Well,
We are still living here at the PICU. He is no longer peeing koolaid red but his creatanine (sp) is up in his kidneys so there is definately something wrong. They are not sure what yet They have been giving him calcium phosphate and something else, as well as a special formual for people with kidney problems that has less protein. He has gotten up out of bed a few times to sit in the chair but it just drains him completely.
He still has that chubby steriod face and double chin, from all those fliuds they have pumped into him. And they are still trying to wein him off of the sedatives but they dont want him to go into withdrawl so they are going slow. He is still on Vallum and Methadone.
He is down to oral antibiotics because of the sugar levels being so high. He is now on Zyvox because he now has VRE in addition to MRSA, so the Vancomyacin that they were using to treat the MRSA was not effective at all and that is why he wasnt getting any better. Now that he has been on the Zyvox for a few days we definately see an improvement. He is more allert and has even smiled when he hasnt been beligerent to the nurses and to his parents...lol
He really wants to go home. He hates being in that bed, he hates being in that room. And he hates that they keep prodding and poking at him every 10 minutes.
This is week three in ICU. Hopefully he will be moved to the other floor by the end of the week he is of coarse as you know self extubated. And only on the BiPAP at night and only on 2 liters on O2 during the day. his O2 sats are sticking around 94% with the 2 liters. His right lung is looking beter. The last X ray actually looked good. It looked close to the left one if that is possible. We havent seen that since before Last June.
He is pretty depressesed, but he does thank all of you that have sent cards and care packages. They cheered him up. His classmates at school made him cards and we lined them up on the wall along side everyones cards from here. He looks at them as he watches spongebob.
Spongebob always gets a smile.
He is down to one IV and his Port a Cath which is good. plus the Arterial Line for Blood Pressure but I think the Arterial Line will be coming out soon. His Blood Pressure has been staying steady for a week or so now.
He is able to eat some soft foods now. Last night he asked for Olive Garden Tuscana Soup so we searched and searched for an Olive Garden but when we got back he ate one bite and didnt want any more. But it was worth that one bite.
Well, I better get back up to the room. Talk to you all soon!
Love,
We are still living here at the PICU. He is no longer peeing koolaid red but his creatanine (sp) is up in his kidneys so there is definately something wrong. They are not sure what yet They have been giving him calcium phosphate and something else, as well as a special formual for people with kidney problems that has less protein. He has gotten up out of bed a few times to sit in the chair but it just drains him completely.
He still has that chubby steriod face and double chin, from all those fliuds they have pumped into him. And they are still trying to wein him off of the sedatives but they dont want him to go into withdrawl so they are going slow. He is still on Vallum and Methadone.
He is down to oral antibiotics because of the sugar levels being so high. He is now on Zyvox because he now has VRE in addition to MRSA, so the Vancomyacin that they were using to treat the MRSA was not effective at all and that is why he wasnt getting any better. Now that he has been on the Zyvox for a few days we definately see an improvement. He is more allert and has even smiled when he hasnt been beligerent to the nurses and to his parents...lol
He really wants to go home. He hates being in that bed, he hates being in that room. And he hates that they keep prodding and poking at him every 10 minutes.
This is week three in ICU. Hopefully he will be moved to the other floor by the end of the week he is of coarse as you know self extubated. And only on the BiPAP at night and only on 2 liters on O2 during the day. his O2 sats are sticking around 94% with the 2 liters. His right lung is looking beter. The last X ray actually looked good. It looked close to the left one if that is possible. We havent seen that since before Last June.
He is pretty depressesed, but he does thank all of you that have sent cards and care packages. They cheered him up. His classmates at school made him cards and we lined them up on the wall along side everyones cards from here. He looks at them as he watches spongebob.
Spongebob always gets a smile.
He is down to one IV and his Port a Cath which is good. plus the Arterial Line for Blood Pressure but I think the Arterial Line will be coming out soon. His Blood Pressure has been staying steady for a week or so now.
He is able to eat some soft foods now. Last night he asked for Olive Garden Tuscana Soup so we searched and searched for an Olive Garden but when we got back he ate one bite and didnt want any more. But it was worth that one bite.
Well, I better get back up to the room. Talk to you all soon!
Love,