I know there are several people on the board from NC. I was contacted by a social worker at UNC today. The Adult CF financial assistance program has been CANCELLED because of budget difficulties. This is a very important program for many cystics - this is how I got medical coverage through college once I was too old to be on my mom's insurance policy, for example.
We need to lobby to bring this program back! There is a woman working hard on our case but she needs some personal stories. Have you been on the program or known someone who has? PM me and I will put you in touch with the woman organizing this.
The one catch is that she really if at all possible needs info by tomorrow at 1pm. There may be use for more stories later but we are pushing to do this by then.
Thanks!
laura
We need to lobby to bring this program back! There is a woman working hard on our case but she needs some personal stories. Have you been on the program or known someone who has? PM me and I will put you in touch with the woman organizing this.
The one catch is that she really if at all possible needs info by tomorrow at 1pm. There may be use for more stories later but we are pushing to do this by then.
Thanks!
laura