JoyfulHeart
New member
Does this sound like CF in a 5 year old boy?
1st 2 years of life, had 24 episodes of croup/asthma
11 hospitalizations of pneumonia. Almost died. Lung collapse. ICU.
"uncontrollable" asthma (docs just keep medicating aargh!)
Constipation on and off his whole life
Low LOW immune system
Sinus infections (that dont respond to antibiotics)
Catscan showed Sinus blockage that appears to be pollups (ENT was alarmed)
Always "hot natured"-- kid could sweat in a snowstorm
Adnoids and tonsils removed at age 2 because of recurring problems.
He's got good weight -- 50th percentile at this pediatrician appt last week, but when he's sick he goes on eating strike and refuses all food/drinks until well again. (drives me nuts!!)
His pumlonologist, immunologist and pediatrician are concerned. They said he shows MANY symptoms of possible CF, or a strain of CF.
We go wednesday for the Sweat test and doing the genetic test same time. Thursday is bronchial scope and possible MRI (if insurance will cooperate)
<b>
UPDATE BELOW>>>>>>>></b>
Thoughts? Advice?
What should I ask the docs? What should I research?
Please know, that after all these years, I'm "OK" with the possibility of CF. I just wnat to know the CAUSE for him being so sick, so that we can treat whatever it is!
1st 2 years of life, had 24 episodes of croup/asthma
11 hospitalizations of pneumonia. Almost died. Lung collapse. ICU.
"uncontrollable" asthma (docs just keep medicating aargh!)
Constipation on and off his whole life
Low LOW immune system
Sinus infections (that dont respond to antibiotics)
Catscan showed Sinus blockage that appears to be pollups (ENT was alarmed)
Always "hot natured"-- kid could sweat in a snowstorm
Adnoids and tonsils removed at age 2 because of recurring problems.
He's got good weight -- 50th percentile at this pediatrician appt last week, but when he's sick he goes on eating strike and refuses all food/drinks until well again. (drives me nuts!!)
His pumlonologist, immunologist and pediatrician are concerned. They said he shows MANY symptoms of possible CF, or a strain of CF.
We go wednesday for the Sweat test and doing the genetic test same time. Thursday is bronchial scope and possible MRI (if insurance will cooperate)
<b>
UPDATE BELOW>>>>>>>></b>
Thoughts? Advice?
What should I ask the docs? What should I research?
Please know, that after all these years, I'm "OK" with the possibility of CF. I just wnat to know the CAUSE for him being so sick, so that we can treat whatever it is!