university and Cf

roo

New member
Hey everyone, just found this site. In hospital at the mo, just seen docs who said I should be doing my treatment twice every day. At the moment I am managing once a day physio and nebulised antibiotics. However, this alone is a struggle, with uni work and loving a social life. Is there anyone out there who struggles with this time management at uni? Any suggestions, cos at the moment I feel like im trying hard to do everything but it's still not enough! roo.x
 

anonymous

New member
I do my treatments twice a day (with all the medication it take an hour to do) and if I am sick then I do them four times a day, and have been since I was nine. I also work 40 hours a week. It is hard at first but I believe it helps. You adapt to it and it just becomes a daily part of life. Wake up earley and stay up late. I know how you feel though it is very hard but just remeber that in the long run it is going to help you out alot.
Shavonica 19/wCF
 

anonymous

New member
im at college and i also face these troubles. Its just a matter of balancing it all out. I manage to fit in neb's twice a day. One before college and then again when i get home. I also go on the trampoline and row for 20 mins when i get in from college and do the flutter but admit i dont do any physio therepy. Consequently i dont really go out on a week night as most of my time im working or doing meds. I tend to leave the weekends for going out! I still find time to do meds but sometimes not as thoroughly. I think the key thing is to balance work and play or med's and play! This might mean sacrafising one night out a week etc etc. It is hard sometimes i admit and there are days when i just feel like giving up but i try me best to keep at it!! hope this helps

emma 18 cf uk
 

Magerly111

New member
I have always found it easier to make my class schedule as easy as possible, and make it in a way that I will have time to do my meds. I don't really like the early classes, so I try to make my earliest class at 10 or 12, and I just get up 2 hours earlier then when my class starts. I do my meds for an hour, then shower, eat, get dressed, etc. I do them again around 9 or 10 at night. When I do them I try to read, or get some work done to pass the time. It really makes that hour go by a lot faster. Or, if I have no work to do, then I just sit online lol. I work on both Saturdays and Sundays, so my weekends are devoted to the work life. Fridays I try not to scedule any classes, just in case I have anything to do, work to catch up on, or to recover from a night out lol. I hardly ever go out though, but when I do it's on Thurs. I have managed to work around my med schedule, and make it easier to fit into my lifestyle. While I strive to do good in school, I don't overacheive so that I do have some down time to myself...besides, a lot of my teachers are easy...ever hear of ratemyprofessors.com?? It's how I've passed through college! Lol. but anyway, I never really found much trouble fitting my meds in...it's just a matter of doing them.
 

JennaB

New member
When I went off to college, I did not have a vest at the time. Boy, I could have used one... I went to the local hospital to get treatments every day. I had a roommate / friend that could have done my treatments , she was my best friend at the time, but I didn't want to be tied to her, and I didn't want to tie her down... I am glad I decided to get help elsewhere, because we ended up fighting quite a bit...

But anyhow, I hated going to the hospital every day for treatments. It was annoying, and the therapist lectured me every day about stuff I already knew about my CF. So this offended me. But also, it was hard even finding a hospital in that area that would do this for me. I was pretty upset by the number of hospitals that refused my request for help.

I really could have used the vest at that point.

If I could go back, with or without vest, I would take more time in thinking about class schedules... I had a pretty crazy schedule, classes all over the place, so it was hard to get enough time in for a treatment without rushing things. I also talked to a couple of my professors and explained my situation (even though I normally don't do that) so they would have a little more leniency on me if I needed to miss.

Also - I would have thought more about the walk to class each day. That got really hard, it was good exercise, but it was hard and stressful for someone with breathing problems...
 

anonymous

New member
Thanks so much for your help. Am out of hospital now and back at university. It was really helpful to hear others struggle to balance life and health, I guess its just a matter of balance, routine and determination. It was also humbling to hear that other work harder than me i.e 40 hours a week and still manage to keep up treatment. I am working on getting into a new routine, hopefully I will be out of hospital a bit longer this time!
roo.x
 
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