What a beautiful baby!!!! I'm not sure about the enzymes causing your baby's mouth to bleed. I was told that the enzyme beads can cause irritation in the baby's mouth if they are left inside and not swallowed down but I think it is from repeatedly doing that not one incident. Hopefully I can help. I breastfed my daughter through two abdominal surgerys. She was 5 days old from her first surgery due to bowel obstruction from meconium ileus. I pumped for 2 weeks straight while she couldn't take anything by mouth. The docs and nurses wanted me to give her a bottle of breastmilk when she started eating at 13 days old. We gave her 5ml of breastmilk at a time to start by bottle(or syringe I can't remember). She tolerated that ok, they wanted me to give her botltes of breastmilk to measure everything but the bottle confused her, even the surgeon agreed to just breastfeed. We just watched her poops. I would give her enzymes on the inside of her cheek and pop her on the breast and they would wash down with the breastmilk. We did this for several months maybe til she was 7 months or so and she nver had a problem with it. I breastfed her til she was 3 1/2 years old. I you have any questions please ask because not all docs know about bf and the tricks for the babies to nurse. Good luck with your beautiful baby<img src="i/expressions/face-icon-small-smile.gif" border="0">
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Very confused new mom...
- Thread starter KerbyS
- Start date
What a beautiful baby!!!! I'm not sure about the enzymes causing your baby's mouth to bleed. I was told that the enzyme beads can cause irritation in the baby's mouth if they are left inside and not swallowed down but I think it is from repeatedly doing that not one incident. Hopefully I can help. I breastfed my daughter through two abdominal surgerys. She was 5 days old from her first surgery due to bowel obstruction from meconium ileus. I pumped for 2 weeks straight while she couldn't take anything by mouth. The docs and nurses wanted me to give her a bottle of breastmilk when she started eating at 13 days old. We gave her 5ml of breastmilk at a time to start by bottle(or syringe I can't remember). She tolerated that ok, they wanted me to give her botltes of breastmilk to measure everything but the bottle confused her, even the surgeon agreed to just breastfeed. We just watched her poops. I would give her enzymes on the inside of her cheek and pop her on the breast and they would wash down with the breastmilk. We did this for several months maybe til she was 7 months or so and she nver had a problem with it. I breastfed her til she was 3 1/2 years old. I you have any questions please ask because not all docs know about bf and the tricks for the babies to nurse. Good luck with your beautiful baby<img src="i/expressions/face-icon-small-smile.gif" border="0">
What a beautiful baby!!!! I'm not sure about the enzymes causing your baby's mouth to bleed. I was told that the enzyme beads can cause irritation in the baby's mouth if they are left inside and not swallowed down but I think it is from repeatedly doing that not one incident. Hopefully I can help. I breastfed my daughter through two abdominal surgerys. She was 5 days old from her first surgery due to bowel obstruction from meconium ileus. I pumped for 2 weeks straight while she couldn't take anything by mouth. The docs and nurses wanted me to give her a bottle of breastmilk when she started eating at 13 days old. We gave her 5ml of breastmilk at a time to start by bottle(or syringe I can't remember). She tolerated that ok, they wanted me to give her botltes of breastmilk to measure everything but the bottle confused her, even the surgeon agreed to just breastfeed. We just watched her poops. I would give her enzymes on the inside of her cheek and pop her on the breast and they would wash down with the breastmilk. We did this for several months maybe til she was 7 months or so and she nver had a problem with it. I breastfed her til she was 3 1/2 years old. I you have any questions please ask because not all docs know about bf and the tricks for the babies to nurse. Good luck with your beautiful baby<img src="i/expressions/face-icon-small-smile.gif" border="0">
What a beautiful baby!!!! I'm not sure about the enzymes causing your baby's mouth to bleed. I was told that the enzyme beads can cause irritation in the baby's mouth if they are left inside and not swallowed down but I think it is from repeatedly doing that not one incident. Hopefully I can help. I breastfed my daughter through two abdominal surgerys. She was 5 days old from her first surgery due to bowel obstruction from meconium ileus. I pumped for 2 weeks straight while she couldn't take anything by mouth. The docs and nurses wanted me to give her a bottle of breastmilk when she started eating at 13 days old. We gave her 5ml of breastmilk at a time to start by bottle(or syringe I can't remember). She tolerated that ok, they wanted me to give her botltes of breastmilk to measure everything but the bottle confused her, even the surgeon agreed to just breastfeed. We just watched her poops. I would give her enzymes on the inside of her cheek and pop her on the breast and they would wash down with the breastmilk. We did this for several months maybe til she was 7 months or so and she nver had a problem with it. I breastfed her til she was 3 1/2 years old. I you have any questions please ask because not all docs know about bf and the tricks for the babies to nurse. Good luck with your beautiful baby<img src="i/expressions/face-icon-small-smile.gif" border="0">
