Valentine's Day Question

W

welshwitch

Guest
I'm loving these!!! keep 'em comin'!

One other quesiton: what qualities do you think someone needs to have to be able to "handle" CF and all its complications?

thanx
 
W

welshwitch

Guest
I'm loving these!!! keep 'em comin'!

One other quesiton: what qualities do you think someone needs to have to be able to "handle" CF and all its complications?

thanx
 
W

welshwitch

Guest
I'm loving these!!! keep 'em comin'!

One other quesiton: what qualities do you think someone needs to have to be able to "handle" CF and all its complications?

thanx
 
W

welshwitch

Guest
I'm loving these!!! keep 'em comin'!

One other quesiton: what qualities do you think someone needs to have to be able to "handle" CF and all its complications?

thanx
 
W

welshwitch

Guest
I'm loving these!!! keep 'em comin'!

One other quesiton: what qualities do you think someone needs to have to be able to "handle" CF and all its complications?

thanx
 

jamie6girl

New member
*how did you know s/he was "the one"? <br>
I knew he was the one because we have awesome chemistry. We were friends for a long time, but I always wondered what he would be like as a boyfriend. We got along so well.<br><br>
*has CF strengthened, or cause trouble in your relationship? <br>
I think CF has strengthened our relationship. He is very supportive and I think the hard times have brought us closer. It makes me appreciate him even more.<br><br>
*if you have CF, what have you been able to teach your partner and vice versa? <br>
I have taught him how to never take advantage of being able to breathe easy and I have taught him the beauty that comes along with CF.<br><br>
*how did you know that you did/did not want kids? <br>
We want kids one day, but that most likely is not a possiblity. We talk about it , even though it will probably never happen. Which is okay.<br><br>
*any tips for marriage/partnerships in which one person has CF? <br>
The partner that does not have CF needs to understand and learn how to be strong for the parter with CF. Also, understand and be there when the person with CF needs to have a tantrum or break down. Sometimes the emotional wear and tear of CF just becomes too much. Just be supportive of the other one and be there if the other one needs to cry.
 

jamie6girl

New member
*how did you know s/he was "the one"? <br>
I knew he was the one because we have awesome chemistry. We were friends for a long time, but I always wondered what he would be like as a boyfriend. We got along so well.<br><br>
*has CF strengthened, or cause trouble in your relationship? <br>
I think CF has strengthened our relationship. He is very supportive and I think the hard times have brought us closer. It makes me appreciate him even more.<br><br>
*if you have CF, what have you been able to teach your partner and vice versa? <br>
I have taught him how to never take advantage of being able to breathe easy and I have taught him the beauty that comes along with CF.<br><br>
*how did you know that you did/did not want kids? <br>
We want kids one day, but that most likely is not a possiblity. We talk about it , even though it will probably never happen. Which is okay.<br><br>
*any tips for marriage/partnerships in which one person has CF? <br>
The partner that does not have CF needs to understand and learn how to be strong for the parter with CF. Also, understand and be there when the person with CF needs to have a tantrum or break down. Sometimes the emotional wear and tear of CF just becomes too much. Just be supportive of the other one and be there if the other one needs to cry.
 

jamie6girl

New member
*how did you know s/he was "the one"? <br>
I knew he was the one because we have awesome chemistry. We were friends for a long time, but I always wondered what he would be like as a boyfriend. We got along so well.<br><br>
*has CF strengthened, or cause trouble in your relationship? <br>
I think CF has strengthened our relationship. He is very supportive and I think the hard times have brought us closer. It makes me appreciate him even more.<br><br>
*if you have CF, what have you been able to teach your partner and vice versa? <br>
I have taught him how to never take advantage of being able to breathe easy and I have taught him the beauty that comes along with CF.<br><br>
*how did you know that you did/did not want kids? <br>
We want kids one day, but that most likely is not a possiblity. We talk about it , even though it will probably never happen. Which is okay.<br><br>
*any tips for marriage/partnerships in which one person has CF? <br>
The partner that does not have CF needs to understand and learn how to be strong for the parter with CF. Also, understand and be there when the person with CF needs to have a tantrum or break down. Sometimes the emotional wear and tear of CF just becomes too much. Just be supportive of the other one and be there if the other one needs to cry.
 

