Update: on Aka2007

Aka2007 · Sep 30, 2007

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or something like that. We will have to work with that on Monday. When the apria is open. I also am getting my Reglan changed to injection 4 times a day. becuase it works better when I have it go thru my blood. The doc also talked about how somtimes it's going to be hard to see if I have a lung infection on an X-ray because CF people grow bugs in the mucus. He was a great doc. I am gald I called him. He seems to know allot about my CF and I like that. Today I took allot of laxtives becuase I am all pluged up again.

I also after getting a doc to understand my CF, I feel like I don't want to go anywhere different for my care. I want to stay here where the hospital and doc understand my CF. By the way he is an inturnest and has some backing on CF. I could tell.. LOL And that's just want I need.
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20/w CF <img src="i/expressions/iv.gif" border="0">

Aka2007 · Sep 30, 2007

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or something like that. We will have to work with that on Monday. When the apria is open. I also am getting my Reglan changed to injection 4 times a day. becuase it works better when I have it go thru my blood. The doc also talked about how somtimes it's going to be hard to see if I have a lung infection on an X-ray because CF people grow bugs in the mucus. He was a great doc. I am gald I called him. He seems to know allot about my CF and I like that. Today I took allot of laxtives becuase I am all pluged up again.

I also after getting a doc to understand my CF, I feel like I don't want to go anywhere different for my care. I want to stay here where the hospital and doc understand my CF. By the way he is an inturnest and has some backing on CF. I could tell.. LOL And that's just want I need.
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20/w CF <img src="i/expressions/iv.gif" border="0">

Aka2007 · Sep 30, 2007

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or something like that. We will have to work with that on Monday. When the apria is open. I also am getting my Reglan changed to injection 4 times a day. becuase it works better when I have it go thru my blood. The doc also talked about how somtimes it's going to be hard to see if I have a lung infection on an X-ray because CF people grow bugs in the mucus. He was a great doc. I am gald I called him. He seems to know allot about my CF and I like that. Today I took allot of laxtives becuase I am all pluged up again.

I also after getting a doc to understand my CF, I feel like I don't want to go anywhere different for my care. I want to stay here where the hospital and doc understand my CF. By the way he is an inturnest and has some backing on CF. I could tell.. LOL And that's just want I need.
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20/w CF <img src="i/expressions/iv.gif" border="0">

Aka2007 · Sep 30, 2007

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or something like that. We will have to work with that on Monday. When the apria is open. I also am getting my Reglan changed to injection 4 times a day. becuase it works better when I have it go thru my blood. The doc also talked about how somtimes it's going to be hard to see if I have a lung infection on an X-ray because CF people grow bugs in the mucus. He was a great doc. I am gald I called him. He seems to know allot about my CF and I like that. Today I took allot of laxtives becuase I am all pluged up again.

I also after getting a doc to understand my CF, I feel like I don't want to go anywhere different for my care. I want to stay here where the hospital and doc understand my CF. By the way he is an inturnest and has some backing on CF. I could tell.. LOL And that's just want I need.
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20/w CF <img src="i/expressions/iv.gif" border="0">

Aka2007 · Sep 30, 2007

I talked with a one of my old docs last night. He thinks I have been having the flu. and that I have pneumonia now bacause this silly bug movied up to my chest. He asked me if I was useing my vest. he wants me to use it more often. and I am fine with that. He would like me on Cipro IV at home or something like that. We will have to work with that on Monday. When the apria is open. I also am getting my Reglan changed to injection 4 times a day. becuase it works better when I have it go thru my blood. The doc also talked about how somtimes it's going to be hard to see if I have a lung infection on an X-ray because CF people grow bugs in the mucus. He was a great doc. I am gald I called him. He seems to know allot about my CF and I like that. Today I took allot of laxtives becuase I am all pluged up again.

I also after getting a doc to understand my CF, I feel like I don't want to go anywhere different for my care. I want to stay here where the hospital and doc understand my CF. By the way he is an inturnest and has some backing on CF. I could tell.. LOL And that's just want I need.
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20/w CF <img src="i/expressions/iv.gif" border="0">

lightNlife · Sep 30, 2007

Thanks for the update. I think being on IVs will do you a lot of good. It's quite uncommon for a doctor to treat an infection based on what they see in an x-ray. My doctor usually decides to start treatment when my PFTs start to drop. Chest x-rays are done to monitor the damage.

Good luck with it all!

lightNlife · Sep 30, 2007

Thanks for the update. I think being on IVs will do you a lot of good. It's quite uncommon for a doctor to treat an infection based on what they see in an x-ray. My doctor usually decides to start treatment when my PFTs start to drop. Chest x-rays are done to monitor the damage.

Good luck with it all!

lightNlife · Sep 30, 2007

Thanks for the update. I think being on IVs will do you a lot of good. It's quite uncommon for a doctor to treat an infection based on what they see in an x-ray. My doctor usually decides to start treatment when my PFTs start to drop. Chest x-rays are done to monitor the damage.

Good luck with it all!

lightNlife · Sep 30, 2007

Thanks for the update. I think being on IVs will do you a lot of good. It's quite uncommon for a doctor to treat an infection based on what they see in an x-ray. My doctor usually decides to start treatment when my PFTs start to drop. Chest x-rays are done to monitor the damage.

Good luck with it all!

lightNlife · Sep 30, 2007

Thanks for the update. I think being on IVs will do you a lot of good. It's quite uncommon for a doctor to treat an infection based on what they see in an x-ray. My doctor usually decides to start treatment when my PFTs start to drop. Chest x-rays are done to monitor the damage.

