Update On Liam

[Liamsmommy]

We are from Canada so the insurance thing isnt an issue. They are pretty much using my son as a gini pig and i know that becuase they asked me if i would let the test results from his lung function test in a study becuase this is still so new with doing the test on babies. They are also spending big bucks on all the tests that are going to put my son out Im not sure why they wont just do the gen testing on him and get it over with but I dont know "im not the doctor" as my husband would say!

Thank you all for your kind words and I am still going to keep pushing for the gene testing.

Shawna

 

[okok]

Hopefully these tests will be informative and help your child get the care that he needs regardless of whether or not he has CF. I certainly hope you find out soon though! Sounds so frustrating!

 

[okok]

Hopefully these tests will be informative and help your child get the care that he needs regardless of whether or not he has CF. I certainly hope you find out soon though! Sounds so frustrating!

 

[okok]

Hopefully these tests will be informative and help your child get the care that he needs regardless of whether or not he has CF. I certainly hope you find out soon though! Sounds so frustrating!