jamie6girl

New member
*how did you know s/he was "the one"? <br>
I knew he was the one because we have awesome chemistry. We were friends for a long time, but I always wondered what he would be like as a boyfriend. We got along so well.<br><br>
*has CF strengthened, or cause trouble in your relationship? <br>
I think CF has strengthened our relationship. He is very supportive and I think the hard times have brought us closer. It makes me appreciate him even more.<br><br>
*if you have CF, what have you been able to teach your partner and vice versa? <br>
I have taught him how to never take advantage of being able to breathe easy and I have taught him the beauty that comes along with CF.<br><br>
*how did you know that you did/did not want kids? <br>
We want kids one day, but that most likely is not a possiblity. We talk about it , even though it will probably never happen. Which is okay.<br><br>
*any tips for marriage/partnerships in which one person has CF? <br>
The partner that does not have CF needs to understand and learn how to be strong for the parter with CF. Also, understand and be there when the person with CF needs to have a tantrum or break down. Sometimes the emotional wear and tear of CF just becomes too much. Just be supportive of the other one and be there if the other one needs to cry.
 

jamie6girl

New member
*how did you know s/he was "the one"? <br>
I knew he was the one because we have awesome chemistry. We were friends for a long time, but I always wondered what he would be like as a boyfriend. We got along so well.<br><br>
*has CF strengthened, or cause trouble in your relationship? <br>
I think CF has strengthened our relationship. He is very supportive and I think the hard times have brought us closer. It makes me appreciate him even more.<br><br>
*if you have CF, what have you been able to teach your partner and vice versa? <br>
I have taught him how to never take advantage of being able to breathe easy and I have taught him the beauty that comes along with CF.<br><br>
*how did you know that you did/did not want kids? <br>
We want kids one day, but that most likely is not a possiblity. We talk about it , even though it will probably never happen. Which is okay.<br><br>
*any tips for marriage/partnerships in which one person has CF? <br>
The partner that does not have CF needs to understand and learn how to be strong for the parter with CF. Also, understand and be there when the person with CF needs to have a tantrum or break down. Sometimes the emotional wear and tear of CF just becomes too much. Just be supportive of the other one and be there if the other one needs to cry.
 

lightNlife

New member
I knew Brad was the one for me because he asked me out already knowing that I had CF. We dated for a few months before the "L" word made its first appearance. Brad and I had talked quite a bit about how we wanted to reserve that word for the person we were going to spend our life with. The night that he first said it was August 9, 2001. We had just finished doing some Bible reading together, when Brad went to 1 Corinthians 13, which is the chapter that says "love is patient, love is kind...etc." He read through all the descriptions of what love is and then said "I love you." After that he went over to the piano and played a hymn called "The Servant Song." He sang "Lauren, let me be your servant, let me be as Christ to you, pray that I might have the strength to let you be my servant too. We are lovers on this journey, we are lovers on this road. Sent by God to help each other bear the burden and carry the load." I totally melted.

CF has strengthened our relationship, but interestingly enough it was Brad and not I who was hospitalized first when we were dating. He had a bad accident and since hospitals were no big deal to me, I was able to be the caregiver and ask the doctors questions that his family was too grief-stricken to ask. They were really impressed by how cool I was under pressure. That really improved their opinion of me.

I've been able to teach Brad that not every cough means we call the doctor. He has taught me that it's okay to sit back and let people do things for me. Early in our marriage I was still trying to be discrete and independent about CF, and in a way I shut him out of my CF world. Since then, I've learned to open up, and he has learned to ask questions. He is often more level-headed than I am and doesn't worry as much over the small things.

Ever since I was 14 I was pretty much decided that I didn't want kids. I didn't want to risk having kids with CF or carriers because I couldn't bear the thought of "causing" this disease to happen to someone. When Brad and I were dating we talked about having kids and maybe even adopting, but as my health declined we realized that it would be too much to try to be parents in addition to being husband and wife. Two miscarriages also tipped the scales in favor of us being a couple without kids. It's a decision my parents have always been supportive of, but it has taken (and is still taking) my in-laws some time to get used to.

My advice for people for whom CF is part of the relationship equation: don't live together first. It's unfair to both partners to always have a one foot out the door. Marriage is not just "advanced dating." If you as a CFer are not willing to share that part of yourself with someone, you're not ready to get married. If you're in the role of caregiver, don't date a person with CF just so you can feel like you're rescuing them. Both people in the couple should be whole and well-adjusted (mentally, spiritually, socially) or else the relationship is doomed.

Marriage is the most challenging and the most rewarding experience I've had in my life. I can't say enough good things about it. Being a wife is something I dreamed about from the time I was 14, and was wonderfully amazed by how God answered all my prayers for a spouse. Brad is above and beyond my expectations for a loving, caring, adoring, fun, silly, sweet, organized, thoughtful, creative husband. He is my first and only love.
 

lightNlife

New member
I knew Brad was the one for me because he asked me out already knowing that I had CF. We dated for a few months before the "L" word made its first appearance. Brad and I had talked quite a bit about how we wanted to reserve that word for the person we were going to spend our life with. The night that he first said it was August 9, 2001. We had just finished doing some Bible reading together, when Brad went to 1 Corinthians 13, which is the chapter that says "love is patient, love is kind...etc." He read through all the descriptions of what love is and then said "I love you." After that he went over to the piano and played a hymn called "The Servant Song." He sang "Lauren, let me be your servant, let me be as Christ to you, pray that I might have the strength to let you be my servant too. We are lovers on this journey, we are lovers on this road. Sent by God to help each other bear the burden and carry the load." I totally melted.

