M
Mommafirst
Guest
I was there Lauren. The video was awesome. Everyone seemed to love it. I clapped with all my might and was so proud of you and your beautiful family.
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Video Day in a life of my son & I shown at NACFC conference - see link
- Thread starter LouLou
- Start date
I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
rubyroselee
New member
Great video Lauren! And Isaac is adorable <img src="i/expressions/face-icon-small-smile.gif" border="0">
rubyroselee
New member
Great video Lauren! And Isaac is adorable <img src="i/expressions/face-icon-small-smile.gif" border="0">
rubyroselee
New member
Great video Lauren! And Isaac is adorable <img src="i/expressions/face-icon-small-smile.gif" border="0">
rubyroselee
New member
BTW, I also posted a reply days ago and it didn't stick either...not sure what happened.
rubyroselee
New member
BTW, I also posted a reply days ago and it didn't stick either...not sure what happened.
rubyroselee
New member
BTW, I also posted a reply days ago and it didn't stick either...not sure what happened.
<P>Lauren great video, Isaac is lovely. thank you for all your help, you know that I am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to do the trial) so thank you for help my daughter and all the others daughters and sons of mothers like me that will do anything we can to give our child a better life.</P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P> </P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P> </P>
<P>Lauren great video,Isaac is lovely. thank you for all your help, you know thatI am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to dothe trial) so thank you for help my daughter and all the others daughters and sons of mothers like me that will do anything we can to give our child a better life.</P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P></P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P></P>
<P><BR>Lauren great video,Isaac is lovely. thank you for all your help, you know thatI am to far away to be part of the trial ( i have write to Vertex and call them but they said that my daughter is to far to dothe trial) so thank you for help my daughter and all the others daughters and sons of mothers like me that will do anything we can to give our child a better life.</P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P></P>
<P>nice words: more hope than sadness. </P>
<P>fran</P>
<P></P>
saveferris2009
New member
Great video!
Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
Great video!
Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
Great video!
<br />
<br />Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
<br />
<br />I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him).
<br />
<br />I know it's probably been a very long and tough road to accept all of this, but I commend you for doing the video. It was done very nicely. <img src="i/expressions/face-icon-small-smile.gif" border="0">
musclemania70
New member
I don't know how I initially missed this post the other day but regardless, its a great video Lauren.
I will say that you are to be commended for sharing your story and being brave enough to tell it.
Being public about CF isn't always easy but it is so encouraging to hear other people's stories and hear about their life.
I'm glad you did the video and shared your personal journey with us. (and participated in the trials!!!)
I will say that you are to be commended for sharing your story and being brave enough to tell it.
Being public about CF isn't always easy but it is so encouraging to hear other people's stories and hear about their life.
I'm glad you did the video and shared your personal journey with us. (and participated in the trials!!!)