Tanya,
I'm almost in the exact same state as you. I'm hospitalized or on home IV's alot more often (about once every two months) but my FEV1 can hit 35% at its very best. From talking to my doctor the process is just to get evaluated first. This can take about 3 months.
Then, you go on a wait list only when and if you're ready. But all the tests have been completed so if you need it, it's there. You can be evaluated years before actually being listed. You are only listed when you say you're ready. I'm not sure if this is all transplant center's policy but that's my understanding of the process.
I'm about to start my evaluation process and I feel like you, I'm not quite at the threshhold yet. But, should I take a nose dive with my health it's better to be prepared.
Hope this helped and good luck!
I'm almost in the exact same state as you. I'm hospitalized or on home IV's alot more often (about once every two months) but my FEV1 can hit 35% at its very best. From talking to my doctor the process is just to get evaluated first. This can take about 3 months.
Then, you go on a wait list only when and if you're ready. But all the tests have been completed so if you need it, it's there. You can be evaluated years before actually being listed. You are only listed when you say you're ready. I'm not sure if this is all transplant center's policy but that's my understanding of the process.
I'm about to start my evaluation process and I feel like you, I'm not quite at the threshhold yet. But, should I take a nose dive with my health it's better to be prepared.
Hope this helped and good luck!