CF has strengthened our relationship, but interestingly enough it was Brad and not I who was hospitalized first when we were dating. He had a bad accident and since hospitals were no big deal to me, I was able to be the caregiver and ask the doctors questions that his family was too grief-stricken to ask. They were really impressed by how cool I was under pressure. That really improved their opinion of me.

I've been able to teach Brad that not every cough means we call the doctor. He has taught me that it's okay to sit back and let people do things for me. Early in our marriage I was still trying to be discrete and independent about CF, and in a way I shut him out of my CF world. Since then, I've learned to open up, and he has learned to ask questions. He is often more level-headed than I am and doesn't worry as much over the small things.

Ever since I was 14 I was pretty much decided that I didn't want kids. I didn't want to risk having kids with CF or carriers because I couldn't bear the thought of "causing" this disease to happen to someone. When Brad and I were dating we talked about having kids and maybe even adopting, but as my health declined we realized that it would be too much to try to be parents in addition to being husband and wife. Two miscarriages also tipped the scales in favor of us being a couple without kids. It's a decision my parents have always been supportive of, but it has taken (and is still taking) my in-laws some time to get used to.

My advice for people for whom CF is part of the relationship equation: don't live together first. It's unfair to both partners to always have a one foot out the door. Marriage is not just "advanced dating." If you as a CFer are not willing to share that part of yourself with someone, you're not ready to get married. If you're in the role of caregiver, don't date a person with CF just so you can feel like you're rescuing them. Both people in the couple should be whole and well-adjusted (mentally, spiritually, socially) or else the relationship is doomed.

Marriage is the most challenging and the most rewarding experience I've had in my life. I can't say enough good things about it. Being a wife is something I dreamed about from the time I was 14, and was wonderfully amazed by how God answered all my prayers for a spouse. Brad is above and beyond my expectations for a loving, caring, adoring, fun, silly, sweet, organized, thoughtful, creative husband. He is my first and only love.
 

lightNlife

New member
I knew Brad was the one for me because he asked me out already knowing that I had CF. We dated for a few months before the "L" word made its first appearance. Brad and I had talked quite a bit about how we wanted to reserve that word for the person we were going to spend our life with. The night that he first said it was August 9, 2001. We had just finished doing some Bible reading together, when Brad went to 1 Corinthians 13, which is the chapter that says "love is patient, love is kind...etc." He read through all the descriptions of what love is and then said "I love you." After that he went over to the piano and played a hymn called "The Servant Song." He sang "Lauren, let me be your servant, let me be as Christ to you, pray that I might have the strength to let you be my servant too. We are lovers on this journey, we are lovers on this road. Sent by God to help each other bear the burden and carry the load." I totally melted.

CF has strengthened our relationship, but interestingly enough it was Brad and not I who was hospitalized first when we were dating. He had a bad accident and since hospitals were no big deal to me, I was able to be the caregiver and ask the doctors questions that his family was too grief-stricken to ask. They were really impressed by how cool I was under pressure. That really improved their opinion of me.

I've been able to teach Brad that not every cough means we call the doctor. He has taught me that it's okay to sit back and let people do things for me. Early in our marriage I was still trying to be discrete and independent about CF, and in a way I shut him out of my CF world. Since then, I've learned to open up, and he has learned to ask questions. He is often more level-headed than I am and doesn't worry as much over the small things.

Ever since I was 14 I was pretty much decided that I didn't want kids. I didn't want to risk having kids with CF or carriers because I couldn't bear the thought of "causing" this disease to happen to someone. When Brad and I were dating we talked about having kids and maybe even adopting, but as my health declined we realized that it would be too much to try to be parents in addition to being husband and wife. Two miscarriages also tipped the scales in favor of us being a couple without kids. It's a decision my parents have always been supportive of, but it has taken (and is still taking) my in-laws some time to get used to.

My advice for people for whom CF is part of the relationship equation: don't live together first. It's unfair to both partners to always have a one foot out the door. Marriage is not just "advanced dating." If you as a CFer are not willing to share that part of yourself with someone, you're not ready to get married. If you're in the role of caregiver, don't date a person with CF just so you can feel like you're rescuing them. Both people in the couple should be whole and well-adjusted (mentally, spiritually, socially) or else the relationship is doomed.