What a beautiful baby!!!! I'm not sure about the enzymes causing your baby's mouth to bleed. I was told that the enzyme beads can cause irritation in the baby's mouth if they are left inside and not swallowed down but I think it is from repeatedly doing that not one incident. Hopefully I can help. I breastfed my daughter through two abdominal surgerys. She was 5 days old from her first surgery due to bowel obstruction from meconium ileus. I pumped for 2 weeks straight while she couldn't take anything by mouth. The docs and nurses wanted me to give her a bottle of breastmilk when she started eating at 13 days old. We gave her 5ml of breastmilk at a time to start by bottle(or syringe I can't remember). She tolerated that ok, they wanted me to give her botltes of breastmilk to measure everything but the bottle confused her, even the surgeon agreed to just breastfeed. We just watched her poops. I would give her enzymes on the inside of her cheek and pop her on the breast and they would wash down with the breastmilk. We did this for several months maybe til she was 7 months or so and she nver had a problem with it. I breastfed her til she was 3 1/2 years old. I you have any questions please ask because not all docs know about bf and the tricks for the babies to nurse. Good luck with your beautiful baby<img src="i/expressions/face-icon-small-smile.gif" border="0">
What a cuties. Is she smiling? <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
What a cuties. Is she smiling? <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
What a cuties. Is she smiling? <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
What a cuties. Is she smiling? <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
What a cuties. Is she smiling? <img src="i/expressions/face-icon-small-smile.gif" border="0">
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
DS was born with a bowel obstruction caused by meconium illeus and it took awhile before we were able to feed him formula. We'd start off doing okay and then a few days later, his feedings would slow down and he'd start "spitting up". Turns out he developed an infection -- picked up something in the NICU and needed IV antibiotics. He also had issues with reflux and started zantac. Maybe her intestinal tract just needs a little more time to adjust -- the surgeon, neonatologist should be able to give you more info.
When the doctor comes thru on rounds today ask about the blood issue -- he/she would be able to look in her mouth and see if there were any sores caused by enzymes, see if maybe the tender tissue on the roof of her mouth might have gotten scraped some how.
S
sdelorenzo
Guest
What a precious baby! Sorry to hear about her diagnosis and what she and you guys are going through. It will get better and she will be at home soon and life will get "to normal." I have been through a very similar circumstance with my two. My daughter was diagnosed at 5 weeks of age due to failure to thrive. She started to vomit for about 4 months straight. She ended up on the tube feeding during that time because of the vomiting. Although you are very new to this, it is important for you to understand and I think you already understand some of this because you are questioning the tube feeding, but you play an important role in decision making for your daughter. Many of what is being done for your daughter are just results of educated guesses by the dieticians and doctors. They make mistakes, trust me. I was told that no my daughter couldn't have a milk allergy so I believed them. Five months later a test of her intestines showed this was not the case. We switched formulas and weeks later she started to drink again and stopped throwing up. Out came the feeding tube. But six years later we are still dealing with the early mistakes of my daughter's misdiagnosis of her milk allergy and thus she missed out on eating well from two months until she was seven months. Every time my daughter had food poured into her it hurt, so she never associated food with a good feeling. So I also agree with the moms that the enzymes are not causing the blood. She should be taking Creon or Ultrase and this should not happen. Even if she did bleed a tiny bit she shouldn't be on tube feedings because of it. If she is on a powder enzyme, than yes it could cause the bleeding. It is very important even at her young age to establish good feeding techniques. So I would definitely encourage you to breast feed. They say you can't breast feed because you have to measure how much she is eating. Well there is a solution to that and shame on the dietican for not telling you. They have baby scales that you can set your baby on before she eats and then measure her again after she eats. I did that for 3 months with my son. Have you tried the nipple shield? It worked well for my second child who also has cf. He was born with meconium illeus and did not eat for weeks too. Then he wouldn't latch on until I used the shield for a few days. So I would encourage you to speak to the nurse, dr and dieticians and encourage them to work with you. Try and breastfeed, bottle feed what have you, but she needs to learn to eat. I do have more to add but I will stop. You can e-mail me at sdelorenzo@sbcglobal.net.
