jaynebryan96
New member
Have just joined this forum, i have an 8.5 month old son (my 3rd child) who has had problems since birth. Started off with him not taking a bottle, would scream and prefer to sleep than feed. This was combined with foul smelling diorhhoea (sorry about spelling) they put this down to lactose intollerance and changed his formula (at 5wks old) improved for a few days then started again. they put him on an anti allergan milk which again improved for a little while. He was referred to a paediatrician who diagnosed some acid build up and was given ranitidine medication which helped him to have some feed.
He was then diagnosed with a dairy allergy, comes out in rash in in any contact with dairy products. He looking back always sounded as though he had a raspy chest (not very good description) when he breathes sounds very congested, and you can feel it when you hold him around his ribs (if you know what i mean). Have taken him on numerous occasions to our gp who said his chest sounded clear that it was just a cough and cold.
At the moment he is on his 3rd chest infection since the end of october, forgot to mention that even from the day he was born he sweated loads, friends have all commented on what a sweaty baby he is (he is wet at times on his back and his hair) he also has failure to thrive was born quite big at 8lbs but at 8.5 months is just 16lbs, but is growing well in length.
At his last hospital review for his weight i saw a different dr, i again mentioned about his sweatiness and that he has an odd smell when he sweats and she immediately said he needed sweat tests to see if it was cf.
Sorry this post is so long but they cannot do any of the tests until the new year, and i was just wondering if this sounds familiar to any of you or if your babies have completely different symptoms.
Have done loads of research on cf and we are prepared if that is his diagnosis the just not knowing at the moment is driving us mad.
Thank you for reading this lengthy post and your replies would be most grateful.
Jayne & Callum - England
He was then diagnosed with a dairy allergy, comes out in rash in in any contact with dairy products. He looking back always sounded as though he had a raspy chest (not very good description) when he breathes sounds very congested, and you can feel it when you hold him around his ribs (if you know what i mean). Have taken him on numerous occasions to our gp who said his chest sounded clear that it was just a cough and cold.
At the moment he is on his 3rd chest infection since the end of october, forgot to mention that even from the day he was born he sweated loads, friends have all commented on what a sweaty baby he is (he is wet at times on his back and his hair) he also has failure to thrive was born quite big at 8lbs but at 8.5 months is just 16lbs, but is growing well in length.
At his last hospital review for his weight i saw a different dr, i again mentioned about his sweatiness and that he has an odd smell when he sweats and she immediately said he needed sweat tests to see if it was cf.
Sorry this post is so long but they cannot do any of the tests until the new year, and i was just wondering if this sounds familiar to any of you or if your babies have completely different symptoms.
Have done loads of research on cf and we are prepared if that is his diagnosis the just not knowing at the moment is driving us mad.
Thank you for reading this lengthy post and your replies would be most grateful.
Jayne & Callum - England