Marriage is the most challenging and the most rewarding experience I've had in my life. I can't say enough good things about it. Being a wife is something I dreamed about from the time I was 14, and was wonderfully amazed by how God answered all my prayers for a spouse. Brad is above and beyond my expectations for a loving, caring, adoring, fun, silly, sweet, organized, thoughtful, creative husband. He is my first and only love.
 

lightNlife

New member
I knew Brad was the one for me because he asked me out already knowing that I had CF. We dated for a few months before the "L" word made its first appearance. Brad and I had talked quite a bit about how we wanted to reserve that word for the person we were going to spend our life with. The night that he first said it was August 9, 2001. We had just finished doing some Bible reading together, when Brad went to 1 Corinthians 13, which is the chapter that says "love is patient, love is kind...etc." He read through all the descriptions of what love is and then said "I love you." After that he went over to the piano and played a hymn called "The Servant Song." He sang "Lauren, let me be your servant, let me be as Christ to you, pray that I might have the strength to let you be my servant too. We are lovers on this journey, we are lovers on this road. Sent by God to help each other bear the burden and carry the load." I totally melted.

CF has strengthened our relationship, but interestingly enough it was Brad and not I who was hospitalized first when we were dating. He had a bad accident and since hospitals were no big deal to me, I was able to be the caregiver and ask the doctors questions that his family was too grief-stricken to ask. They were really impressed by how cool I was under pressure. That really improved their opinion of me.

I've been able to teach Brad that not every cough means we call the doctor. He has taught me that it's okay to sit back and let people do things for me. Early in our marriage I was still trying to be discrete and independent about CF, and in a way I shut him out of my CF world. Since then, I've learned to open up, and he has learned to ask questions. He is often more level-headed than I am and doesn't worry as much over the small things.

Ever since I was 14 I was pretty much decided that I didn't want kids. I didn't want to risk having kids with CF or carriers because I couldn't bear the thought of "causing" this disease to happen to someone. When Brad and I were dating we talked about having kids and maybe even adopting, but as my health declined we realized that it would be too much to try to be parents in addition to being husband and wife. Two miscarriages also tipped the scales in favor of us being a couple without kids. It's a decision my parents have always been supportive of, but it has taken (and is still taking) my in-laws some time to get used to.

My advice for people for whom CF is part of the relationship equation: don't live together first. It's unfair to both partners to always have a one foot out the door. Marriage is not just "advanced dating." If you as a CFer are not willing to share that part of yourself with someone, you're not ready to get married. If you're in the role of caregiver, don't date a person with CF just so you can feel like you're rescuing them. Both people in the couple should be whole and well-adjusted (mentally, spiritually, socially) or else the relationship is doomed.

Marriage is the most challenging and the most rewarding experience I've had in my life. I can't say enough good things about it. Being a wife is something I dreamed about from the time I was 14, and was wonderfully amazed by how God answered all my prayers for a spouse. Brad is above and beyond my expectations for a loving, caring, adoring, fun, silly, sweet, organized, thoughtful, creative husband. He is my first and only love.
 

lightNlife

New member
I knew Brad was the one for me because he asked me out already knowing that I had CF. We dated for a few months before the "L" word made its first appearance. Brad and I had talked quite a bit about how we wanted to reserve that word for the person we were going to spend our life with. The night that he first said it was August 9, 2001. We had just finished doing some Bible reading together, when Brad went to 1 Corinthians 13, which is the chapter that says "love is patient, love is kind...etc." He read through all the descriptions of what love is and then said "I love you." After that he went over to the piano and played a hymn called "The Servant Song." He sang "Lauren, let me be your servant, let me be as Christ to you, pray that I might have the strength to let you be my servant too. We are lovers on this journey, we are lovers on this road. Sent by God to help each other bear the burden and carry the load." I totally melted.

CF has strengthened our relationship, but interestingly enough it was Brad and not I who was hospitalized first when we were dating. He had a bad accident and since hospitals were no big deal to me, I was able to be the caregiver and ask the doctors questions that his family was too grief-stricken to ask. They were really impressed by how cool I was under pressure. That really improved their opinion of me.

I've been able to teach Brad that not every cough means we call the doctor. He has taught me that it's okay to sit back and let people do things for me. Early in our marriage I was still trying to be discrete and independent about CF, and in a way I shut him out of my CF world. Since then, I've learned to open up, and he has learned to ask questions. He is often more level-headed than I am and doesn't worry as much over the small things.

