Actually Amy, i don't mean to sound ungrateful, you offer numerous ideas to us here and i appreciate all of it, but you actually 'did' say one could go out and get this drug prescribed and start using it now. I think that's potentially an extremely dangerous thing for anybody to do. Not yet. Studies required first.
As for Tylenol i don't know what that is over here in NZ. Perhaps Paracetemol? I'd assume so as I know it can cause liver failure very easily if misused and many people take it like candy completely unaware of this.
Moot point for me anyway, i had to basically offer my doctor my soul recently to get a short dose of steroids prescribed and have had to beg for a bronchoscopy following a 30% reduction in lung function over the last six months.
You know the one thing that's changed in the last six months as far as my lifestyle, treatments and bugs are concerned? I stopped smoking pot several times a day. That's it. THC, the drug recently found to prevent the growth of and spread of lung cancer. I'm tempted to start again as i'm now looking at transplant. But of course if i did, they woudln't transplant me. BUT it's illegal isnt it, despite proof of it's numerous medicinal benefits, so nobody wants to even consider it may help CFers in some strange twisted way. But legal drugs that may cause heart attacks and liver failure, they are happy to spend millions on testing to allow us to then to swallow by the dozen. For maybe a 5% increase in lung function, if that.
Gotta love government policies, narrow minds and the greed of drug companies huh? Can you sense i'm a tad cynical? <img src="i/expressions/face-icon-small-happy.gif" border="0">
As for Tylenol i don't know what that is over here in NZ. Perhaps Paracetemol? I'd assume so as I know it can cause liver failure very easily if misused and many people take it like candy completely unaware of this.
Moot point for me anyway, i had to basically offer my doctor my soul recently to get a short dose of steroids prescribed and have had to beg for a bronchoscopy following a 30% reduction in lung function over the last six months.
You know the one thing that's changed in the last six months as far as my lifestyle, treatments and bugs are concerned? I stopped smoking pot several times a day. That's it. THC, the drug recently found to prevent the growth of and spread of lung cancer. I'm tempted to start again as i'm now looking at transplant. But of course if i did, they woudln't transplant me. BUT it's illegal isnt it, despite proof of it's numerous medicinal benefits, so nobody wants to even consider it may help CFers in some strange twisted way. But legal drugs that may cause heart attacks and liver failure, they are happy to spend millions on testing to allow us to then to swallow by the dozen. For maybe a 5% increase in lung function, if that.
Gotta love government policies, narrow minds and the greed of drug companies huh? Can you sense i'm a tad cynical? <img src="i/expressions/face-icon-small-happy.gif" border="0">