Glad your PFT's are coming up.
As for weight, listen to Dr. C, the dr's at the hospital are clueless!
FYI, I saw you & your mom when I was in with my son (just passing in hall) and while you are skinny you looked like a 'normal' cystic to me so don't let the doc's bother you with their lack of understanding.
PS: I met your mom while you were in for your embolization as my son was in the OR at the same time. You should tell her to join this site, we would love more members and she might benefit from the support/friendship.
As for weight, listen to Dr. C, the dr's at the hospital are clueless!
FYI, I saw you & your mom when I was in with my son (just passing in hall) and while you are skinny you looked like a 'normal' cystic to me so don't let the doc's bother you with their lack of understanding.
PS: I met your mom while you were in for your embolization as my son was in the OR at the same time. You should tell her to join this site, we would love more members and she might benefit from the support/friendship.