B
bdd9623
Guest
Hi everyone,
Well it's been 2 weeks and the initial 98 most common mutations came back negative. I asked what will happen at the end of testing since his sweat tests were so high, both 56 and he has every other symptom. Because they can only confirm if he has CF, can't completely rule out, they told me they would treat him anyway. She (the nurse at the CF clinic at Children's Hosp) asked me about all of his symptoms (the original doctor was in infectious disease), when I told her she said they will treat him for CF no matter what. So we are moving ahead. He will have a CF workup on July 23. At lease I don't have to wait to move ahead.
Well it's been 2 weeks and the initial 98 most common mutations came back negative. I asked what will happen at the end of testing since his sweat tests were so high, both 56 and he has every other symptom. Because they can only confirm if he has CF, can't completely rule out, they told me they would treat him anyway. She (the nurse at the CF clinic at Children's Hosp) asked me about all of his symptoms (the original doctor was in infectious disease), when I told her she said they will treat him for CF no matter what. So we are moving ahead. He will have a CF workup on July 23. At lease I don't have to wait to move ahead.