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
S
sdelorenzo
Guest
What a precious baby! Sorry to hear about her diagnosis and what she and you guys are going through. It will get better and she will be at home soon and life will get "to normal." I have been through a very similar circumstance with my two. My daughter was diagnosed at 5 weeks of age due to failure to thrive. She started to vomit for about 4 months straight. She ended up on the tube feeding during that time because of the vomiting. Although you are very new to this, it is important for you to understand and I think you already understand some of this because you are questioning the tube feeding, but you play an important role in decision making for your daughter. Many of what is being done for your daughter are just results of educated guesses by the dieticians and doctors. They make mistakes, trust me. I was told that no my daughter couldn't have a milk allergy so I believed them. Five months later a test of her intestines showed this was not the case. We switched formulas and weeks later she started to drink again and stopped throwing up. Out came the feeding tube. But six years later we are still dealing with the early mistakes of my daughter's misdiagnosis of her milk allergy and thus she missed out on eating well from two months until she was seven months. Every time my daughter had food poured into her it hurt, so she never associated food with a good feeling. So I also agree with the moms that the enzymes are not causing the blood. She should be taking Creon or Ultrase and this should not happen. Even if she did bleed a tiny bit she shouldn't be on tube feedings because of it. If she is on a powder enzyme, than yes it could cause the bleeding. It is very important even at her young age to establish good feeding techniques. So I would definitely encourage you to breast feed. They say you can't breast feed because you have to measure how much she is eating. Well there is a solution to that and shame on the dietican for not telling you. They have baby scales that you can set your baby on before she eats and then measure her again after she eats. I did that for 3 months with my son. Have you tried the nipple shield? It worked well for my second child who also has cf. He was born with meconium illeus and did not eat for weeks too. Then he wouldn't latch on until I used the shield for a few days. So I would encourage you to speak to the nurse, dr and dieticians and encourage them to work with you. Try and breastfeed, bottle feed what have you, but she needs to learn to eat. I do have more to add but I will stop. You can e-mail me at sdelorenzo@sbcglobal.net.
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
S
sdelorenzo
Guest
What a precious baby! Sorry to hear about her diagnosis and what she and you guys are going through. It will get better and she will be at home soon and life will get "to normal." I have been through a very similar circumstance with my two. My daughter was diagnosed at 5 weeks of age due to failure to thrive. She started to vomit for about 4 months straight. She ended up on the tube feeding during that time because of the vomiting. Although you are very new to this, it is important for you to understand and I think you already understand some of this because you are questioning the tube feeding, but you play an important role in decision making for your daughter. Many of what is being done for your daughter are just results of educated guesses by the dieticians and doctors. They make mistakes, trust me. I was told that no my daughter couldn't have a milk allergy so I believed them. Five months later a test of her intestines showed this was not the case. We switched formulas and weeks later she started to drink again and stopped throwing up. Out came the feeding tube. But six years later we are still dealing with the early mistakes of my daughter's misdiagnosis of her milk allergy and thus she missed out on eating well from two months until she was seven months. Every time my daughter had food poured into her it hurt, so she never associated food with a good feeling. So I also agree with the moms that the enzymes are not causing the blood. She should be taking Creon or Ultrase and this should not happen. Even if she did bleed a tiny bit she shouldn't be on tube feedings because of it. If she is on a powder enzyme, than yes it could cause the bleeding. It is very important even at her young age to establish good feeding techniques. So I would definitely encourage you to breast feed. They say you can't breast feed because you have to measure how much she is eating. Well there is a solution to that and shame on the dietican for not telling you. They have baby scales that you can set your baby on before she eats and then measure her again after she eats. I did that for 3 months with my son. Have you tried the nipple shield? It worked well for my second child who also has cf. He was born with meconium illeus and did not eat for weeks too. Then he wouldn't latch on until I used the shield for a few days. So I would encourage you to speak to the nurse, dr and dieticians and encourage them to work with you. Try and breastfeed, bottle feed what have you, but she needs to learn to eat. I do have more to add but I will stop. You can e-mail me at sdelorenzo@sbcglobal.net.
