Unbelievable

lilywing

New member
hi ladybug,
how completely frustrating!!! we rely on our medical professionals to do their job, to follow through on a timely basis, to do the things we can't. like synergy testing. i've been in a similar situation. last year, i was needing treatment and my doctors put me on the usual iv drugs (tobra and ceftaz). i struggled through 3 weeks with very little improvement. at the end, my final sputum sample showed resistance across the board, hence no significant improvement. "oh - it looks like you're resistant...hmmm", the answer given by my doctor. i had assumed that they prescribed the meds based on my sensitivities. turns out, things aren't always done they way they should be. and so was my lesson no. 267 on being an informed, proactive patient. but being informed and proactive is not always enough, unfortunately.

i TRY not to be a giant pain in the ass to my doctors and clinic, but sometimes i have to be!! The bottom line is: no one cares about my health as much as i do.

on the upside, my complete resistance to antibiotics has evolved into a few sensitivies. sometimes i've had great results, and other times, not so much.
sensitivity/resistance is not so black and white as it may seem.

please don't lose hope, and do whatever you feel you need to do to "fix" this.

i never underestimate the power of a well-written letter. whether it gets things done, makes people aware, or simply gets all your feelings out.

take care,
kelly
 

lilywing

New member
hi ladybug,
how completely frustrating!!! we rely on our medical professionals to do their job, to follow through on a timely basis, to do the things we can't. like synergy testing. i've been in a similar situation. last year, i was needing treatment and my doctors put me on the usual iv drugs (tobra and ceftaz). i struggled through 3 weeks with very little improvement. at the end, my final sputum sample showed resistance across the board, hence no significant improvement. "oh - it looks like you're resistant...hmmm", the answer given by my doctor. i had assumed that they prescribed the meds based on my sensitivities. turns out, things aren't always done they way they should be. and so was my lesson no. 267 on being an informed, proactive patient. but being informed and proactive is not always enough, unfortunately.

i TRY not to be a giant pain in the ass to my doctors and clinic, but sometimes i have to be!! The bottom line is: no one cares about my health as much as i do.

on the upside, my complete resistance to antibiotics has evolved into a few sensitivies. sometimes i've had great results, and other times, not so much.
sensitivity/resistance is not so black and white as it may seem.

please don't lose hope, and do whatever you feel you need to do to "fix" this.

i never underestimate the power of a well-written letter. whether it gets things done, makes people aware, or simply gets all your feelings out.

take care,
kelly
 

lilywing

New member
hi ladybug,
how completely frustrating!!! we rely on our medical professionals to do their job, to follow through on a timely basis, to do the things we can't. like synergy testing. i've been in a similar situation. last year, i was needing treatment and my doctors put me on the usual iv drugs (tobra and ceftaz). i struggled through 3 weeks with very little improvement. at the end, my final sputum sample showed resistance across the board, hence no significant improvement. "oh - it looks like you're resistant...hmmm", the answer given by my doctor. i had assumed that they prescribed the meds based on my sensitivities. turns out, things aren't always done they way they should be. and so was my lesson no. 267 on being an informed, proactive patient. but being informed and proactive is not always enough, unfortunately.

i TRY not to be a giant pain in the ass to my doctors and clinic, but sometimes i have to be!! The bottom line is: no one cares about my health as much as i do.

on the upside, my complete resistance to antibiotics has evolved into a few sensitivies. sometimes i've had great results, and other times, not so much.
sensitivity/resistance is not so black and white as it may seem.

please don't lose hope, and do whatever you feel you need to do to "fix" this.

i never underestimate the power of a well-written letter. whether it gets things done, makes people aware, or simply gets all your feelings out.

take care,
kelly
 

lilywing

New member
hi ladybug,
how completely frustrating!!! we rely on our medical professionals to do their job, to follow through on a timely basis, to do the things we can't. like synergy testing. i've been in a similar situation. last year, i was needing treatment and my doctors put me on the usual iv drugs (tobra and ceftaz). i struggled through 3 weeks with very little improvement. at the end, my final sputum sample showed resistance across the board, hence no significant improvement. "oh - it looks like you're resistant...hmmm", the answer given by my doctor. i had assumed that they prescribed the meds based on my sensitivities. turns out, things aren't always done they way they should be. and so was my lesson no. 267 on being an informed, proactive patient. but being informed and proactive is not always enough, unfortunately.

i TRY not to be a giant pain in the ass to my doctors and clinic, but sometimes i have to be!! The bottom line is: no one cares about my health as much as i do.

on the upside, my complete resistance to antibiotics has evolved into a few sensitivies. sometimes i've had great results, and other times, not so much.
sensitivity/resistance is not so black and white as it may seem.

please don't lose hope, and do whatever you feel you need to do to "fix" this.

i never underestimate the power of a well-written letter. whether it gets things done, makes people aware, or simply gets all your feelings out.

