Hi and welcome to cystic fibrosis dot com.
As you can already see everyone here is in your corner and fully committed to help with your support, education, and hope for Kathryn. Wiki says LLU is super connected and highly regarded. I hope your daughter comes to this site too.
Although written in 2006, the following article is worth reading. Its publication probably forced many centers to upgrade themselves. If you search Google: New Yorker Atul Gawande, Bell Curve (I can't seem to get it to link here but it does come up in Google) it is still worth the read for its perspective and scholarship.
In fact you'll discover how many questions are repeatedly asked but still unanswered for people because cf is still waiting for pharma legal departments to get with the 21st century health agendas.
Maybe Kathryn is a false positive, but if not, this is arguably the best cf education resource, literally in the world and in fact 124 countries and territories are here every day. As an MSW, you know knowledge in healthcare is not only power, but LIFE SAVING!!!
Thank you for sharing and we'll all be here 24/7 whenever you need some perspective.
Peter