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waiting for genetic test results
- Thread starter larasmommy
- Start date
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
clawson5104
New member
Hang in there!!!!!
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
Thank goodness they are finally testing ur daughter, regardless of the results, whether it be cf, or another problem, getting her diagnosis, and proper treatment, is far much better than not knowing what is going on!!
As far as cf goes, i'm still new, not much help, but i have learned and gained alot of knowledge and support from this site, and ever sooooo thankful for everybody here!! my son is not as severe as alot of the people/or their kids on this site, but we had some pretty rough times, and i knew something "wasn't right", it is such a relief now knowing he has this, and since his breathing treatments were increased, knowing what to look for with my son's symptoms, and i know the things to avoid (germ-wise, smoke, strong scents and stuff) he is doing sooooo much better. it's been a few months now since his last respiratory infection. before we usually went 2 weeks maxium in between problems!!!! what a difference. we are still new at this, but i have definitely learned that preventive care is a major part of this disease. so if ur daughter does have it, no matter how good she feels,,,, always do her treatments, meds...etc. it adds years to her life.
waiting for answers is the most difficult part, not necessarily the answers we get.
so, good luck, and ur in my prayers....keep us posted.
larasmommy
New member
Hey everyone...
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
larasmommy
New member
Hey everyone...
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
larasmommy
New member
Hey everyone...
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
larasmommy
New member
Hey everyone...
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.
THANKS to all of you for responding. Ive been reading the blogs here and was just wondering , When they do geno testing is it always the Ambry test? Like I said I went to Quest diagnostics, they said they test for over 1000 mutations, is this the same thing? I am so confused, I feel like I didnt ask enough questions because I was in shock when the sweat came back borderline.