take care,
kelly
 

lilywing

New member
hi ladybug,
<br />how completely frustrating!!! we rely on our medical professionals to do their job, to follow through on a timely basis, to do the things we can't. like synergy testing. i've been in a similar situation. last year, i was needing treatment and my doctors put me on the usual iv drugs (tobra and ceftaz). i struggled through 3 weeks with very little improvement. at the end, my final sputum sample showed resistance across the board, hence no significant improvement. "oh - it looks like you're resistant...hmmm", the answer given by my doctor. i had assumed that they prescribed the meds based on my sensitivities. turns out, things aren't always done they way they should be. and so was my lesson no. 267 on being an informed, proactive patient. but being informed and proactive is not always enough, unfortunately.
<br />
<br />i TRY not to be a giant pain in the ass to my doctors and clinic, but sometimes i have to be!! The bottom line is: no one cares about my health as much as i do.
<br />
<br />on the upside, my complete resistance to antibiotics has evolved into a few sensitivies. sometimes i've had great results, and other times, not so much.
<br />sensitivity/resistance is not so black and white as it may seem.
<br />
<br />please don't lose hope, and do whatever you feel you need to do to "fix" this.
<br />
<br />i never underestimate the power of a well-written letter. whether it gets things done, makes people aware, or simply gets all your feelings out.
<br />
<br />take care,
<br />kelly
 

jdubbs

New member
Hi Ladybug (Sonia) -

That sounds awful. Keep fighting, so when you do get the synergy tests back, or your bugs become sensitive again, you'll be in the best possible shape. Don't give up. There was just a preclinical study released the other day about a new potential therapy against resistant bugs. The link is pasted below.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nanowerk.com/news/newsid=13090.php
">http://www.nanowerk.com/news/newsid=13090.php
</a>
Who knows, maybe you could track down a clinical trial. I know that's not really much help, and if I were in your shoes, I'd be extremely angry. So, whine all you want to.

Hang in there.

-James
 

jdubbs

New member
Hi Ladybug (Sonia) -

That sounds awful. Keep fighting, so when you do get the synergy tests back, or your bugs become sensitive again, you'll be in the best possible shape. Don't give up. There was just a preclinical study released the other day about a new potential therapy against resistant bugs. The link is pasted below.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nanowerk.com/news/newsid=13090.php
">http://www.nanowerk.com/news/newsid=13090.php
</a>
Who knows, maybe you could track down a clinical trial. I know that's not really much help, and if I were in your shoes, I'd be extremely angry. So, whine all you want to.

Hang in there.

-James
 

jdubbs

New member
Hi Ladybug (Sonia) -

That sounds awful. Keep fighting, so when you do get the synergy tests back, or your bugs become sensitive again, you'll be in the best possible shape. Don't give up. There was just a preclinical study released the other day about a new potential therapy against resistant bugs. The link is pasted below.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nanowerk.com/news/newsid=13090.php
">http://www.nanowerk.com/news/newsid=13090.php
</a>
Who knows, maybe you could track down a clinical trial. I know that's not really much help, and if I were in your shoes, I'd be extremely angry. So, whine all you want to.

Hang in there.

-James
 

jdubbs

New member
Hi Ladybug (Sonia) -

That sounds awful. Keep fighting, so when you do get the synergy tests back, or your bugs become sensitive again, you'll be in the best possible shape. Don't give up. There was just a preclinical study released the other day about a new potential therapy against resistant bugs. The link is pasted below.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nanowerk.com/news/newsid=13090.php
">http://www.nanowerk.com/news/newsid=13090.php
</a>
Who knows, maybe you could track down a clinical trial. I know that's not really much help, and if I were in your shoes, I'd be extremely angry. So, whine all you want to.

Hang in there.

-James
 

jdubbs

New member
Hi Ladybug (Sonia) -
<br />
<br />That sounds awful. Keep fighting, so when you do get the synergy tests back, or your bugs become sensitive again, you'll be in the best possible shape. Don't give up. There was just a preclinical study released the other day about a new potential therapy against resistant bugs. The link is pasted below.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.nanowerk.com/news/newsid=13090.php
">http://www.nanowerk.com/news/newsid=13090.php
</a><br />
<br />Who knows, maybe you could track down a clinical trial. I know that's not really much help, and if I were in your shoes, I'd be extremely angry. So, whine all you want to.
<br />
<br />Hang in there.
<br />
<br />-James
 

Jeana

New member
Wow! I feel for you. Being a military brat myself, I have seen my share of military messups, but this sounds like deliberate misleading. Anyway, I would get the desensitization done for now. I have heard some positive comments about it in previous posts. I agree with Melissa, that I would write a professional sounding letter and see if your new doctor would be willing to sign it. I did that for my doctor and he made two tiny changes in wording and then sent that to my employer when I needed an exception on the sick leave bank (intermittant leave rather than in a row). Good luck!
 

Jeana

New member
Wow! I feel for you. Being a military brat myself, I have seen my share of military messups, but this sounds like deliberate misleading. Anyway, I would get the desensitization done for now. I have heard some positive comments about it in previous posts. I agree with Melissa, that I would write a professional sounding letter and see if your new doctor would be willing to sign it. I did that for my doctor and he made two tiny changes in wording and then sent that to my employer when I needed an exception on the sick leave bank (intermittant leave rather than in a row). Good luck!
 

