Update on Mel (Jazzysmom)

JORDYSMOM

New member
Mel, I'm glad the PICC placement went well. I'm sending you all of the positive thoughts I can. Thanks for the update Terri.

Stacey
 

JORDYSMOM

New member
Mel, I'm glad the PICC placement went well. I'm sending you all of the positive thoughts I can. Thanks for the update Terri.

Stacey
 

JORDYSMOM

New member
Mel, I'm glad the PICC placement went well. I'm sending you all of the positive thoughts I can. Thanks for the update Terri.

Stacey
 

JORDYSMOM

New member
Mel, I'm glad the PICC placement went well. I'm sending you all of the positive thoughts I can. Thanks for the update Terri.

Stacey
 

JORDYSMOM

New member
Mel, I'm glad the PICC placement went well. I'm sending you all of the positive thoughts I can. Thanks for the update Terri.
<br />
<br />Stacey
 

JazzysMom

New member
<b>UPDATE 7/22/08 9;45pm</b>

First of all WHY are there two threads for me? TERRI?! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Today was a good & productive day.

I received a phone call from a friend I havent spoken with in 2 years. I cried when I heard her voice. I also had a very special visitor. THAT was a welcome shock also.

I played Tennis & Bowling on the WII System in our Exercise Room. I LOVE IT! A fun workout that isnt too much. Built up a sweat without causing a bleed & got some junk up.

I also walked around the floor with the therapist, but my 02 sat still drops terribly if I walk on anything below 10 liters of 02. Was able to handle the WII on just 5 liters. **sighs**

Started TPN tonite. My appetite has improved. They did start 3% HTS because the mucous is like cement. It is moving around, but so difficult to get up.

The big news is that they are officially forwarding my case to Columbia Presbyterian Hospital for a tx consult review. I am not sure how I feel about that yet.......

My 02 is very low tonite & feeling quite tight. Its going to be a long nite since I get nebs every 4 hours & with them starting TPN I also have to do finger sticks every 4 hours tonite **sighs again**

Its still difficult to talk on the phone at times & then other times I am fine so that is progress I suppose.

Thanks for your well wishes! My thoughts, love & prayers are with all of you!!!

HUGS
 

JazzysMom

New member
<b>UPDATE 7/22/08 9;45pm</b>

First of all WHY are there two threads for me? TERRI?! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Today was a good & productive day.

I received a phone call from a friend I havent spoken with in 2 years. I cried when I heard her voice. I also had a very special visitor. THAT was a welcome shock also.

I played Tennis & Bowling on the WII System in our Exercise Room. I LOVE IT! A fun workout that isnt too much. Built up a sweat without causing a bleed & got some junk up.

I also walked around the floor with the therapist, but my 02 sat still drops terribly if I walk on anything below 10 liters of 02. Was able to handle the WII on just 5 liters. **sighs**

Started TPN tonite. My appetite has improved. They did start 3% HTS because the mucous is like cement. It is moving around, but so difficult to get up.

The big news is that they are officially forwarding my case to Columbia Presbyterian Hospital for a tx consult review. I am not sure how I feel about that yet.......

My 02 is very low tonite & feeling quite tight. Its going to be a long nite since I get nebs every 4 hours & with them starting TPN I also have to do finger sticks every 4 hours tonite **sighs again**

Its still difficult to talk on the phone at times & then other times I am fine so that is progress I suppose.

Thanks for your well wishes! My thoughts, love & prayers are with all of you!!!

HUGS
 

JazzysMom

New member
<b>UPDATE 7/22/08 9;45pm</b>

First of all WHY are there two threads for me? TERRI?! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Today was a good & productive day.

I received a phone call from a friend I havent spoken with in 2 years. I cried when I heard her voice. I also had a very special visitor. THAT was a welcome shock also.

I played Tennis & Bowling on the WII System in our Exercise Room. I LOVE IT! A fun workout that isnt too much. Built up a sweat without causing a bleed & got some junk up.

I also walked around the floor with the therapist, but my 02 sat still drops terribly if I walk on anything below 10 liters of 02. Was able to handle the WII on just 5 liters. **sighs**

Started TPN tonite. My appetite has improved. They did start 3% HTS because the mucous is like cement. It is moving around, but so difficult to get up.

The big news is that they are officially forwarding my case to Columbia Presbyterian Hospital for a tx consult review. I am not sure how I feel about that yet.......

My 02 is very low tonite & feeling quite tight. Its going to be a long nite since I get nebs every 4 hours & with them starting TPN I also have to do finger sticks every 4 hours tonite **sighs again**

Its still difficult to talk on the phone at times & then other times I am fine so that is progress I suppose.

Thanks for your well wishes! My thoughts, love & prayers are with all of you!!!

HUGS
 

JazzysMom

New member
<b>UPDATE 7/22/08 9;45pm</b>

First of all WHY are there two threads for me? TERRI?! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Today was a good & productive day.

I received a phone call from a friend I havent spoken with in 2 years. I cried when I heard her voice. I also had a very special visitor. THAT was a welcome shock also.

I played Tennis & Bowling on the WII System in our Exercise Room. I LOVE IT! A fun workout that isnt too much. Built up a sweat without causing a bleed & got some junk up.

I also walked around the floor with the therapist, but my 02 sat still drops terribly if I walk on anything below 10 liters of 02. Was able to handle the WII on just 5 liters. **sighs**

Started TPN tonite. My appetite has improved. They did start 3% HTS because the mucous is like cement. It is moving around, but so difficult to get up.

The big news is that they are officially forwarding my case to Columbia Presbyterian Hospital for a tx consult review. I am not sure how I feel about that yet.......

My 02 is very low tonite & feeling quite tight. Its going to be a long nite since I get nebs every 4 hours & with them starting TPN I also have to do finger sticks every 4 hours tonite **sighs again**

Its still difficult to talk on the phone at times & then other times I am fine so that is progress I suppose.

Thanks for your well wishes! My thoughts, love & prayers are with all of you!!!

HUGS
 

JazzysMom

New member
<b>UPDATE 7/22/08 9;45pm</b>
<br />
<br />First of all WHY are there two threads for me? TERRI?! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Today was a good & productive day.
<br />
<br />I received a phone call from a friend I havent spoken with in 2 years. I cried when I heard her voice. I also had a very special visitor. THAT was a welcome shock also.
<br />
<br />I played Tennis & Bowling on the WII System in our Exercise Room. I LOVE IT! A fun workout that isnt too much. Built up a sweat without causing a bleed & got some junk up.
<br />
<br />I also walked around the floor with the therapist, but my 02 sat still drops terribly if I walk on anything below 10 liters of 02. Was able to handle the WII on just 5 liters. **sighs**
<br />
<br />Started TPN tonite. My appetite has improved. They did start 3% HTS because the mucous is like cement. It is moving around, but so difficult to get up.
<br />
<br />The big news is that they are officially forwarding my case to Columbia Presbyterian Hospital for a tx consult review. I am not sure how I feel about that yet.......
<br />
<br />My 02 is very low tonite & feeling quite tight. Its going to be a long nite since I get nebs every 4 hours & with them starting TPN I also have to do finger sticks every 4 hours tonite **sighs again**
<br />
<br />Its still difficult to talk on the phone at times & then other times I am fine so that is progress I suppose.
<br />
<br />Thanks for your well wishes! My thoughts, love & prayers are with all of you!!!
<br />
<br />HUGS
 
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