Vent - Cost of Meds

[fondreflections]

I agree. If this country was/is so rich, than it should be able to insure all its citizens with insurance. There isn't a single excuse as to why not.

I am married and sick to my stomach in regards to the amount of money it takes each and every month to simply keep me alive. I'm tired of watching my husband work 12 hour days to keep us afloat. My Social Security check is enough to pay about 4 bills. Forget about food. You are suppose to fast...

Not to mention, this country (U.S.) only looks at your income to see IF you qualify for assistance. THE HECK WITH THE COST OF YOUR MEDICATIONS!!! This angers me to no end. They are only looking at the better half of the story. All of us would qualify if the whole story was actually considered.

I always 'thought' I'd want a transplant; however, the more I find out about costs and possible benefits, the less I'm interested. My perspective is quite simple. I HAVE TO LIVE 40 YEARS WITH THESE CF AFFECTED LUNGS. SO I better get at least 20 QUALITY YEARS with new lungs!!! Anything less than that is unexceptable!!! PERIOD!!!

I would MUCH rather see our combined savings go to our children, if we ever had any. They will surely need it to get anywhere...Even if I left our savings to my spouse to use with whomever after me would be exceptable. I REFUSE TO WASTE MONEY ON SOMETHING WITH NO QUARANTEE. Reading about Pepe and others who have received nothing but additional struggles and/or passing ons just doesn't convince me with a reason to 'go for it'...

Edited to Add: <b>Besides...it's not like the tranplant centers give you a transplant while you are still decent. They wait until you are nearly dead. By then, your outcome is severly impaired. They collect money no matter what and ultimately win. If they only got paid per successful transplant, wouldn't that be nice??? I bet nearly no one would die waiting than??? I'm not talking about shortages either...That is a whole other issue...</b>

 

[fondreflections]

I agree. If this country was/is so rich, than it should be able to insure all its citizens with insurance. There isn't a single excuse as to why not.

I am married and sick to my stomach in regards to the amount of money it takes each and every month to simply keep me alive. I'm tired of watching my husband work 12 hour days to keep us afloat. My Social Security check is enough to pay about 4 bills. Forget about food. You are suppose to fast...

Not to mention, this country (U.S.) only looks at your income to see IF you qualify for assistance. THE HECK WITH THE COST OF YOUR MEDICATIONS!!! This angers me to no end. They are only looking at the better half of the story. All of us would qualify if the whole story was actually considered.

I always 'thought' I'd want a transplant; however, the more I find out about costs and possible benefits, the less I'm interested. My perspective is quite simple. I HAVE TO LIVE 40 YEARS WITH THESE CF AFFECTED LUNGS. SO I better get at least 20 QUALITY YEARS with new lungs!!! Anything less than that is unexceptable!!! PERIOD!!!

I would MUCH rather see our combined savings go to our children, if we ever had any. They will surely need it to get anywhere...Even if I left our savings to my spouse to use with whomever after me would be exceptable. I REFUSE TO WASTE MONEY ON SOMETHING WITH NO QUARANTEE. Reading about Pepe and others who have received nothing but additional struggles and/or passing ons just doesn't convince me with a reason to 'go for it'...

Edited to Add: <b>Besides...it's not like the tranplant centers give you a transplant while you are still decent. They wait until you are nearly dead. By then, your outcome is severly impaired. They collect money no matter what and ultimately win. If they only got paid per successful transplant, wouldn't that be nice??? I bet nearly no one would die waiting than??? I'm not talking about shortages either...That is a whole other issue...</b>

 

[fondreflections]

I agree. If this country was/is so rich, than it should be able to insure all its citizens with insurance. There isn't a single excuse as to why not.

I am married and sick to my stomach in regards to the amount of money it takes each and every month to simply keep me alive. I'm tired of watching my husband work 12 hour days to keep us afloat. My Social Security check is enough to pay about 4 bills. Forget about food. You are suppose to fast...

Not to mention, this country (U.S.) only looks at your income to see IF you qualify for assistance. THE HECK WITH THE COST OF YOUR MEDICATIONS!!! This angers me to no end. They are only looking at the better half of the story. All of us would qualify if the whole story was actually considered.

I always 'thought' I'd want a transplant; however, the more I find out about costs and possible benefits, the less I'm interested. My perspective is quite simple. I HAVE TO LIVE 40 YEARS WITH THESE CF AFFECTED LUNGS. SO I better get at least 20 QUALITY YEARS with new lungs!!! Anything less than that is unexceptable!!! PERIOD!!!

I would MUCH rather see our combined savings go to our children, if we ever had any. They will surely need it to get anywhere...Even if I left our savings to my spouse to use with whomever after me would be exceptable. I REFUSE TO WASTE MONEY ON SOMETHING WITH NO QUARANTEE. Reading about Pepe and others who have received nothing but additional struggles and/or passing ons just doesn't convince me with a reason to 'go for it'...

