William,
I went throught the same thing as you 3 weeks ago. My son had 112, 107, and 109 on his sweat tests. I have been told that sweat tests are an indicator of the need further testing and the scores don't really mean much. My son was diagnosed due to repeated sinus problems over Sep and Oct, and his MD saw a nasal polyp. He was always healthy, or so we thought. He always had a very picky diet, so we thought the pale, floating stools were because he barely eats anything. I was lucky and got an appointment at a CF clinic the day after I called them with the sweat test result. They had us come in and they did another set of sweat tests. (our local hospital only did it on one arm......the CF clinic likes it done in both arms) They did chest X-Rays and a CT of my son's sinuses. Next the CF coordinator took us to an office and asked a bunch of questions (about an hour). The CF Pulmonologist then came out and broke the news that our son has CF. She spent an hour and a half with us. The rest of the afternoon was spent divided between the CF coordinator, the MD, the Nutritionist and the Respiratory therapist. We got there at 8 AM and left at 2 pm with an appointment at 3 pm with an ENT specialist who also has a subspecialty in CF.
I hope this gives you an idea what to expect if your son IS (I pray not) diagnosed with CF.
One thing you should know.........If your son is diagnosed with CF, find a Doctor who specializes in CF, and has a team if possible. It has been really nice to have a coordinator, nutritionist, respiratory therapist, and social worker who all work close in hand with my son's MD.
I will pray for you,
Doreen