Ever since I was 14 I was pretty much decided that I didn't want kids. I didn't want to risk having kids with CF or carriers because I couldn't bear the thought of "causing" this disease to happen to someone. When Brad and I were dating we talked about having kids and maybe even adopting, but as my health declined we realized that it would be too much to try to be parents in addition to being husband and wife. Two miscarriages also tipped the scales in favor of us being a couple without kids. It's a decision my parents have always been supportive of, but it has taken (and is still taking) my in-laws some time to get used to.

My advice for people for whom CF is part of the relationship equation: don't live together first. It's unfair to both partners to always have a one foot out the door. Marriage is not just "advanced dating." If you as a CFer are not willing to share that part of yourself with someone, you're not ready to get married. If you're in the role of caregiver, don't date a person with CF just so you can feel like you're rescuing them. Both people in the couple should be whole and well-adjusted (mentally, spiritually, socially) or else the relationship is doomed.

Marriage is the most challenging and the most rewarding experience I've had in my life. I can't say enough good things about it. Being a wife is something I dreamed about from the time I was 14, and was wonderfully amazed by how God answered all my prayers for a spouse. Brad is above and beyond my expectations for a loving, caring, adoring, fun, silly, sweet, organized, thoughtful, creative husband. He is my first and only love.
 

condeclan06

New member
Okay here goes...........

*how did you know s/he was "the one"?

--I knew that Alex was the one about four months into our relationship. The man just grew on me. He was funny, sweet, cute, thoughtful, fun to be around, silly, energetic, and so loving. I told him that I had CF when we had known each other for less than two months. My theory, based on past experiences, was that I wanted to get his reaction early on before I got too attached. His reaction was pretty damn good! He had a lot of questions, but said that my disease was a part of who I am and he loved me for who I was.


*what types of things do you end of troubleshooting in a partnership where one person has CF?

--I think the biggest issue for us is/was communication. Even though he loves me, he has no idea what it's like to have CF. And I have no idea what it means to be in love with someone who has CF. We just always try to talk and be as open with discussions, feelings, and questions as we possibly can be. The more I open up to him and let him in to my mind and heart, the better we get along.


*has CF strengthened, or cause trouble in your relationship?

--I wouldn't say that me having CF has caused trouble, I would say it has put more stress on our relationship. With someone in a marriage having a disease, it is going to make things more difficult... it's inevitable. We have this whole other element to our relationship that most other people don't ever have to think about. Alex and I just try to make all of our additional challenges bring us closer instead of pushing us farther apart. It is really hard sometimes, but he is my rock....I know I can count on him for anything. Neither one of us is going anywhere (not by choice anyway), we're a team.


*if you have CF, what have you been able to teach your partner and vice versa?

--Hmmm, good question. I don't know if teaching is the right word, but he has learned a lot. I mean when I first told him, he hardly even knew what it was. Now, he knows my meds, my vitamins, my IV meds, how to administer meds, my limitations, and challenges. He also has a deeper understanding of how I came to be the person that I am. My experiences have definitely shaped the stubborn, sassy, outspoken, strong, but sometimes vulnerable person that I am. After being together for four years now, he really gets me. Alex has been there through the really good times and the really bad/scary times.

*how did you know that you did/did not want kids?

--We did always want to have kids. Alex and I both came from big families and wanted at least one child. I went to a clinic appointment on my 21st birthday (what a way to celebrate huh?) and the not-so-tactful doctor told me VERY bluntly and out of the blue that I WOULD NOT be able to have children. This was a total upset and shock for me. I was at the appointment alone and spend the whole drive home crying. But then.........I got PISSED off. I decided that no one was going to tell me what I can and cannot do. (This was 2 years before I even met my husband.) So when Alex and I got serious, we had the "kids' talk and both agreed that if I could handle it physically, we wanted to try and have kids at some point. We got engaged 3 months later (in June) and set a wedding date for the following February. That September, I found out I was 5 weeks pregnant. WOW, was that a shocker! We weren't even trying. I actually got kind of freaked out at first because it was so unexpected. Alex was absolutely thrilled, the man did cartwheels out of the room. Anyhoo, the pregnancy wasn't without it's challenges (as is my life), I got sick twice while pregnant and had to do PICC line meds. But my little man is going to be 2 years old in May. He's the light of our lives! Sorry that was so long!


*any tips for marriage/partnerships in which one person has CF?

--I know, as all of us do, the self-conscious feelings that come with having CF. You wonder if anyone will ever love you for who you are and want to deal with all that comes with our disease. I really do believe that there is someone amazing and special out there for everyone. I found my guy when I was least expecting or wanting it. No one is perfect... personality wise, health wise, sanity wise, lol. Alex and I just always try to be as open and honest as we can. Communication is very much key!
 

condeclan06

New member
Okay here goes...........

*how did you know s/he was "the one"?