Edited to Add: <b>Besides...it's not like the tranplant centers give you a transplant while you are still decent. They wait until you are nearly dead. By then, your outcome is severly impaired. They collect money no matter what and ultimately win. If they only got paid per successful transplant, wouldn't that be nice??? I bet nearly no one would die waiting than??? I'm not talking about shortages either...That is a whole other issue...</b>

 

[fondreflections]

I agree. If this country was/is so rich, than it should be able to insure all its citizens with insurance. There isn't a single excuse as to why not.

I am married and sick to my stomach in regards to the amount of money it takes each and every month to simply keep me alive. I'm tired of watching my husband work 12 hour days to keep us afloat. My Social Security check is enough to pay about 4 bills. Forget about food. You are suppose to fast...

Not to mention, this country (U.S.) only looks at your income to see IF you qualify for assistance. THE HECK WITH THE COST OF YOUR MEDICATIONS!!! This angers me to no end. They are only looking at the better half of the story. All of us would qualify if the whole story was actually considered.

I always 'thought' I'd want a transplant; however, the more I find out about costs and possible benefits, the less I'm interested. My perspective is quite simple. I HAVE TO LIVE 40 YEARS WITH THESE CF AFFECTED LUNGS. SO I better get at least 20 QUALITY YEARS with new lungs!!! Anything less than that is unexceptable!!! PERIOD!!!

I would MUCH rather see our combined savings go to our children, if we ever had any. They will surely need it to get anywhere...Even if I left our savings to my spouse to use with whomever after me would be exceptable. I REFUSE TO WASTE MONEY ON SOMETHING WITH NO QUARANTEE. Reading about Pepe and others who have received nothing but additional struggles and/or passing ons just doesn't convince me with a reason to 'go for it'...

Edited to Add: <b>Besides...it's not like the tranplant centers give you a transplant while you are still decent. They wait until you are nearly dead. By then, your outcome is severly impaired. They collect money no matter what and ultimately win. If they only got paid per successful transplant, wouldn't that be nice??? I bet nearly no one would die waiting than??? I'm not talking about shortages either...That is a whole other issue...</b>

 

[fondreflections]

I agree. If this country was/is so rich, than it should be able to insure all its citizens with insurance. There isn't a single excuse as to why not.
<br />
<br />I am married and sick to my stomach in regards to the amount of money it takes each and every month to simply keep me alive. I'm tired of watching my husband work 12 hour days to keep us afloat. My Social Security check is enough to pay about 4 bills. Forget about food. You are suppose to fast...
<br />
<br />Not to mention, this country (U.S.) only looks at your income to see IF you qualify for assistance. THE HECK WITH THE COST OF YOUR MEDICATIONS!!! This angers me to no end. They are only looking at the better half of the story. All of us would qualify if the whole story was actually considered.
<br />
<br />I always 'thought' I'd want a transplant; however, the more I find out about costs and possible benefits, the less I'm interested. My perspective is quite simple. I HAVE TO LIVE 40 YEARS WITH THESE CF AFFECTED LUNGS. SO I better get at least 20 QUALITY YEARS with new lungs!!! Anything less than that is unexceptable!!! PERIOD!!!
<br />
<br />I would MUCH rather see our combined savings go to our children, if we ever had any. They will surely need it to get anywhere...Even if I left our savings to my spouse to use with whomever after me would be exceptable. I REFUSE TO WASTE MONEY ON SOMETHING WITH NO QUARANTEE. Reading about Pepe and others who have received nothing but additional struggles and/or passing ons just doesn't convince me with a reason to 'go for it'...
<br />
<br />Edited to Add: <b>Besides...it's not like the tranplant centers give you a transplant while you are still decent. They wait until you are nearly dead. By then, your outcome is severly impaired. They collect money no matter what and ultimately win. If they only got paid per successful transplant, wouldn't that be nice??? I bet nearly no one would die waiting than??? I'm not talking about shortages either...That is a whole other issue...</b>

 

[smccanl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Solo</b></i>

The US actually has 2 healthcare systems in place, 1 for the people who are born with a silver spoon in their mouths, where money is no hurdle and they have a plethora of options for treating symptoms, and another whose healthcare is slim pickens. The fact is that enhanced treatments are out of reach for a lot due to lack of insurance coverage. </end quote></div>

I am blessed right now with my husband's health insurance, and facing the realization that once this CF diagnosis is finalized insurance will be a major issue the rest of my life. You are right that there are two healthcare systems in place, but the lucky ones are on shaky ground. Job security isn't very good, and without a job, you only have insurance if you can afford Cobra and while it is available. Plus, my previously wonderful insurance is starting to turn down more and more claims while increasing their copays. I see it deteriorating every year, and it's scary.

