using oxygen

Marjolein

New member
I got my o2 when I needed it at night. Think when I was 10.
And other than during the night I did it on an as needed basis at first. Later during exercise too and later than that I did it 24/7 most days. And sometimes I was just angry and didn't do take it for a few hours :)

Not like Piper's mom says when I got under 94 though. Was under that all the time
My doc has always told me I needed it when my sats went under 90. But have to say I didn't do that all the time. Had a 6 minute walk in clinic 9 months pre tx and dipped to 60something when we checked after 3 minutes of walking. Really didn't take my o2 everywhere I went... While clearly I should have.

Needing it when it goes under 94, I would need it even now post tx. Some nights with shallow breathing. My sats sometimes drop to 92.

Piper's mom, is o2 below 94 what the doc suggested doing? Won't that make Piper more dependable?
 

Marjolein

New member
I got my o2 when I needed it at night. Think when I was 10.
<br />And other than during the night I did it on an as needed basis at first. Later during exercise too and later than that I did it 24/7 most days. And sometimes I was just angry and didn't do take it for a few hours :)
<br />
<br />Not like Piper's mom says when I got under 94 though. Was under that all the time
<br />My doc has always told me I needed it when my sats went under 90. But have to say I didn't do that all the time. Had a 6 minute walk in clinic 9 months pre tx and dipped to 60something when we checked after 3 minutes of walking. Really didn't take my o2 everywhere I went... While clearly I should have.
<br />
<br />Needing it when it goes under 94, I would need it even now post tx. Some nights with shallow breathing. My sats sometimes drop to 92.
<br />
<br />Piper's mom, is o2 below 94 what the doc suggested doing? Won't that make Piper more dependable?
 

Marjolein

New member
MikeInMT
Shows how every body is different. My pft's were at 33% from when I was 8. Didn't have o2 yet. Got that a few years later at 10. But only a few months pre tx, when I was 22 and my pft's at around 10% is when I started using o2 really 24/7
Guess because of having a lungfunction that low for such a long time my body was so adjusted to it.
 

Marjolein

New member
MikeInMT
Shows how every body is different. My pft's were at 33% from when I was 8. Didn't have o2 yet. Got that a few years later at 10. But only a few months pre tx, when I was 22 and my pft's at around 10% is when I started using o2 really 24/7
Guess because of having a lungfunction that low for such a long time my body was so adjusted to it.
 

Marjolein

New member
MikeInMT
<br />Shows how every body is different. My pft's were at 33% from when I was 8. Didn't have o2 yet. Got that a few years later at 10. But only a few months pre tx, when I was 22 and my pft's at around 10% is when I started using o2 really 24/7
<br />Guess because of having a lungfunction that low for such a long time my body was so adjusted to it.
 
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