Update on Lo Detrich - waiting for lungs

Joanne

New member
This is the latest info on Lo:


The week before Easter, Lo became very ill. She was coughing so often it was hard to believe she was capable of getting any air in between the coughs. As she said, "I am spending every second focused on breathing." At Rehab, Lo told the team she should probably be admitted into the hospital. Because there wasn't an available room, they had to return home for several hours waiting. When they were finally called back, they reported to admissions. An unfortunate incident in which hospital protocol clashed with a whiny/I mean impatient patient and family resulted in Lo's running out of oxygen right there in the waiting room. Finally, she was admitted into her room. Shortly thereafter, it was decided she needed to be in the ICU. Because she needs so much oxygen these days, hospital protocol demanded she be transported by ambulance from her private room to the ICU. An ambulance wasn't available until 2 a.m. the next morning. When they arrived, a ventilator was offered to Lo which she didn't want to use. So, they put a Bi-pap on her. This is basically a non-invasive ventilator that forces air in and out, allowing the muscles a much-needed rest. By the next morning, Lo's breathing was much improved (relatively speaking), to the point that she was able to breathe on her own again.

Joanne Schum
luckylungsforjo@aol.com
 

ashton2005

New member
Did anyone ever find a website or an email address for her mom to send emails???

christi

sory forgot to ask on the first post!!
 

Joanne

New member
I am not sure if Lo is now home... I just received this email from her mom today - April 27th.

There is a web site, but I don't recall that it has any contact info.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.spiritoflo.com/
">http://www.spiritoflo.com/
</a>
I am not comfortable giving out her mom's email. I can ask her about doing that.

Joanne Schum
luckylungsforjo@aol.com
 

anonymous

New member
I read their book years ago and briefly emailed her back and forth when I finished reading the book.

I am completely heartbroken to hear this news.

How old is Lo now? Deb (CF mom of Two Girls w/cf 12 & 9)
 

anonymous

New member
This is sad for me too. I read the book about six months ago and was inspired by the strength of their family. I hope Lo gets well and is able to come home. Please keep us updated. Isn't Lo in her twenties about now?

Lynsey- Mom to Avery 2yrs. w/CF and Rhett CF carrier
 

ashton2005

New member
Yea she would be because she was born in 1984 which would make her 21 turning 22 in october... i cant wait to hear wether she is home yet or not..

christi
 

anonymous

New member
I am thinking that there is nothing new to report because I got an email from her mom and she didnt say how she was either just that she would keep me posted.

Deb<img src="i/expressions/heart.gif" border="0">
 

Alyssa

New member
Duh! I just realized who you are talking about -- I met Terry Detrich a year ago in Seattle. She spoke at a mother's dinner (for mother's of kids with CF) and we all got a copy of her book.
 
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