UPDATED - The genetic results on Isaac are in.... not good :-( - UPDATED

Landy

New member
The genetic results on Isaac are in.... not good :-(

Lauren,
I'm sorry to read that your little one has CF too. It does seem unfair, darn it.
((Hugs))
 

Landy

New member
The genetic results on Isaac are in.... not good :-(

Lauren,
I'm sorry to read that your little one has CF too. It does seem unfair, darn it.
((Hugs))
 

Landy

New member
The genetic results on Isaac are in.... not good :-(

Lauren,
I'm sorry to read that your little one has CF too. It does seem unfair, darn it.
((Hugs))
 

Landy

New member
The genetic results on Isaac are in.... not good :-(

Lauren,
I'm sorry to read that your little one has CF too. It does seem unfair, darn it.
((Hugs))
 

Landy

New member
The genetic results on Isaac are in.... not good :-(

Lauren,
I'm sorry to read that your little one has CF too. It does seem unfair, darn it.
((Hugs))
 

mom2lillian

New member
The genetic results on Isaac are in.... not good :-(

Lauren,

I dont know where to start, I feel on the verge of being sick myself--I cant imagine how you are feeling. Having our children so close in age and having done the EXACT same thign with testing hubbies etc I just cant imagine. I think that the fact that there are no 'signs' yet is a good thing. I was so sure the test would be fine.

I dont think you should feel guilty though I know that is pretty useless to say from a mothers perspective you did the right thing, you got hubby tested, you thought you were in the clear. Even if they had told you it was possible or whatever they lectured me about how even though it was possibel when I challenged them sayign the baby couldnt get CF they explained the odds and how it was lower than the child having a whole slew of other genetic disease etc etc etc. They used the line of reasonging that you cant not have children because there is a 0.2-0.5% chance of a dozen different diseases and CF is just one of them. It makes sense to me to look at it htat way though I dont know if that helps you any.

I realize we both took same chances and ended up on other sides of the spectrum so I am not sure if talking with me woudl help or hurt but I am ALWAYS available to you. I have PM'd you my number and another item you might fidn useful.
 

mom2lillian

New member
The genetic results on Isaac are in.... not good :-(

Lauren,

I dont know where to start, I feel on the verge of being sick myself--I cant imagine how you are feeling. Having our children so close in age and having done the EXACT same thign with testing hubbies etc I just cant imagine. I think that the fact that there are no 'signs' yet is a good thing. I was so sure the test would be fine.

I dont think you should feel guilty though I know that is pretty useless to say from a mothers perspective you did the right thing, you got hubby tested, you thought you were in the clear. Even if they had told you it was possible or whatever they lectured me about how even though it was possibel when I challenged them sayign the baby couldnt get CF they explained the odds and how it was lower than the child having a whole slew of other genetic disease etc etc etc. They used the line of reasonging that you cant not have children because there is a 0.2-0.5% chance of a dozen different diseases and CF is just one of them. It makes sense to me to look at it htat way though I dont know if that helps you any.

I realize we both took same chances and ended up on other sides of the spectrum so I am not sure if talking with me woudl help or hurt but I am ALWAYS available to you. I have PM'd you my number and another item you might fidn useful.
 

mom2lillian

New member
The genetic results on Isaac are in.... not good :-(

Lauren,

I dont know where to start, I feel on the verge of being sick myself--I cant imagine how you are feeling. Having our children so close in age and having done the EXACT same thign with testing hubbies etc I just cant imagine. I think that the fact that there are no 'signs' yet is a good thing. I was so sure the test would be fine.

I dont think you should feel guilty though I know that is pretty useless to say from a mothers perspective you did the right thing, you got hubby tested, you thought you were in the clear. Even if they had told you it was possible or whatever they lectured me about how even though it was possibel when I challenged them sayign the baby couldnt get CF they explained the odds and how it was lower than the child having a whole slew of other genetic disease etc etc etc. They used the line of reasonging that you cant not have children because there is a 0.2-0.5% chance of a dozen different diseases and CF is just one of them. It makes sense to me to look at it htat way though I dont know if that helps you any.

I realize we both took same chances and ended up on other sides of the spectrum so I am not sure if talking with me woudl help or hurt but I am ALWAYS available to you. I have PM'd you my number and another item you might fidn useful.
 

mom2lillian

New member
The genetic results on Isaac are in.... not good :-(

Lauren,

I dont know where to start, I feel on the verge of being sick myself--I cant imagine how you are feeling. Having our children so close in age and having done the EXACT same thign with testing hubbies etc I just cant imagine. I think that the fact that there are no 'signs' yet is a good thing. I was so sure the test would be fine.

I dont think you should feel guilty though I know that is pretty useless to say from a mothers perspective you did the right thing, you got hubby tested, you thought you were in the clear. Even if they had told you it was possible or whatever they lectured me about how even though it was possibel when I challenged them sayign the baby couldnt get CF they explained the odds and how it was lower than the child having a whole slew of other genetic disease etc etc etc. They used the line of reasonging that you cant not have children because there is a 0.2-0.5% chance of a dozen different diseases and CF is just one of them. It makes sense to me to look at it htat way though I dont know if that helps you any.

I realize we both took same chances and ended up on other sides of the spectrum so I am not sure if talking with me woudl help or hurt but I am ALWAYS available to you. I have PM'd you my number and another item you might fidn useful.
 

mom2lillian

New member
The genetic results on Isaac are in.... not good :-(

Lauren,

I dont know where to start, I feel on the verge of being sick myself--I cant imagine how you are feeling. Having our children so close in age and having done the EXACT same thign with testing hubbies etc I just cant imagine. I think that the fact that there are no 'signs' yet is a good thing. I was so sure the test would be fine.