--I knew that Alex was the one about four months into our relationship. The man just grew on me. He was funny, sweet, cute, thoughtful, fun to be around, silly, energetic, and so loving. I told him that I had CF when we had known each other for less than two months. My theory, based on past experiences, was that I wanted to get his reaction early on before I got too attached. His reaction was pretty damn good! He had a lot of questions, but said that my disease was a part of who I am and he loved me for who I was.


*what types of things do you end of troubleshooting in a partnership where one person has CF?

--I think the biggest issue for us is/was communication. Even though he loves me, he has no idea what it's like to have CF. And I have no idea what it means to be in love with someone who has CF. We just always try to talk and be as open with discussions, feelings, and questions as we possibly can be. The more I open up to him and let him in to my mind and heart, the better we get along.


*has CF strengthened, or cause trouble in your relationship?

--I wouldn't say that me having CF has caused trouble, I would say it has put more stress on our relationship. With someone in a marriage having a disease, it is going to make things more difficult... it's inevitable. We have this whole other element to our relationship that most other people don't ever have to think about. Alex and I just try to make all of our additional challenges bring us closer instead of pushing us farther apart. It is really hard sometimes, but he is my rock....I know I can count on him for anything. Neither one of us is going anywhere (not by choice anyway), we're a team.


*if you have CF, what have you been able to teach your partner and vice versa?

--Hmmm, good question. I don't know if teaching is the right word, but he has learned a lot. I mean when I first told him, he hardly even knew what it was. Now, he knows my meds, my vitamins, my IV meds, how to administer meds, my limitations, and challenges. He also has a deeper understanding of how I came to be the person that I am. My experiences have definitely shaped the stubborn, sassy, outspoken, strong, but sometimes vulnerable person that I am. After being together for four years now, he really gets me. Alex has been there through the really good times and the really bad/scary times.

*how did you know that you did/did not want kids?

--We did always want to have kids. Alex and I both came from big families and wanted at least one child. I went to a clinic appointment on my 21st birthday (what a way to celebrate huh?) and the not-so-tactful doctor told me VERY bluntly and out of the blue that I WOULD NOT be able to have children. This was a total upset and shock for me. I was at the appointment alone and spend the whole drive home crying. But then.........I got PISSED off. I decided that no one was going to tell me what I can and cannot do. (This was 2 years before I even met my husband.) So when Alex and I got serious, we had the "kids' talk and both agreed that if I could handle it physically, we wanted to try and have kids at some point. We got engaged 3 months later (in June) and set a wedding date for the following February. That September, I found out I was 5 weeks pregnant. WOW, was that a shocker! We weren't even trying. I actually got kind of freaked out at first because it was so unexpected. Alex was absolutely thrilled, the man did cartwheels out of the room. Anyhoo, the pregnancy wasn't without it's challenges (as is my life), I got sick twice while pregnant and had to do PICC line meds. But my little man is going to be 2 years old in May. He's the light of our lives! Sorry that was so long!


*any tips for marriage/partnerships in which one person has CF?

--I know, as all of us do, the self-conscious feelings that come with having CF. You wonder if anyone will ever love you for who you are and want to deal with all that comes with our disease. I really do believe that there is someone amazing and special out there for everyone. I found my guy when I was least expecting or wanting it. No one is perfect... personality wise, health wise, sanity wise, lol. Alex and I just always try to be as open and honest as we can. Communication is very much key!
 

condeclan06

New member
Okay here goes...........

*how did you know s/he was "the one"?

--I knew that Alex was the one about four months into our relationship. The man just grew on me. He was funny, sweet, cute, thoughtful, fun to be around, silly, energetic, and so loving. I told him that I had CF when we had known each other for less than two months. My theory, based on past experiences, was that I wanted to get his reaction early on before I got too attached. His reaction was pretty damn good! He had a lot of questions, but said that my disease was a part of who I am and he loved me for who I was.


*what types of things do you end of troubleshooting in a partnership where one person has CF?

--I think the biggest issue for us is/was communication. Even though he loves me, he has no idea what it's like to have CF. And I have no idea what it means to be in love with someone who has CF. We just always try to talk and be as open with discussions, feelings, and questions as we possibly can be. The more I open up to him and let him in to my mind and heart, the better we get along.


*has CF strengthened, or cause trouble in your relationship?

--I wouldn't say that me having CF has caused trouble, I would say it has put more stress on our relationship. With someone in a marriage having a disease, it is going to make things more difficult... it's inevitable. We have this whole other element to our relationship that most other people don't ever have to think about. Alex and I just try to make all of our additional challenges bring us closer instead of pushing us farther apart. It is really hard sometimes, but he is my rock....I know I can count on him for anything. Neither one of us is going anywhere (not by choice anyway), we're a team.


