Unexpected Lock Up

L

ladybug

New member
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.
 
L

ladybug

New member
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.
 
L

ladybug

New member
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.
 
L

ladybug

New member
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.
 
L

ladybug

New member
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.
 
A

AnD

New member
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">
 
A

AnD

New member
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">
 
A

AnD

New member
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">
 
A

AnD

New member
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">
 
A

AnD

New member
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
J

JennifersHope

New member
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer
 
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