SisitheQueen
New member
I am new to this site (thank you Lauren for referring me!) and should have joined years ago! Have a few questions and wanted some advice from other parents of kids with CF/adults with CF. SiSi is a 4 yo with CF who has been coughing up and spitting out her mucus for about 6 months now (not every time she coughs but often). About 3 weeks ago she started with a flu/stomach bug and was vomiting for a few days. Its been 3 weeks and she has continued to vomit occasionally (mostly while napping/sleeping/laying down). The MDs thought it was constipation and encouraged Karo syrup and suppositories. She had a BM, but still was doing it so then they thought it was her reflux (treated for as a kid but then they stopped the omeprazole when she was almost 2 yo). They started her on Zantac. We've been doing that for almost a week and is still throwing up after coughing. She has said things like "I did it, I spit out my mucus". She says that vomiting will "make her feel better" even though its prompted by coughing. The MDs now are saying its her allergies and its causing mucus via post nasal drip. We are giving nasal spray and claritan for allergies in an effort to dry her up but still have it in her mind that she needs to throw up to get the mucus out. Is this normal, a phase, etc? I feel like something is wrong but can't get the MDs to validate that I think something is wrong or just have a feeling that something is wrong. All thoughts and advice is welcome. Thank you in advance.