I have G551D and live in Philadelphia. This city is listed as a test site. Do you guys know when the trial is to begin? I would possibly consider it but I saw breastfeeding is not allowed while in the trial so depending when it starts it will or will not work for me. Also, do you anything else about the medicine or the trial such as requirements for the study and how the med is taken (pill, IV, etc.) Did you get an idea of how long you'd be involved with the testing and what the time commitment would be?