Urgent question about Cayston/Altera neb

S

stephen

Guest
I'm not in the medical field but for what it's worth -
<br />
<br />I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.
<br />
<br />We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.
<br />
<br />My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.
<br />
<br />Stephen,
<br />69 years old with CF
<br />
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -

I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.

We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.

My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.

Stephen,
69 years old with CF
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -

I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.

We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.

My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.

Stephen,
69 years old with CF
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -
<br />
<br />I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.
<br />
<br />We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.
<br />
<br />My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.
<br />
<br />Stephen,
<br />69 years old with CF
<br />
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -

I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.

We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.

My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.

Stephen,
69 years old with CF
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -

I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.

We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.

My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.

Stephen,
69 years old with CF
 
S

stephen

Guest
I'm not in the medical field but for what it's worth -
<br />
<br />I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.
<br />
<br />We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.
<br />
<br />My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.
<br />
<br />Stephen,
<br />69 years old with CF
<br />
 
M

mamaScarlett

Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote></div><br>I get what you're saying Stephen, and I agree that we can't go nuts when it comes to sterilizing, washing, worrying about everything little thing. There is the gold standard we aim for-and then there is reality.<br>However, the difference between us inhaling dirty (unsterlized) air is that typically you aren't sitting on the sidewalk or subway taking deep inhalations into your lungs, like we are when we're doing treatments. You're usually just breathing normally and through your nostrils which helps filter out junk.<br>The bigger issue here is keeping the altera clean, not just what's being breathed in through it. The stinkin unit is sensitive! (and annoying) But if its not cared for properly it just won't deliver the meds properly. <br>
 
M

mamaScarlett

Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote><br>I get what you're saying Stephen, and I agree that we can't go nuts when it comes to sterilizing, washing, worrying about everything little thing. There is the gold standard we aim for-and then there is reality.<br>However, the difference between us inhaling dirty (unsterlized) air is that typically you aren't sitting on the sidewalk or subway taking deep inhalations into your lungs, like we are when we're doing treatments. You're usually just breathing normally and through your nostrils which helps filter out junk.<br>The bigger issue here is keeping the altera clean, not just what's being breathed in through it. The stinkin unit is sensitive! (and annoying) But if its not cared for properly it just won't deliver the meds properly. <br>
 
M

mamaScarlett

Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote><br>I get what you're saying Stephen, and I agree that we can't go nuts when it comes to sterilizing, washing, worrying about everything little thing. There is the gold standard we aim for-and then there is reality.<br>However, the difference between us inhaling dirty (unsterlized) air is that typically you aren't sitting on the sidewalk or subway taking deep inhalations into your lungs, like we are when we're doing treatments. You're usually just breathing normally and through your nostrils which helps filter out junk.<br>The bigger issue here is keeping the altera clean, not just what's being breathed in through it. The stinkin unit is sensitive! (and annoying) But if its not cared for properly it just won't deliver the meds properly. <br>
 
S

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote></div>

<div><br></div><div>Thank you for the replies everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"></div><div><br></div><div>Stephen, I think I'll do what you have mentioned--wash the Altera head in running water, then clean it better when I get home, if I have to do treatments at school. My biggest concern isn't the whole "sanitize everything you touch" issue, as I've never in my life sanitized my nebs, just rinsed, and am not a fan of antibacterial gel... I just <i>really</i> don't want the head to get damaged because it was SO hard getting this medication from my insurance; I don't want to give them any other reason to deny my claims (these are the same people that have denied my enzymes--um, hello?)</div>
 
S

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote>

<br>Thank you for the replies everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>Stephen, I think I'll do what you have mentioned--wash the Altera head in running water, then clean it better when I get home, if I have to do treatments at school. My biggest concern isn't the whole "sanitize everything you touch" issue, as I've never in my life sanitized my nebs, just rinsed, and am not a fan of antibacterial gel... I just <i>really</i>don't want the head to get damaged because it was SO hard getting this medication from my insurance; I don't want to give them any other reason to deny my claims (these are the same people that have denied my enzymes--um, hello?)
 
S

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote>

<br>Thank you for the replies everyone <img src="i/expressions/face-icon-small-smile.gif" border="0"><br>Stephen, I think I'll do what you have mentioned--wash the Altera head in running water, then clean it better when I get home, if I have to do treatments at school. My biggest concern isn't the whole "sanitize everything you touch" issue, as I've never in my life sanitized my nebs, just rinsed, and am not a fan of antibacterial gel... I just <i>really</i>don't want the head to get damaged because it was SO hard getting this medication from my insurance; I don't want to give them any other reason to deny my claims (these are the same people that have denied my enzymes--um, hello?)
 
S

stephen

Guest
SIcklyhatED,

With every 28 day supply of Cayston from the CF Services parmacy, I've been getting a "complementary" Altera nebulizer handset. (The perscription appears to have been written that way.) I have however been using the "old" nebulizers for about three months. This appeared to be the protocall during the "extended access" program.

Also, once a week I do soak my nebulizers in warm soappy water before butting them in boiling water.

Good luck with the Cayston; it's been very good for me, thank G-d.

Stephen
 
S

stephen

Guest
SIcklyhatED,

With every 28 day supply of Cayston from the CF Services parmacy, I've been getting a "complementary" Altera nebulizer handset. (The perscription appears to have been written that way.) I have however been using the "old" nebulizers for about three months. This appeared to be the protocall during the "extended access" program.

Also, once a week I do soak my nebulizers in warm soappy water before butting them in boiling water.

Good luck with the Cayston; it's been very good for me, thank G-d.

Stephen
 
S

stephen

Guest
SIcklyhatED,
<br />
<br />With every 28 day supply of Cayston from the CF Services parmacy, I've been getting a "complementary" Altera nebulizer handset. (The perscription appears to have been written that way.) I have however been using the "old" nebulizers for about three months. This appeared to be the protocall during the "extended access" program.
<br />
<br />Also, once a week I do soak my nebulizers in warm soappy water before butting them in boiling water.
<br />
<br />Good luck with the Cayston; it's been very good for me, thank G-d.
<br />
<br />Stephen
 
I

Incomudrox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote></div><br><br>So what you're saying is we should wash our dishes with the garden hose, then eat off of them again for years. Good idea, probably won't get sick from that. How silly of me to think I should use the dishwasher and soap. Tisk tisk. I'll be right back, gotta get a new hose.<br>
 
I

Incomudrox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote><br><br>So what you're saying is we should wash our dishes with the garden hose, then eat off of them again for years. Good idea, probably won't get sick from that. How silly of me to think I should use the dishwasher and soap. Tisk tisk. I'll be right back, gotta get a new hose.<br>
 
I

Incomudrox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i>

I'm not in the medical field but for what it's worth -



I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two times daily that the Altera is used, I just rinse it quickly in hot tap water.



We need to realize that we are constantly breathing non-sterilized air. As I've been told by more than one paleontologist, "Our lungs are like sewers" from all the crap in the air we are constantly breathing.



My feeling is that as a long as the nebulizers are not clogged, or "dirty" with bacteria, there is no reason for them to be sterile.



Stephen,

69 years old with CF</end quote><br><br>So what you're saying is we should wash our dishes with the garden hose, then eat off of them again for years. Good idea, probably won't get sick from that. How silly of me to think I should use the dishwasher and soap. Tisk tisk. I'll be right back, gotta get a new hose.<br>
 
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