*if you have CF, what have you been able to teach your partner and vice versa?

--Hmmm, good question. I don't know if teaching is the right word, but he has learned a lot. I mean when I first told him, he hardly even knew what it was. Now, he knows my meds, my vitamins, my IV meds, how to administer meds, my limitations, and challenges. He also has a deeper understanding of how I came to be the person that I am. My experiences have definitely shaped the stubborn, sassy, outspoken, strong, but sometimes vulnerable person that I am. After being together for four years now, he really gets me. Alex has been there through the really good times and the really bad/scary times.

*how did you know that you did/did not want kids?

--We did always want to have kids. Alex and I both came from big families and wanted at least one child. I went to a clinic appointment on my 21st birthday (what a way to celebrate huh?) and the not-so-tactful doctor told me VERY bluntly and out of the blue that I WOULD NOT be able to have children. This was a total upset and shock for me. I was at the appointment alone and spend the whole drive home crying. But then.........I got PISSED off. I decided that no one was going to tell me what I can and cannot do. (This was 2 years before I even met my husband.) So when Alex and I got serious, we had the "kids' talk and both agreed that if I could handle it physically, we wanted to try and have kids at some point. We got engaged 3 months later (in June) and set a wedding date for the following February. That September, I found out I was 5 weeks pregnant. WOW, was that a shocker! We weren't even trying. I actually got kind of freaked out at first because it was so unexpected. Alex was absolutely thrilled, the man did cartwheels out of the room. Anyhoo, the pregnancy wasn't without it's challenges (as is my life), I got sick twice while pregnant and had to do PICC line meds. But my little man is going to be 2 years old in May. He's the light of our lives! Sorry that was so long!


*any tips for marriage/partnerships in which one person has CF?

--I know, as all of us do, the self-conscious feelings that come with having CF. You wonder if anyone will ever love you for who you are and want to deal with all that comes with our disease. I really do believe that there is someone amazing and special out there for everyone. I found my guy when I was least expecting or wanting it. No one is perfect... personality wise, health wise, sanity wise, lol. Alex and I just always try to be as open and honest as we can. Communication is very much key!
 

condeclan06

New member
Okay here goes...........

*how did you know s/he was "the one"?

--I knew that Alex was the one about four months into our relationship. The man just grew on me. He was funny, sweet, cute, thoughtful, fun to be around, silly, energetic, and so loving. I told him that I had CF when we had known each other for less than two months. My theory, based on past experiences, was that I wanted to get his reaction early on before I got too attached. His reaction was pretty damn good! He had a lot of questions, but said that my disease was a part of who I am and he loved me for who I was.


*what types of things do you end of troubleshooting in a partnership where one person has CF?

--I think the biggest issue for us is/was communication. Even though he loves me, he has no idea what it's like to have CF. And I have no idea what it means to be in love with someone who has CF. We just always try to talk and be as open with discussions, feelings, and questions as we possibly can be. The more I open up to him and let him in to my mind and heart, the better we get along.


*has CF strengthened, or cause trouble in your relationship?

--I wouldn't say that me having CF has caused trouble, I would say it has put more stress on our relationship. With someone in a marriage having a disease, it is going to make things more difficult... it's inevitable. We have this whole other element to our relationship that most other people don't ever have to think about. Alex and I just try to make all of our additional challenges bring us closer instead of pushing us farther apart. It is really hard sometimes, but he is my rock....I know I can count on him for anything. Neither one of us is going anywhere (not by choice anyway), we're a team.


*if you have CF, what have you been able to teach your partner and vice versa?

--Hmmm, good question. I don't know if teaching is the right word, but he has learned a lot. I mean when I first told him, he hardly even knew what it was. Now, he knows my meds, my vitamins, my IV meds, how to administer meds, my limitations, and challenges. He also has a deeper understanding of how I came to be the person that I am. My experiences have definitely shaped the stubborn, sassy, outspoken, strong, but sometimes vulnerable person that I am. After being together for four years now, he really gets me. Alex has been there through the really good times and the really bad/scary times.

*how did you know that you did/did not want kids?

--We did always want to have kids. Alex and I both came from big families and wanted at least one child. I went to a clinic appointment on my 21st birthday (what a way to celebrate huh?) and the not-so-tactful doctor told me VERY bluntly and out of the blue that I WOULD NOT be able to have children. This was a total upset and shock for me. I was at the appointment alone and spend the whole drive home crying. But then.........I got PISSED off. I decided that no one was going to tell me what I can and cannot do. (This was 2 years before I even met my husband.) So when Alex and I got serious, we had the "kids' talk and both agreed that if I could handle it physically, we wanted to try and have kids at some point. We got engaged 3 months later (in June) and set a wedding date for the following February. That September, I found out I was 5 weeks pregnant. WOW, was that a shocker! We weren't even trying. I actually got kind of freaked out at first because it was so unexpected. Alex was absolutely thrilled, the man did cartwheels out of the room. Anyhoo, the pregnancy wasn't without it's challenges (as is my life), I got sick twice while pregnant and had to do PICC line meds. But my little man is going to be 2 years old in May. He's the light of our lives! Sorry that was so long!