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
S
sdelorenzo
Guest
What a precious baby! Sorry to hear about her diagnosis and what she and you guys are going through. It will get better and she will be at home soon and life will get "to normal." I have been through a very similar circumstance with my two. My daughter was diagnosed at 5 weeks of age due to failure to thrive. She started to vomit for about 4 months straight. She ended up on the tube feeding during that time because of the vomiting. Although you are very new to this, it is important for you to understand and I think you already understand some of this because you are questioning the tube feeding, but you play an important role in decision making for your daughter. Many of what is being done for your daughter are just results of educated guesses by the dieticians and doctors. They make mistakes, trust me. I was told that no my daughter couldn't have a milk allergy so I believed them. Five months later a test of her intestines showed this was not the case. We switched formulas and weeks later she started to drink again and stopped throwing up. Out came the feeding tube. But six years later we are still dealing with the early mistakes of my daughter's misdiagnosis of her milk allergy and thus she missed out on eating well from two months until she was seven months. Every time my daughter had food poured into her it hurt, so she never associated food with a good feeling. So I also agree with the moms that the enzymes are not causing the blood. She should be taking Creon or Ultrase and this should not happen. Even if she did bleed a tiny bit she shouldn't be on tube feedings because of it. If she is on a powder enzyme, than yes it could cause the bleeding. It is very important even at her young age to establish good feeding techniques. So I would definitely encourage you to breast feed. They say you can't breast feed because you have to measure how much she is eating. Well there is a solution to that and shame on the dietican for not telling you. They have baby scales that you can set your baby on before she eats and then measure her again after she eats. I did that for 3 months with my son. Have you tried the nipple shield? It worked well for my second child who also has cf. He was born with meconium illeus and did not eat for weeks too. Then he wouldn't latch on until I used the shield for a few days. So I would encourage you to speak to the nurse, dr and dieticians and encourage them to work with you. Try and breastfeed, bottle feed what have you, but she needs to learn to eat. I do have more to add but I will stop. You can e-mail me at sdelorenzo@sbcglobal.net.
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
S
sdelorenzo
Guest
What a precious baby! Sorry to hear about her diagnosis and what she and you guys are going through. It will get better and she will be at home soon and life will get "to normal." I have been through a very similar circumstance with my two. My daughter was diagnosed at 5 weeks of age due to failure to thrive. She started to vomit for about 4 months straight. She ended up on the tube feeding during that time because of the vomiting. Although you are very new to this, it is important for you to understand and I think you already understand some of this because you are questioning the tube feeding, but you play an important role in decision making for your daughter. Many of what is being done for your daughter are just results of educated guesses by the dieticians and doctors. They make mistakes, trust me. I was told that no my daughter couldn't have a milk allergy so I believed them. Five months later a test of her intestines showed this was not the case. We switched formulas and weeks later she started to drink again and stopped throwing up. Out came the feeding tube. But six years later we are still dealing with the early mistakes of my daughter's misdiagnosis of her milk allergy and thus she missed out on eating well from two months until she was seven months. Every time my daughter had food poured into her it hurt, so she never associated food with a good feeling. So I also agree with the moms that the enzymes are not causing the blood. She should be taking Creon or Ultrase and this should not happen. Even if she did bleed a tiny bit she shouldn't be on tube feedings because of it. If she is on a powder enzyme, than yes it could cause the bleeding. It is very important even at her young age to establish good feeding techniques. So I would definitely encourage you to breast feed. They say you can't breast feed because you have to measure how much she is eating. Well there is a solution to that and shame on the dietican for not telling you. They have baby scales that you can set your baby on before she eats and then measure her again after she eats. I did that for 3 months with my son. Have you tried the nipple shield? It worked well for my second child who also has cf. He was born with meconium illeus and did not eat for weeks too. Then he wouldn't latch on until I used the shield for a few days. So I would encourage you to speak to the nurse, dr and dieticians and encourage them to work with you. Try and breastfeed, bottle feed what have you, but she needs to learn to eat. I do have more to add but I will stop. You can e-mail me at sdelorenzo@sbcglobal.net.