Jeana

New member
Wow! I feel for you. Being a military brat myself, I have seen my share of military messups, but this sounds like deliberate misleading. Anyway, I would get the desensitization done for now. I have heard some positive comments about it in previous posts. I agree with Melissa, that I would write a professional sounding letter and see if your new doctor would be willing to sign it. I did that for my doctor and he made two tiny changes in wording and then sent that to my employer when I needed an exception on the sick leave bank (intermittant leave rather than in a row). Good luck!
 

Jeana

New member
Wow! I feel for you. Being a military brat myself, I have seen my share of military messups, but this sounds like deliberate misleading. Anyway, I would get the desensitization done for now. I have heard some positive comments about it in previous posts. I agree with Melissa, that I would write a professional sounding letter and see if your new doctor would be willing to sign it. I did that for my doctor and he made two tiny changes in wording and then sent that to my employer when I needed an exception on the sick leave bank (intermittant leave rather than in a row). Good luck!
 

Jeana

New member
Wow! I feel for you. Being a military brat myself, I have seen my share of military messups, but this sounds like deliberate misleading. Anyway, I would get the desensitization done for now. I have heard some positive comments about it in previous posts. I agree with Melissa, that I would write a professional sounding letter and see if your new doctor would be willing to sign it. I did that for my doctor and he made two tiny changes in wording and then sent that to my employer when I needed an exception on the sick leave bank (intermittant leave rather than in a row). Good luck!
 

ladybug

New member
thanks, everyone. it appears the culture was sent from the military hospital afterall. it has a tracking number AND was signed that it was delivered (overnighted) to columbia. so, now its columbia's issue, and whomever signed for it is responsible if somehow its lost. the fault is not the biggest issue here. it is the fact if they can't find this thing, i can't get treatment this week.

i'm still a little irked that i called and called to the military hosp. and no one bothered to just make a quick call to columbia to see the status, but i guess that's asking too much to make SURE they got it. let's just wait 6+ weeks and then find out that its lost.

thanks for your support. hopefully tomorrow columbia will have some answers but they looked up my name with several spellings (just in case) and nothing showed up today so i have a feeling tomorrow won't be any more fruitful. blah.
 

ladybug

New member
thanks, everyone. it appears the culture was sent from the military hospital afterall. it has a tracking number AND was signed that it was delivered (overnighted) to columbia. so, now its columbia's issue, and whomever signed for it is responsible if somehow its lost. the fault is not the biggest issue here. it is the fact if they can't find this thing, i can't get treatment this week.

i'm still a little irked that i called and called to the military hosp. and no one bothered to just make a quick call to columbia to see the status, but i guess that's asking too much to make SURE they got it. let's just wait 6+ weeks and then find out that its lost.

thanks for your support. hopefully tomorrow columbia will have some answers but they looked up my name with several spellings (just in case) and nothing showed up today so i have a feeling tomorrow won't be any more fruitful. blah.
 

ladybug

New member
thanks, everyone. it appears the culture was sent from the military hospital afterall. it has a tracking number AND was signed that it was delivered (overnighted) to columbia. so, now its columbia's issue, and whomever signed for it is responsible if somehow its lost. the fault is not the biggest issue here. it is the fact if they can't find this thing, i can't get treatment this week.

i'm still a little irked that i called and called to the military hosp. and no one bothered to just make a quick call to columbia to see the status, but i guess that's asking too much to make SURE they got it. let's just wait 6+ weeks and then find out that its lost.

thanks for your support. hopefully tomorrow columbia will have some answers but they looked up my name with several spellings (just in case) and nothing showed up today so i have a feeling tomorrow won't be any more fruitful. blah.
 

ladybug

New member
thanks, everyone. it appears the culture was sent from the military hospital afterall. it has a tracking number AND was signed that it was delivered (overnighted) to columbia. so, now its columbia's issue, and whomever signed for it is responsible if somehow its lost. the fault is not the biggest issue here. it is the fact if they can't find this thing, i can't get treatment this week.

i'm still a little irked that i called and called to the military hosp. and no one bothered to just make a quick call to columbia to see the status, but i guess that's asking too much to make SURE they got it. let's just wait 6+ weeks and then find out that its lost.

thanks for your support. hopefully tomorrow columbia will have some answers but they looked up my name with several spellings (just in case) and nothing showed up today so i have a feeling tomorrow won't be any more fruitful. blah.
 

ladybug

New member
thanks, everyone. it appears the culture was sent from the military hospital afterall. it has a tracking number AND was signed that it was delivered (overnighted) to columbia. so, now its columbia's issue, and whomever signed for it is responsible if somehow its lost. the fault is not the biggest issue here. it is the fact if they can't find this thing, i can't get treatment this week.
<br />
<br />i'm still a little irked that i called and called to the military hosp. and no one bothered to just make a quick call to columbia to see the status, but i guess that's asking too much to make SURE they got it. let's just wait 6+ weeks and then find out that its lost.
<br />
<br />thanks for your support. hopefully tomorrow columbia will have some answers but they looked up my name with several spellings (just in case) and nothing showed up today so i have a feeling tomorrow won't be any more fruitful. blah.
 
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