two weeks on kalydeco!

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pencf</b></i> Suziesmom: At our CF ED day, our doctors said that at the conference there was discussion about prescribing Kalydeco to any patient with at least one copy of a class 4 mutation (G551D is a class 4). </end quote>
G551D is a class III

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pencf</b></i> Suziesmom: At our CF ED day, our doctors said that at the conference there was discussion about prescribing Kalydeco to any patient with at least one copy of a class 4 mutation (G551D is a class 4). </end quote>
G551D is a class III

 

[cindylou]

OK, I just blogged another Kalydeco update (week 4)! This will probably be the last weekly update for awhile, since I seem to be plateauing in terms of new effects, so I probably won't be doing another symptom breakdown update until next month when I see the doctor and get all my numbers. For anyone who is interested, the update is here: http://www.beingcindy.blogspot.com/2012/05/kalydeco-week-4.html Also, if you scroll down to the bottom post you'll see that it's under the blog label "kalydeco." If I do post anything about the pill between now and the time I see the doctor, it will be under that label. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[cindylou]

OK, I just blogged another Kalydeco update (week 4)! This will probably be the last weekly update for awhile, since I seem to be plateauing in terms of new effects, so I probably won't be doing another symptom breakdown update until next month when I see the doctor and get all my numbers. For anyone who is interested, the update is here: http://www.beingcindy.blogspot.com/2012/05/kalydeco-week-4.html Also, if you scroll down to the bottom post you'll see that it's under the blog label "kalydeco." If I do post anything about the pill between now and the time I see the doctor, it will be under that label. <img src="i/expressions/face-icon-small-smile.gif" border="0">