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
Sharon, mom of Sophia, 6 and Jack, 4 both precious and also have cf
SARAHSARH253
New member
Hi there, My name is Sarah...I have been going through what you may be going through since my son was born. He was born Aug 17th this year. He had problems passing his first BMs so they kept him in the nursery. After 3 days they transported him to a level 3 nicu where he had 2 surgerys for a bowel ubstruction. We were so excited to finaly being home on Sept 25 when his test came back positive for CF. I was soo pissed and so angry. When I first got pregnant back in Jan...I came back positive for being a CF carrier, and my husband came back NOT. So, we were relieved and enjoyed the pregnancy. Then after his birth we were asked over and over again, and told them we had both been tested....Turns out not any of the doctors or surgeons new that some people don't show up in the common CF test. (Being my husband, now they are running another test on him that tracks more mutations of CF). Anyway, so for the last two weeks almost we have been home and I have been giving my baby enzymes with a coat of applesauce..I haven't seen any blood...I did however after his last tummy reconnection surgery......I just want to tell you...Your not alone...I'm new to this too.....and very scared<img src="i/expressions/face-icon-small-smile.gif" border="0">
SARAHSARH253
New member
Hi there, My name is Sarah...I have been going through what you may be going through since my son was born. He was born Aug 17th this year. He had problems passing his first BMs so they kept him in the nursery. After 3 days they transported him to a level 3 nicu where he had 2 surgerys for a bowel ubstruction. We were so excited to finaly being home on Sept 25 when his test came back positive for CF. I was soo pissed and so angry. When I first got pregnant back in Jan...I came back positive for being a CF carrier, and my husband came back NOT. So, we were relieved and enjoyed the pregnancy. Then after his birth we were asked over and over again, and told them we had both been tested....Turns out not any of the doctors or surgeons new that some people don't show up in the common CF test. (Being my husband, now they are running another test on him that tracks more mutations of CF). Anyway, so for the last two weeks almost we have been home and I have been giving my baby enzymes with a coat of applesauce..I haven't seen any blood...I did however after his last tummy reconnection surgery......I just want to tell you...Your not alone...I'm new to this too.....and very scared<img src="i/expressions/face-icon-small-smile.gif" border="0">
SARAHSARH253
New member
Hi there, My name is Sarah...I have been going through what you may be going through since my son was born. He was born Aug 17th this year. He had problems passing his first BMs so they kept him in the nursery. After 3 days they transported him to a level 3 nicu where he had 2 surgerys for a bowel ubstruction. We were so excited to finaly being home on Sept 25 when his test came back positive for CF. I was soo pissed and so angry. When I first got pregnant back in Jan...I came back positive for being a CF carrier, and my husband came back NOT. So, we were relieved and enjoyed the pregnancy. Then after his birth we were asked over and over again, and told them we had both been tested....Turns out not any of the doctors or surgeons new that some people don't show up in the common CF test. (Being my husband, now they are running another test on him that tracks more mutations of CF). Anyway, so for the last two weeks almost we have been home and I have been giving my baby enzymes with a coat of applesauce..I haven't seen any blood...I did however after his last tummy reconnection surgery......I just want to tell you...Your not alone...I'm new to this too.....and very scared<img src="i/expressions/face-icon-small-smile.gif" border="0">
SARAHSARH253
New member
Hi there, My name is Sarah...I have been going through what you may be going through since my son was born. He was born Aug 17th this year. He had problems passing his first BMs so they kept him in the nursery. After 3 days they transported him to a level 3 nicu where he had 2 surgerys for a bowel ubstruction. We were so excited to finaly being home on Sept 25 when his test came back positive for CF. I was soo pissed and so angry. When I first got pregnant back in Jan...I came back positive for being a CF carrier, and my husband came back NOT. So, we were relieved and enjoyed the pregnancy. Then after his birth we were asked over and over again, and told them we had both been tested....Turns out not any of the doctors or surgeons new that some people don't show up in the common CF test. (Being my husband, now they are running another test on him that tracks more mutations of CF). Anyway, so for the last two weeks almost we have been home and I have been giving my baby enzymes with a coat of applesauce..I haven't seen any blood...I did however after his last tummy reconnection surgery......I just want to tell you...Your not alone...I'm new to this too.....and very scared<img src="i/expressions/face-icon-small-smile.gif" border="0">
SARAHSARH253
New member
Hi there, My name is Sarah...I have been going through what you may be going through since my son was born. He was born Aug 17th this year. He had problems passing his first BMs so they kept him in the nursery. After 3 days they transported him to a level 3 nicu where he had 2 surgerys for a bowel ubstruction. We were so excited to finaly being home on Sept 25 when his test came back positive for CF. I was soo pissed and so angry. When I first got pregnant back in Jan...I came back positive for being a CF carrier, and my husband came back NOT. So, we were relieved and enjoyed the pregnancy. Then after his birth we were asked over and over again, and told them we had both been tested....Turns out not any of the doctors or surgeons new that some people don't show up in the common CF test. (Being my husband, now they are running another test on him that tracks more mutations of CF). Anyway, so for the last two weeks almost we have been home and I have been giving my baby enzymes with a coat of applesauce..I haven't seen any blood...I did however after his last tummy reconnection surgery......I just want to tell you...Your not alone...I'm new to this too.....and very scared<img src="i/expressions/face-icon-small-smile.gif" border="0">