I thank God every day for the health insurance I have, and the only reason I wouldn't say I was "born with a silver spoon in my mouth" is because I know that spoon can fall out any second.

We would ALL benefit from a better healthcare system.

Be Well,
Sarah (32 & awaiting first visit to CF clinic)

 

[smccanl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Solo</b></i>

The US actually has 2 healthcare systems in place, 1 for the people who are born with a silver spoon in their mouths, where money is no hurdle and they have a plethora of options for treating symptoms, and another whose healthcare is slim pickens. The fact is that enhanced treatments are out of reach for a lot due to lack of insurance coverage. </end quote></div>

I am blessed right now with my husband's health insurance, and facing the realization that once this CF diagnosis is finalized insurance will be a major issue the rest of my life. You are right that there are two healthcare systems in place, but the lucky ones are on shaky ground. Job security isn't very good, and without a job, you only have insurance if you can afford Cobra and while it is available. Plus, my previously wonderful insurance is starting to turn down more and more claims while increasing their copays. I see it deteriorating every year, and it's scary.

I thank God every day for the health insurance I have, and the only reason I wouldn't say I was "born with a silver spoon in my mouth" is because I know that spoon can fall out any second.

We would ALL benefit from a better healthcare system.

Be Well,
Sarah (32 & awaiting first visit to CF clinic)

 

[smccanl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Solo</b></i>

The US actually has 2 healthcare systems in place, 1 for the people who are born with a silver spoon in their mouths, where money is no hurdle and they have a plethora of options for treating symptoms, and another whose healthcare is slim pickens. The fact is that enhanced treatments are out of reach for a lot due to lack of insurance coverage. </end quote></div>

I am blessed right now with my husband's health insurance, and facing the realization that once this CF diagnosis is finalized insurance will be a major issue the rest of my life. You are right that there are two healthcare systems in place, but the lucky ones are on shaky ground. Job security isn't very good, and without a job, you only have insurance if you can afford Cobra and while it is available. Plus, my previously wonderful insurance is starting to turn down more and more claims while increasing their copays. I see it deteriorating every year, and it's scary.

I thank God every day for the health insurance I have, and the only reason I wouldn't say I was "born with a silver spoon in my mouth" is because I know that spoon can fall out any second.

We would ALL benefit from a better healthcare system.

Be Well,
Sarah (32 & awaiting first visit to CF clinic)

 

[smccanl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Solo</b></i>

The US actually has 2 healthcare systems in place, 1 for the people who are born with a silver spoon in their mouths, where money is no hurdle and they have a plethora of options for treating symptoms, and another whose healthcare is slim pickens. The fact is that enhanced treatments are out of reach for a lot due to lack of insurance coverage. </end quote>

I am blessed right now with my husband's health insurance, and facing the realization that once this CF diagnosis is finalized insurance will be a major issue the rest of my life. You are right that there are two healthcare systems in place, but the lucky ones are on shaky ground. Job security isn't very good, and without a job, you only have insurance if you can afford Cobra and while it is available. Plus, my previously wonderful insurance is starting to turn down more and more claims while increasing their copays. I see it deteriorating every year, and it's scary.

I thank God every day for the health insurance I have, and the only reason I wouldn't say I was "born with a silver spoon in my mouth" is because I know that spoon can fall out any second.

We would ALL benefit from a better healthcare system.

Be Well,
Sarah (32 & awaiting first visit to CF clinic)

 

[smccanl]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Solo</b></i>
<br />
<br />The US actually has 2 healthcare systems in place, 1 for the people who are born with a silver spoon in their mouths, where money is no hurdle and they have a plethora of options for treating symptoms, and another whose healthcare is slim pickens. The fact is that enhanced treatments are out of reach for a lot due to lack of insurance coverage. </end quote>
<br />
<br />I am blessed right now with my husband's health insurance, and facing the realization that once this CF diagnosis is finalized insurance will be a major issue the rest of my life. You are right that there are two healthcare systems in place, but the lucky ones are on shaky ground. Job security isn't very good, and without a job, you only have insurance if you can afford Cobra and while it is available. Plus, my previously wonderful insurance is starting to turn down more and more claims while increasing their copays. I see it deteriorating every year, and it's scary.
<br />
<br />I thank God every day for the health insurance I have, and the only reason I wouldn't say I was "born with a silver spoon in my mouth" is because I know that spoon can fall out any second.
<br />
<br />We would ALL benefit from a better healthcare system.
<br />
<br />Be Well,
<br />Sarah (32 & awaiting first visit to CF clinic)
<br />
<br />
<br />