*any tips for marriage/partnerships in which one person has CF?

--I know, as all of us do, the self-conscious feelings that come with having CF. You wonder if anyone will ever love you for who you are and want to deal with all that comes with our disease. I really do believe that there is someone amazing and special out there for everyone. I found my guy when I was least expecting or wanting it. No one is perfect... personality wise, health wise, sanity wise, lol. Alex and I just always try to be as open and honest as we can. Communication is very much key!
 

condeclan06

New member
Okay here goes...........
<br />
<br />*how did you know s/he was "the one"?
<br />
<br />--I knew that Alex was the one about four months into our relationship. The man just grew on me. He was funny, sweet, cute, thoughtful, fun to be around, silly, energetic, and so loving. I told him that I had CF when we had known each other for less than two months. My theory, based on past experiences, was that I wanted to get his reaction early on before I got too attached. His reaction was pretty damn good! He had a lot of questions, but said that my disease was a part of who I am and he loved me for who I was.
<br />
<br />
<br />*what types of things do you end of troubleshooting in a partnership where one person has CF?
<br />
<br />--I think the biggest issue for us is/was communication. Even though he loves me, he has no idea what it's like to have CF. And I have no idea what it means to be in love with someone who has CF. We just always try to talk and be as open with discussions, feelings, and questions as we possibly can be. The more I open up to him and let him in to my mind and heart, the better we get along.
<br />
<br />
<br />*has CF strengthened, or cause trouble in your relationship?
<br />
<br />--I wouldn't say that me having CF has caused trouble, I would say it has put more stress on our relationship. With someone in a marriage having a disease, it is going to make things more difficult... it's inevitable. We have this whole other element to our relationship that most other people don't ever have to think about. Alex and I just try to make all of our additional challenges bring us closer instead of pushing us farther apart. It is really hard sometimes, but he is my rock....I know I can count on him for anything. Neither one of us is going anywhere (not by choice anyway), we're a team.
<br />
<br />
<br />*if you have CF, what have you been able to teach your partner and vice versa?
<br />
<br />--Hmmm, good question. I don't know if teaching is the right word, but he has learned a lot. I mean when I first told him, he hardly even knew what it was. Now, he knows my meds, my vitamins, my IV meds, how to administer meds, my limitations, and challenges. He also has a deeper understanding of how I came to be the person that I am. My experiences have definitely shaped the stubborn, sassy, outspoken, strong, but sometimes vulnerable person that I am. After being together for four years now, he really gets me. Alex has been there through the really good times and the really bad/scary times.
<br />
<br />*how did you know that you did/did not want kids?
<br />
<br />--We did always want to have kids. Alex and I both came from big families and wanted at least one child. I went to a clinic appointment on my 21st birthday (what a way to celebrate huh?) and the not-so-tactful doctor told me VERY bluntly and out of the blue that I WOULD NOT be able to have children. This was a total upset and shock for me. I was at the appointment alone and spend the whole drive home crying. But then.........I got PISSED off. I decided that no one was going to tell me what I can and cannot do. (This was 2 years before I even met my husband.) So when Alex and I got serious, we had the "kids' talk and both agreed that if I could handle it physically, we wanted to try and have kids at some point. We got engaged 3 months later (in June) and set a wedding date for the following February. That September, I found out I was 5 weeks pregnant. WOW, was that a shocker! We weren't even trying. I actually got kind of freaked out at first because it was so unexpected. Alex was absolutely thrilled, the man did cartwheels out of the room. Anyhoo, the pregnancy wasn't without it's challenges (as is my life), I got sick twice while pregnant and had to do PICC line meds. But my little man is going to be 2 years old in May. He's the light of our lives! Sorry that was so long!
<br />
<br />
<br />*any tips for marriage/partnerships in which one person has CF?
<br />
<br />--I know, as all of us do, the self-conscious feelings that come with having CF. You wonder if anyone will ever love you for who you are and want to deal with all that comes with our disease. I really do believe that there is someone amazing and special out there for everyone. I found my guy when I was least expecting or wanting it. No one is perfect... personality wise, health wise, sanity wise, lol. Alex and I just always try to be as open and honest as we can. Communication is very much key!
 
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