Guest
We have two also. Taylor wasn't diagnosed until 3 years old and we had the other two tested after she was diagnosed, that was when we found out the Isabella also had CF. Finding out about her was more difficult than Taylor. I think this is because we had been to many specialists with Taylor trying to figure out what was going on(even a genetics specialist that completely missed the subtle yet obvious symptoms of CF!) so finally having an answer was a relief. Isabella was only 3 months old when she was diagnosed so it was much more of a shock.
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
J
juls
Guest
We have two also. Taylor wasn't diagnosed until 3 years old and we had the other two tested after she was diagnosed, that was when we found out the Isabella also had CF. Finding out about her was more difficult than Taylor. I think this is because we had been to many specialists with Taylor trying to figure out what was going on(even a genetics specialist that completely missed the subtle yet obvious symptoms of CF!) so finally having an answer was a relief. Isabella was only 3 months old when she was diagnosed so it was much more of a shock.
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
J
juls
Guest
We have two also. Taylor wasn't diagnosed until 3 years old and we had the other two tested after she was diagnosed, that was when we found out the Isabella also had CF. Finding out about her was more difficult than Taylor. I think this is because we had been to many specialists with Taylor trying to figure out what was going on(even a genetics specialist that completely missed the subtle yet obvious symptoms of CF!) so finally having an answer was a relief. Isabella was only 3 months old when she was diagnosed so it was much more of a shock.
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
J
juls
Guest
We have two also. Taylor wasn't diagnosed until 3 years old and we had the other two tested after she was diagnosed, that was when we found out the Isabella also had CF. Finding out about her was more difficult than Taylor. I think this is because we had been to many specialists with Taylor trying to figure out what was going on(even a genetics specialist that completely missed the subtle yet obvious symptoms of CF!) so finally having an answer was a relief. Isabella was only 3 months old when she was diagnosed so it was much more of a shock.
<br />
<br />The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!
<br />
<br />The adjustment at first was hard, but now everything is routine. Feel free to PM with more questions!