Good luck with it all!

JustDucky · Sep 30, 2007

My doc is the same way Lauren. as far as the xrays go..they don't go by PFT's with me because of my vent, they don't give a clear picture in my case due to the severe restrictive component in my PFT's. They usually go by how I feel, if my appetite is poor (usually indicates something is going on- I have a hard time eating when I can actually taste my bacteria), if my temps are increasing, how is my mucous production- is it more, thicker, changing color etc. If I say I need IV's, they admit me because they know that at this point that I know my body and to wait and see if it will get better would not be in my best interest as infections usually march throughout my lungs at a record pace once I start feeling ill. We like to nip it in the bud so to speak.

I pray that the IV's do the job for you...even though alot of docs will say oral is the same, I tend to disagree in most cases. It was trial and error to get the right combination of drugs to treat my cooties. At first yes, they did try orals...that failed, I got sicker..then marched to the IV's okay that worked but the combination wasn't right, now I think they have it right (but that could change if the sensitivities change or if I start to grow out more baddies) Let's hope that the Cipro knocks 'em out for you.

Keep us updated on how you are doing...Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky · Sep 30, 2007

My doc is the same way Lauren. as far as the xrays go..they don't go by PFT's with me because of my vent, they don't give a clear picture in my case due to the severe restrictive component in my PFT's. They usually go by how I feel, if my appetite is poor (usually indicates something is going on- I have a hard time eating when I can actually taste my bacteria), if my temps are increasing, how is my mucous production- is it more, thicker, changing color etc. If I say I need IV's, they admit me because they know that at this point that I know my body and to wait and see if it will get better would not be in my best interest as infections usually march throughout my lungs at a record pace once I start feeling ill. We like to nip it in the bud so to speak.

I pray that the IV's do the job for you...even though alot of docs will say oral is the same, I tend to disagree in most cases. It was trial and error to get the right combination of drugs to treat my cooties. At first yes, they did try orals...that failed, I got sicker..then marched to the IV's okay that worked but the combination wasn't right, now I think they have it right (but that could change if the sensitivities change or if I start to grow out more baddies) Let's hope that the Cipro knocks 'em out for you.

Keep us updated on how you are doing...Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky · Sep 30, 2007

My doc is the same way Lauren. as far as the xrays go..they don't go by PFT's with me because of my vent, they don't give a clear picture in my case due to the severe restrictive component in my PFT's. They usually go by how I feel, if my appetite is poor (usually indicates something is going on- I have a hard time eating when I can actually taste my bacteria), if my temps are increasing, how is my mucous production- is it more, thicker, changing color etc. If I say I need IV's, they admit me because they know that at this point that I know my body and to wait and see if it will get better would not be in my best interest as infections usually march throughout my lungs at a record pace once I start feeling ill. We like to nip it in the bud so to speak.

I pray that the IV's do the job for you...even though alot of docs will say oral is the same, I tend to disagree in most cases. It was trial and error to get the right combination of drugs to treat my cooties. At first yes, they did try orals...that failed, I got sicker..then marched to the IV's okay that worked but the combination wasn't right, now I think they have it right (but that could change if the sensitivities change or if I start to grow out more baddies) Let's hope that the Cipro knocks 'em out for you.

Keep us updated on how you are doing...Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky · Sep 30, 2007

My doc is the same way Lauren. as far as the xrays go..they don't go by PFT's with me because of my vent, they don't give a clear picture in my case due to the severe restrictive component in my PFT's. They usually go by how I feel, if my appetite is poor (usually indicates something is going on- I have a hard time eating when I can actually taste my bacteria), if my temps are increasing, how is my mucous production- is it more, thicker, changing color etc. If I say I need IV's, they admit me because they know that at this point that I know my body and to wait and see if it will get better would not be in my best interest as infections usually march throughout my lungs at a record pace once I start feeling ill. We like to nip it in the bud so to speak.

I pray that the IV's do the job for you...even though alot of docs will say oral is the same, I tend to disagree in most cases. It was trial and error to get the right combination of drugs to treat my cooties. At first yes, they did try orals...that failed, I got sicker..then marched to the IV's okay that worked but the combination wasn't right, now I think they have it right (but that could change if the sensitivities change or if I start to grow out more baddies) Let's hope that the Cipro knocks 'em out for you.

Keep us updated on how you are doing...Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky · Sep 30, 2007

My doc is the same way Lauren. as far as the xrays go..they don't go by PFT's with me because of my vent, they don't give a clear picture in my case due to the severe restrictive component in my PFT's. They usually go by how I feel, if my appetite is poor (usually indicates something is going on- I have a hard time eating when I can actually taste my bacteria), if my temps are increasing, how is my mucous production- is it more, thicker, changing color etc. If I say I need IV's, they admit me because they know that at this point that I know my body and to wait and see if it will get better would not be in my best interest as infections usually march throughout my lungs at a record pace once I start feeling ill. We like to nip it in the bud so to speak.

I pray that the IV's do the job for you...even though alot of docs will say oral is the same, I tend to disagree in most cases. It was trial and error to get the right combination of drugs to treat my cooties. At first yes, they did try orals...that failed, I got sicker..then marched to the IV's okay that worked but the combination wasn't right, now I think they have it right (but that could change if the sensitivities change or if I start to grow out more baddies) Let's hope that the Cipro knocks 'em out for you.

Keep us updated on how you are doing...Hugs to you, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

beleache · Sep 30, 2007