Washington DC area: Adult CF Center

Jana

New member
Richmond would be a couple of hours from there, and I think Charlottesville is about the same--not sure on that one, but Brad probably knows.
<br />
<br />Fairfax would be within about 30 minutes and should be an easy trip unless you decide to do it during rush hour =)
 
C

CFinCalifornia

Guest
Does anyone go to NIH? I know they don't hospitalize, but does anyone like those doctors?
 
C

CFinCalifornia

Guest
Does anyone go to NIH? I know they don't hospitalize, but does anyone like those doctors?
 
C

CFinCalifornia

Guest
Does anyone go to NIH? I know they don't hospitalize, but does anyone like those doctors?
 

Jana

New member
Don't know anything about it--sorry. I went there once to take a friend to have her wisdom teeth out, but no helpful information in that.
 

Jana

New member
Don't know anything about it--sorry. I went there once to take a friend to have her wisdom teeth out, but no helpful information in that.
 

Jana

New member
Don't know anything about it--sorry. I went there once to take a friend to have her wisdom teeth out, but no helpful information in that.
 

janicef1

New member
I live in the DC area and go to the Johns Hopkins CF clinic. It's about an hour drive from the city and the CF team is great! They have a full-service adult clinic that has regular appointments on Tues & Thurs afternoons. I also work full-time, and find the CF nurses are very responsive to questions/discussions outside of clinic appointments - so you don't have to make the drive for every flare up. For the past couple of years, I've done my IVs as an outpatient and gotten the picc placed at a local (NoVa) hospital rather going up to Hopkins and being an inpatient. And I get alot of labs done in the DC area rather than Baltimore (not PFTs though). Also, Hopkins is very active with CF research & trials and the clinic docs definitely listen to the patient in determining a care plan. I haven't tried any of the other area docs posters have mentioned, but I'd definitely recommend them.
Since you don't have a car, you may want to look into a Zipcar membership. There's plenty of locations - especially in the Dupont area - and it comes in handy for those couple of times you just need the car for a few hours.

Hope that helps.
 

janicef1

New member
I live in the DC area and go to the Johns Hopkins CF clinic. It's about an hour drive from the city and the CF team is great! They have a full-service adult clinic that has regular appointments on Tues & Thurs afternoons. I also work full-time, and find the CF nurses are very responsive to questions/discussions outside of clinic appointments - so you don't have to make the drive for every flare up. For the past couple of years, I've done my IVs as an outpatient and gotten the picc placed at a local (NoVa) hospital rather going up to Hopkins and being an inpatient. And I get alot of labs done in the DC area rather than Baltimore (not PFTs though). Also, Hopkins is very active with CF research & trials and the clinic docs definitely listen to the patient in determining a care plan. I haven't tried any of the other area docs posters have mentioned, but I'd definitely recommend them.
Since you don't have a car, you may want to look into a Zipcar membership. There's plenty of locations - especially in the Dupont area - and it comes in handy for those couple of times you just need the car for a few hours.

Hope that helps.
 

janicef1

New member
I live in the DC area and go to the Johns Hopkins CF clinic. It's about an hour drive from the city and the CF team is great! They have a full-service adult clinic that has regular appointments on Tues & Thurs afternoons. I also work full-time, and find the CF nurses are very responsive to questions/discussions outside of clinic appointments - so you don't have to make the drive for every flare up. For the past couple of years, I've done my IVs as an outpatient and gotten the picc placed at a local (NoVa) hospital rather going up to Hopkins and being an inpatient. And I get alot of labs done in the DC area rather than Baltimore (not PFTs though). Also, Hopkins is very active with CF research & trials and the clinic docs definitely listen to the patient in determining a care plan. I haven't tried any of the other area docs posters have mentioned, but I'd definitely recommend them.
<br />Since you don't have a car, you may want to look into a Zipcar membership. There's plenty of locations - especially in the Dupont area - and it comes in handy for those couple of times you just need the car for a few hours.
<br />
<br />Hope that helps.
 

chrissyd

New member
I go to NIH. I'm in a study for adults with cystic fibrosis, and had my first (and only knock on wood) tune up there. My doc is Dr. Churnick and I love her. When I was diagnosed I was given the opportunity to go to JH, but wanted to stay with NIH. (I was dx at 21) I go to NIH for two genetic diseases; and they take really good care of me there. I do have a primary doc to see also, who stays on top of everything.

I have also heard great things about John Hopkins. Although I can not speak about it personally, I was told that it was really good. I also know that the naval hospital in Bethesda has a clinic too...

<img src="i/expressions/rose.gif" border="0">
 

chrissyd

New member
I go to NIH. I'm in a study for adults with cystic fibrosis, and had my first (and only knock on wood) tune up there. My doc is Dr. Churnick and I love her. When I was diagnosed I was given the opportunity to go to JH, but wanted to stay with NIH. (I was dx at 21) I go to NIH for two genetic diseases; and they take really good care of me there. I do have a primary doc to see also, who stays on top of everything.

I have also heard great things about John Hopkins. Although I can not speak about it personally, I was told that it was really good. I also know that the naval hospital in Bethesda has a clinic too...

<img src="i/expressions/rose.gif" border="0">
 

chrissyd

New member
I go to NIH. I'm in a study for adults with cystic fibrosis, and had my first (and only knock on wood) tune up there. My doc is Dr. Churnick and I love her. When I was diagnosed I was given the opportunity to go to JH, but wanted to stay with NIH. (I was dx at 21) I go to NIH for two genetic diseases; and they take really good care of me there. I do have a primary doc to see also, who stays on top of everything.
<br />
<br />I have also heard great things about John Hopkins. Although I can not speak about it personally, I was told that it was really good. I also know that the naval hospital in Bethesda has a clinic too...
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 

Brad

New member
Yes Fairfax is about 20 miles from you.
Richmond in about 90 miles and Charlottesville is about 130 miles from
NW Washington.
But honestly Charlottesville is the better of the 3.

Johns Hopkins ia as good a Cville and is about 1 1/2 hours from NW.Wash.

Here is the Fairfax contact info.

Pediatric Lung Center - Affiliate Program Fairfax VA John P. Osborn, M.D. (703) 289-1410
 

Brad

New member
Yes Fairfax is about 20 miles from you.
Richmond in about 90 miles and Charlottesville is about 130 miles from
NW Washington.
But honestly Charlottesville is the better of the 3.

Johns Hopkins ia as good a Cville and is about 1 1/2 hours from NW.Wash.

Here is the Fairfax contact info.

Pediatric Lung Center - Affiliate Program Fairfax VA John P. Osborn, M.D. (703) 289-1410
 

Brad

New member
Yes Fairfax is about 20 miles from you.
<br /> Richmond in about 90 miles and Charlottesville is about 130 miles from
<br /> NW Washington.
<br /> But honestly Charlottesville is the better of the 3.
<br />
<br /> Johns Hopkins ia as good a Cville and is about 1 1/2 hours from NW.Wash.
<br />
<br /> Here is the Fairfax contact info.
<br />
<br /> Pediatric Lung Center - Affiliate Program Fairfax VA John P. Osborn, M.D. (703) 289-1410
 
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