I dont think you should feel guilty though I know that is pretty useless to say from a mothers perspective you did the right thing, you got hubby tested, you thought you were in the clear. Even if they had told you it was possible or whatever they lectured me about how even though it was possibel when I challenged them sayign the baby couldnt get CF they explained the odds and how it was lower than the child having a whole slew of other genetic disease etc etc etc. They used the line of reasonging that you cant not have children because there is a 0.2-0.5% chance of a dozen different diseases and CF is just one of them. It makes sense to me to look at it htat way though I dont know if that helps you any.

I realize we both took same chances and ended up on other sides of the spectrum so I am not sure if talking with me woudl help or hurt but I am ALWAYS available to you. I have PM'd you my number and another item you might fidn useful.
 

Irishgal

New member
The genetic results on Isaac are in.... not good :-(

I know you are hurting & jsut HATING CF right now. I go through those phases at times too where I absolutely hate this disese. But whenever really sad and horrible news comes my way about my health I always try to look at the positive and think that something good must come of it.
You did everything right & you are such a compliant patient! Who better than you & your husband to take care of a child with CF? You know just how to take care of him all the right ?'s to ask, all the latest treatments, etc.
He doesn't seem to be sick does he? Any lung or digestive problems? Maybe he just has a super mild form that would normally have gone unnoticed or diagnosed late in his life, but since you had him tested they can figure this out early.
My prayers are with you & Isaac...keep us updtaed...it will be ok; you are strong & can take this on... enjoy your baby. God Bless!
 

Irishgal

New member
The genetic results on Isaac are in.... not good :-(

I know you are hurting & jsut HATING CF right now. I go through those phases at times too where I absolutely hate this disese. But whenever really sad and horrible news comes my way about my health I always try to look at the positive and think that something good must come of it.
You did everything right & you are such a compliant patient! Who better than you & your husband to take care of a child with CF? You know just how to take care of him all the right ?'s to ask, all the latest treatments, etc.
He doesn't seem to be sick does he? Any lung or digestive problems? Maybe he just has a super mild form that would normally have gone unnoticed or diagnosed late in his life, but since you had him tested they can figure this out early.
My prayers are with you & Isaac...keep us updtaed...it will be ok; you are strong & can take this on... enjoy your baby. God Bless!
 

Irishgal

New member
The genetic results on Isaac are in.... not good :-(

I know you are hurting & jsut HATING CF right now. I go through those phases at times too where I absolutely hate this disese. But whenever really sad and horrible news comes my way about my health I always try to look at the positive and think that something good must come of it.
You did everything right & you are such a compliant patient! Who better than you & your husband to take care of a child with CF? You know just how to take care of him all the right ?'s to ask, all the latest treatments, etc.
He doesn't seem to be sick does he? Any lung or digestive problems? Maybe he just has a super mild form that would normally have gone unnoticed or diagnosed late in his life, but since you had him tested they can figure this out early.
My prayers are with you & Isaac...keep us updtaed...it will be ok; you are strong & can take this on... enjoy your baby. God Bless!
 

Irishgal

New member
The genetic results on Isaac are in.... not good :-(

I know you are hurting & jsut HATING CF right now. I go through those phases at times too where I absolutely hate this disese. But whenever really sad and horrible news comes my way about my health I always try to look at the positive and think that something good must come of it.
You did everything right & you are such a compliant patient! Who better than you & your husband to take care of a child with CF? You know just how to take care of him all the right ?'s to ask, all the latest treatments, etc.
He doesn't seem to be sick does he? Any lung or digestive problems? Maybe he just has a super mild form that would normally have gone unnoticed or diagnosed late in his life, but since you had him tested they can figure this out early.
My prayers are with you & Isaac...keep us updtaed...it will be ok; you are strong & can take this on... enjoy your baby. God Bless!
 

Irishgal

New member
The genetic results on Isaac are in.... not good :-(

I know you are hurting & jsut HATING CF right now. I go through those phases at times too where I absolutely hate this disese. But whenever really sad and horrible news comes my way about my health I always try to look at the positive and think that something good must come of it.
You did everything right & you are such a compliant patient! Who better than you & your husband to take care of a child with CF? You know just how to take care of him all the right ?'s to ask, all the latest treatments, etc.
He doesn't seem to be sick does he? Any lung or digestive problems? Maybe he just has a super mild form that would normally have gone unnoticed or diagnosed late in his life, but since you had him tested they can figure this out early.
My prayers are with you & Isaac...keep us updtaed...it will be ok; you are strong & can take this on... enjoy your baby. God Bless!
 

AnD

New member
The genetic results on Isaac are in.... not good :-(

I'm sorry this turned out this way <img src="i/expressions/brokenheart.gif" border="0"> ! I know you will do well with this for him...I will be praying for you...
 

AnD

New member
The genetic results on Isaac are in.... not good :-(

I'm sorry this turned out this way <img src="i/expressions/brokenheart.gif" border="0"> ! I know you will do well with this for him...I will be praying for you...
 

AnD

New member
The genetic results on Isaac are in.... not good :-(

I'm sorry this turned out this way <img src="i/expressions/brokenheart.gif" border="0"> ! I know you will do well with this for him...I will be praying for you...
 

AnD

New member
The genetic results on Isaac are in.... not good :-(

I'm sorry this turned out this way <img src="i/expressions/brokenheart.gif" border="0"> ! I know you will do well with this for him...I will be praying for you...
 

AnD

New member
The genetic results on Isaac are in.... not good :-(

I'm sorry this turned out this way <img src="i/expressions/brokenheart.gif" border="0"> ! I know you will do well with this for him...I will be praying for you...
 
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