Liamsmommy
New member
Hi all I just wanted to say thank you to all for helping me understand sweat test and what I should be looking for with my son.
We went to Sick Kids hospital in Toronto yesterday and I am still not a head with anything. The doctors there have said that his sweat test are not normal (hes now had on at our local hospital and one at the childrens hospital) but they also still will not do the Gene testing they now want todo ANOTHER sweat test and they have a new test (they have had it for 2 years now) that is just like the lung function test for children over 5 and adults where you have to go into the box and blow and then they put air into your lungs as well. So needless to say they will be putting him to sleep and putting him in the box to see what his lung function is as well as they will be doing another type of asperation test where they will force the stuff into him and see what happens (yet again another test that they will put him to sleep for) they also did a cilia test that looks to see if the cilia in his lung/nose move or if they are still becuase that will look like CF but they would have the tummy issues (which liam does but they are not concerned about it because he is in the 40th percentil which is down for his last weigh in 2 months ago he was in the 55th) so we still have no answers still no gen testing and I still have to watch and wait. We were asked why my son is not on Home O2 when hes sleeping becuase he doesnt sat well when he sleeps he sats 92 and lower and yet they didnt set up the home O2 ethier I dont get it?!?!
So all in all we still dont know I will post more when I know more but alot of the test that they want done will take more then 4 weeks to get back as well as they will all take time to book.
Thanks again for all the kind words and adivce I realy needed to talk to someone who understands!
Shawna
We went to Sick Kids hospital in Toronto yesterday and I am still not a head with anything. The doctors there have said that his sweat test are not normal (hes now had on at our local hospital and one at the childrens hospital) but they also still will not do the Gene testing they now want todo ANOTHER sweat test and they have a new test (they have had it for 2 years now) that is just like the lung function test for children over 5 and adults where you have to go into the box and blow and then they put air into your lungs as well. So needless to say they will be putting him to sleep and putting him in the box to see what his lung function is as well as they will be doing another type of asperation test where they will force the stuff into him and see what happens (yet again another test that they will put him to sleep for) they also did a cilia test that looks to see if the cilia in his lung/nose move or if they are still becuase that will look like CF but they would have the tummy issues (which liam does but they are not concerned about it because he is in the 40th percentil which is down for his last weigh in 2 months ago he was in the 55th) so we still have no answers still no gen testing and I still have to watch and wait. We were asked why my son is not on Home O2 when hes sleeping becuase he doesnt sat well when he sleeps he sats 92 and lower and yet they didnt set up the home O2 ethier I dont get it?!?!
So all in all we still dont know I will post more when I know more but alot of the test that they want done will take more then 4 weeks to get back as well as they will all take time to book.
Thanks again for all the kind words and adivce I realy needed to talk to someone who understands!
Shawna